Consistency is key

Consistency is key

No matter how much I post about my disability on the internet, I am not, and never have been, very good at asking for help with it. I can do my own TedTalk in a room full of strangers about how ‘it impacts my life’, or overshare on the internet, but internally, I still wince from embarrassment each time I have to ask someone to alter their actions to accommodate my disability.

As a little girl, I had six operations which caused me to spend prolonged periods of time in a wheelchair and at hospital appointments, but I still don’t remember ever feeling ‘different’ because of that – shout-out to some top-tier parenting from Mr and Mrs Douglas there. Obviously, there were times when I was confused and frightened by it all; I mean, I remember the fever when an operation on my left foot got infected so the bone could be seen from the outside, I remember bawling my eyes out every time my parents told me I had to go in my wheelchair, and I still physically cringe when I think about getting stitches taken out of my feet after operations. But in and amongst all of that, I climbed as many hills as my able-bodied brother whenever we went camping, and I have no memories of feeling lesser than my peers or my siblings because I was ‘disabled’. However, I’ve come to realise that this was largely due to the fact that until I was in my mid-to-late teens, my disability wasn’t my own; it was my parents’. This Spina Bifida that everyone told me about was something I knew I had, but the dealing with it was something my parents did; like any six-year-old, I just went wherever I was told with a smile on my face and a Cinderella dress on.

Stuff started to get a bit sticky when I was a young teenager though, because by this point my friends and I were old enough to go into town on our own. So, instead of having the luxury of being lifted onto my Dad’s or my oldest brothers’ backs when the walking distances started to get a bit too far, I had to rely on my 14-year-old friends being emotionally aware enough to know the limits of my disability, even though I’ve always been too embarrassed and too stubborn to bring it up. Inevitably, this didn’t go very well and there were a lot of angry tears at the kitchen table.

Then in my late teens, I did really try to quieten my ego in favour of being responsible with my feet. But that’s indescribably difficult to do when not a single person around you is having to do the same – not to mention the fact that I’ve also got a naturally adventurous, ‘go on then!’ attitude which makes me want to do things I probs shouldn’t. So I effectively had to go through a period where I mourned the fact that I was too old to ignore my disability now; I had to grow up a bit. But thankfully, the wallowing didn’t last very long since crying over not being able to run a marathon or go on a hike for four hours wasn’t going to change anything. Plus, I can do plenty of other stuff anyway.

Sometimes I do still feel the loss though, like when I’m walking through town with my friends and they’re walking faster than me, my legs are getting tired, and I’m getting out of breath trying to keep up. Or, when another person in a Council or Security uniform tells me I can’t park here, that there aren’t any disabled spaces, and that they don’t know where I can go. Or at the thought of going on a date with someone I’ve just met, them wanting to walk around, me not being able to, and having to talk about my disability before I get to say anything else about myself.

Basically, I find asking for help with my disability humiliating and exposing, and I’ve been disappointed by a lot of people before, so it’s likely that if you do offer to help me out, even though I’ll obviously really appreciate it, it’ll take me a minute before I trust that you’re not going to forget next time. I know that that can be annoying if you’re intentions are sincere, but I can’t help it.

If you do want to be supportive of someone with a disability, I think the best piece of advice I can give you is to be as subtle and consistent with your actions as you can. I might speak very publicly about disability, but even I don’t want it to be brought up in every conversation – in fact, the best-case scenario for me if I’m out and about, is you being the one to suggest sitting down or getting an uber because you’re tired. That way, my legs are looked after and I don’t feel guilty or embarrassed for making you do something you wouldn’t normally have to.

She loves me, she loves me not

She loves me, she loves me not

Recently, I’ve noticed a change in myself when it comes to how I approach friendships with other young women. As some of you may know, I grew up alongside three older brothers, and have always had a close relationship with my dad. This isn’t to say that my mum and I aren’t close, because she’s undoubtedly one of my best friends, still, I’ve always felt more comfortable in the company of men.

All four of us were raised as feminists and were encouraged to show appreciation and love for the successes of individuals regardless of their gender. Yet, my parents could only do so much when it came to raising children in a society built on thousands of years’ worth of patriarchal ideas. So the fact is, that when I went to school and I socialised with kids outside of my home environment, I found myself experiencing way more grief when it came to my friendships with girls compared to those I experienced with boys. For instance, I could type page after page of stories of when I’d been friends with a girl for a long time then all of a sudden she had decided she didn’t like me for some reason or another, and boom: the bitching starts, everyone’s crying, friendship over.

Hence, I find myself walking into rooms full of all types of people, and the ones I feel the most intimidated by – without a shadow of a doubt – are the cis heterosexual women. Especially ones in a big group. But a lot of the time, I’m not intimidated because I don’t think that I would like them, it’s because I figure that the second I open my mouth and show myself as confident, self-assured, articulate, or (god forbid) comfortable around cis heterosexual men, these women won’t like me. I just can’t be arsed with the judgemental stares.

Only, I fucking LOVE women. I am one ffs. But society and its patriarchy are so unbelievably divisive that the second we’re away from those we love, and even occasionally whilst we’re with those we love, women are taught to rip each other to absolute shreds. We’re taught to judge, and distrust, and hate each other so much that sometimes we can’t help but subconsciously give in to the misogyny. As much as we raise our friends up for being confident and loving themselves, it’s not always easy to carry that approach into every situation. Plus, women can and are really awful to each other sometimes, so it’s not always easy to like every one.

However, the main point I want to make in this week’s blog, is that all women should stop being so distrusting of one another just because of the fact that we’re female; doing so doesn’t help anyone. My friendships with the women in my life now are some of the closest, most colourful, joyful relationships I will ever have, and I think it a shame that sometimes I might have accidentally stopped others from developing because I’ve assumed things before I’ve asked any questions.

So, the moral of this story is: you’re not going to like everyone, but don’t let the reason you don’t like someone be because of their gender.

Discrimination is surprising

Discrimination is surprising

The response to last week’s blog has been amazing: people were completely outraged! And this was so weird (lovely !!, but weird) to me, because my getting blocked by students at my University didn’t even make me that angry: it wasn’t an unprecedented event. But you were all so shocked and furious! So, I realise, that you have no idea of just how poorly your disabled community is treated…

So let’s actually talk about disability and society, and let’s first take the idea of ‘looking’ disabled. Well, I don’t ‘look’ disabled. But the fact that I don’t has had serious consequences on the way society treats me.

There are two instances from Secondary School relating to this which particularly stand out for me. The first was when I was in Year 7: I was 11 years old and I’d recently developed a blister on my foot from walking too much, or having a fold in my sock, or something else tedious. (Yes, folds in socks can shove me in a wheelchair for months: it’s that stupid.) So in an attempt to avoid going into my wheelchair, I started to use the lift for disabled students to cut down my walking.

I was outside the lift one afternoon on the way to my next lesson with my best friend when my Deputy Headteacher came over and asked me what I was doing. I politely explained how I had a note from my parents, that I had a blister and that I had to use the lift. She didn’t look at my note, and she wasn’t interested when I started to lift my trousers so she could see my shoes. Instead, she yelled at me saying ‘a blister?! I’ve never heard such a thing! You’re stopping disabled students from using this lift!’. So I went to lesson in floods of tears: completely humiliated.

In this moment I didn’t ‘look disabled’ to my Deputy Headteacher: I didn’t have a noticeable body deformity, sound disabled, nor was I in a wheelchair. Flash-forward 2 weeks however, and I was in a wheelchair…no challenges as to why I was using the lift then…

The other memory I have is from being in Year 10 – the 3rd time I was in a wheelchair at Secondary School. My friends were pushing me through the halls to our lesson, and a student I didn’t know saw us. He shouted ‘piss off! I saw you walking last week, get out of that thing!’ at me across the hallway. I was stunned but my friends shouted back at him and we kept moving. Clearly, to this boy I was a liar; I was the person the media and government demonise as ‘abusing disability services and benefits’, and he took this moment to publicly expose my lie.

The world is constantly fed this finite version of what it is to be disabled: what it looks like, what it sounds like and what it feels like. But nobody ever takes the time to work out whether this stereotype is true. So just think about how many people you know without a disability: are they all the same? Do they all have the same bodies and personalities and emotions and ideas? Now think about applying that to disabled people. Do we all have the same disabilities? Do people who even fall under the same type of disability, have the same variation of that disability? Do we all look the same? Sound the same? Feel the same?

The answer is clearly ‘no’. Still, we’re grouped into one blob and are treated poorly by people and institutions who take very little time to try and actually understand us.

I’ve never been bullied directly because I’ve always had people standing up for me, and I’ve always had the confidence to stand up for myself. But I’ll always be vulnerable to discrimination by institutions and the general public because of an unwillingness of people to sit down and actually learn about things they know nothing about.

If you’re outraged by my experiences then start learning about other people’s, because I’m such a privileged white girl and my exposure to discrimination is nowhere near as bad as it gets. Trust me, you know more disabled people than you think, and you have more preconceptions about disability than you recognise.

Just an idea

Just an idea

Let’s talk about why we live in a society where we’re made to feel like if we ask someone out, and they’re not keen, that that is the worst humiliation that anyone could ever suffer. Because as I’m growing up, I’m beginning to realise that it’s really not that deep, and that we need to stop causing ourselves so much grief about it.

Obviously, getting rejected never makes you feel great, and sometimes it can really hurt. But does that short-lived disappointment really warrant never asking anyone out? Especially since if you do it early on in your infatuation for someone, and they shut you down, then you haven’t involved your feelings as much as you would’ve weeks/months/years down the line. It then follows (in my eyes) that everyone should maybe just get it off of their chests pretty quickly, before it escalates and feelings get super carried away…

Saying that, I’ve always been really timid when it comes to telling boys that I find them attractive or like them in a romantic way. In most parts of my personality, I’m pretty confident and fearless but for some reason – whether that be due to my own insecurities, or those triggered by popular culture- I’m shy with expressing how I feel to boys.

But then why should it always be the boys’ duty to make the first move? It’s common sense that they’ll feel just as shy or scared as girls in this context, so why continue the sexist trope of waiting for them to kick things off?

It’s literally only been in the last year that I’ve started to have moments of exasperation where I think: ‘why am I sitting around, dropping hints, being shy and wasting my time waiting for him to say something? Why don’t I just put what I’m thinking out there, and he can either take it or leave it?’

Yes, it’s not easy and yes it takes a lot of courage to say how you feel when you have no idea whether the other person feels the same way. But let’s be honest: is there really any point in making yourself suffer the stress of not knowing, when you could just rip the plaster off and ask?

So what if they say no? At least you know and can stop sitting there wondering…

I’m a total sucker for playing the flirting game, and I’m really not experienced in romantic relationships at all – so my word on these subjects is definitely not gospel. However, my conclusion from observing those around me is that the whole tip-toeing around the subject is pretty tedious and causes more grief than its worth.

So whatever your gender, if you like someone, just let them know. The worst case is that they reject you and you’re upset for a bit, but now you know that there’s no point pursuing it anymore. A vital comment to make here, is that the rejection shouldn’t and doesn’t take anything away from you! If they don’t like you like that, or if they’re messing you about, then forget about it: you don’t need the headache.

But then the best case scenario is that they say yes and when that outcome happens, you’ll be so glad you had the courage to be honest about how you feel.

So just do what I did when I was searching for my first job aged 16, and tell yourself: ‘well someone has to say yes at some point’. (Granted, that comment was laced with sarcasm and annoyance at the time, but it’s still a relevant point to make).

When I write these entries sometimes I inadvertently end up giving advice, but it’s important to note that what I say isn’t always reflective of how I act. That isn’t to say that I’m being a hypocrite, it’s just that whilst I like to show my vulnerabilities and flaws, occasionally my aim is to speak how I want to be and how I think I should be into existence. It doesn’t always work, but then sometimes it does.

Regardless of whether I’m saying how I am or how I want to be, I hope that after you read whatever thoughts I have, that we can both take something positive from it.

As always, thanks for reading this far.

Xx

Eyes up here please

Eyes up here please

When I write or talk about my disability, I have to remind myself that the tiny things I experience are not also a part of everyone else’s day-to-day. So this Sunday, I’m going to tell you about one part of my life which may surprise you, though it seems tediously normal to me.

To put it simply: I can’t step out of the house without someone staring at my shoes. For instance, just the other day I was walking in my college at University and one of my fellow St Aidanites walked past me. She stared at my shoes for the entire time we were passing each other – a good 15 seconds – and at no point did she take the time to tear here eyes away from my feet to look me in the eye. Now. People. I get it. Often when you see my shoes it’s the first time you’ve seen anything like them in your life. But come on. Is it really that exciting? Did your parents never teach you that it’s rude to stare? Plus, the object of her amazement was literally just leather boots with some metals bars coming slightly up my legs. Wowee 😮

Growing up I became so used to people staring at my shoes and not looking in my eyes that I was sort of numb to it: on the street, on a bus, in a museum, at the cinema, at school, at the park, with my brothers, with my friends, on my own – you name a time and a situation, someone was probably having a look. Amazingly, I can’t remember ever really being phased by it as a little girl. But then I got older, and I got angry.

A particularly memorable experience is when I was 12 years old and I went to a shopping centre with my family. I was standing on my own in a queue for some food, when I saw a middle-aged woman abandon what she was doing just to gawk at my boots. She literally stopped in the middle of the floor and just stood there looking. I’m not even exaggerating. I was furious and humiliated, so I crouched down to make her realise that there was a person (a child) wearing those shoes who could see exactly what she was doing. She didn’t apologise after she realised I’d seen her, she just walked away. I’ve had more instances like this than I care to remember; with some days gifting me more than one.

Fortunately it’s not always like this. Very rarely, I’m made speechless when someone sincerely says that they like my shoes. Like! The first time in my life someone did this was when I was walking up the stairs at school, aged 17, and a supply teacher said ‘Nice shoes’ to me as he walked past. I stopped dead in my tracks with my mouth wide open, mumbled a stunned ‘thank you’ and watched him walk away. In all honesty I was ready to pounce because I thought he was taking the mick, but I realised that he wasn’t: he actually meant it. So I legged it into my common room and still in disbelief, told my friends about what had just happened. That was the first positive comment I’d ever gotten about my shoes from a stranger, and to this day, that’s only happened a handful of times.

Now that I’m older, somehow I don’t really care about my shoes or the stares. Although if you catch me on a bad/insecure day and I see you staring, then I will hate your guts for a second. Regardless of my mood though, I’ll always at least notice it.

I know that people stare because my shoes and my disability are probably things that they’ve never seen before. So if that then means that I have to be the one to watch you gawk at me like an object for a few seconds, so that you won’t do it to the next disabled person you see then that’s fine, I can take it. Just remember that whatever you’re staring at is being worn by someone, with feelings, and eyes to see you too.