Ever since I started university and began writing about my disability on here, I’ve had to sit down and decide what I truly feel about it. And the short answer is: I’m not really sure.

Whenever a person has a physical or a mental disability, we have this culture of telling them that they’re ‘so brave’ and that they do ‘so well’. These sentiments are incredibly valuable for some, because hearing them can really give individuals the boost of reassurance or confidence that they need. But for me, this kind of phrasing harbours weird implications. It suggests that I have some sort of choice in the matter, and often its said in an acutely patronising manner, so it rarely makes me feel as good as the person saying it intended. But then again, a huge part of being disabled is to be constantly patronised…you build up a tolerance for it.

However, when I think about what I want people to do, how I’d prefer them to broach the subject, I never really have an answer because establishing how to ask a disabled person about disability without patronising them, isn’t something anyone seems to be interested enough to talk about. I want to be treated as ‘normal’, but then I also want the ways my life can be objectively harder sometimes, recognised. I want people to feel comfortable enough to ask me questions so that they can learn about disability, but I can’t always control my emotional reaction to the way they ask. I want to be a person separate from what restricts me, but I don’t ever want to reject such a huge part of myself.

You see? Nothing’s ever simple.

This blog allows me to have a huge platform to talk about my disability on my terms – something which minority communities are rarely afforded. But I want to do that in a completely honest way: I’m not going to be the perfect ambassador for the disabled, because I’m constantly re-evaluating how I feel about the way I was born. I don’t know if I’m proud to be disabled, because my disability itself gives me nothing but grief. What I’m proud of are the ways I manage to live with it – but even then, I don’t see anything to be particularly proud of, because I don’t see any other option. Maybe this isn’t the correct way to be, maybe my logic is skewed. But I’ve never been told how to feel about my disability, so I’m making it up as I go along.