Tag: discussion

My dissertation was about sex! :o

My dissertation was about sex! :o

by elizabethmdouglas ♥ 2 Comments

Considering that quite a few of you took part in the research, it won’t come as a surprise that I wrote my dissertation on whether physically disabled women are perceived as sexy by the societies they live in. (Big big thank you to everyone who took part btw). I don’t really fancy plagiarising myself here though, so I won’t go into the minute detail of the dissertation, but since so many of you contributed and were interested in the topic, it’d be rude of me to not give you the low-down of why I chose it, and what I discovered. So buckle up kids.

If I’m honest, my diss was partly another effort to understand why my love life insists on being so dire. In my first year of university, I wrote a blog about how a friend had asked me whether I thought my disability had ever hindered lads from asking me out or taking things further with me, and what I said then remains true for me now: yes, it has, but I’d be shocked to see anyone admit it. From all my research, and from what I’ve literally seen, able-bodied people are tentative to date or be intimate with physically disabled people (whether maliciously or not), and for the ones with the disabilities, this has at best resulted in being ignored or passively rejected, and at worst just straight-up abused.

The work that I’ve done so far is minuscule when compared to how much work needs to be done. I looked at ‘physically disabled women’ in particular but even that phrase is kind of hollow because it doesn’t even begin to describe the vastly diverse group of people it’s trying to categorise. Furthermore, I didn’t have the words or time to study the impact of race, gender, economic background, type of disability, and all the other aspects which would inevitably influence the experience of sexuality for individuals. I also didn’t have the opportunity to talk to disabled people directly; I used a tonne of literature, but nothing can come close to hearing the words from the ones who feel it. So, whilst my work was informed and (I hope) useful, to call it the tip of the iceberg would be a huge understatement, and I wouldn’t be surprised if I continue to write about this for the rest of my life.

Nonetheless, the overarching theme of this dissertation was one of acceptance and optimism from most of the people who answered my questions. What I will say though, is that often your optimism was naive; it was comforting, but it didn’t really line up with the reality of the world. People gave the correct response by saying that it shouldn’t matter if you have a disability, and it shouldn’t matter how that impacts sexuality because anyone can find love, sex isn’t a fixed thing, and disability shouldn’t ever threaten a person’s ability to experience pleasure within relationships. Only, saying that something shouldn’t happen, doesn’t make it not happen.

For months, I’ve been exposed to the disabled experience on a level that I’d never seen before: for the first time, I was reading and listening to things that felt totally relatable rather than 85% there. The fact is that like all of the ‘isms’, ableism is so ingrained within our society that just because I have a disability, that doesn’t mean that I don’t have prejudices against the disabled community. There’s plenty to unpack there, but I think I’ll leave that for another blog (or two, or three…). But to generalise, the truth is that we’re so concerned with looks and frightened by what we don’t personally understand, that the disabled body has been persistently and systematically defined as undesirable and in need of a cure. To put it even more plainly: I’m disabled, so that means that my body is wrong, so it can’t be pretty and it definitely can’t be sexy, and if someone does find it pretty, then that’s not because of the disability, it’s despite it.

Obviously, there are grey areas here, and each individual can (and is) judged to be beautiful, desirable, and every other positive adjective by individual people. But finding one disabled person gorgeous doesn’t a perfect society make. There need to be some HEFTY changes when it comes to what ‘society’ and individuals understand disability to mean because for pretty much all of history, it’s equalled a mistake that we should ignore and just wait until it dies (or kill it before it lives).

So…how did it feel to write this, when I was sort of writing about myself? Well, it wasn’t great to hear that disabled women are far more likely to experience abuse (psychological and/or physical) within romantic or sexual relationships than able-bodied women. Nor did it feel amazing to read countless experiences of disabled people like being asked to leave restaurants because their appearance might put people off their food, or being persistently pushed to the side and dismissed as irrelevant and pointless. It also almost brought me to tears in the library to read women say that it’d been easier for them to tell people who’d assumed that they couldn’t have children because of their disability that they were right when they weren’t actually right because they could have kids, but the support for disabled women just isn’t there since everyone assumes that they can’t have kids anyway and if they can, then they shouldn’t in case they pass their disability on. But again, that’s not even scratching the surface.

Disabled people aren’t the weak, infirm victims history and modern culture paints us out to be and there are so many examples of fulfilled, happy lives with a disability. However, I share the sentiment that I read basically all of the disabled community expressing, in that the worst of the ‘struggles’ I’ve already had and the ones I’ll continue to have aren’t because of my Spina Bifida, they’re because this world is doing its absolute best to ignore me until I croak.

The thing is though, I’m a loudmouth who’s got a loooot of years left and I plan on making people talk about this because, regardless of whether you’re disabled or not, it has everything to do with you. I hope that in some small way, my blog or whatever else I do in the future can contribute to disabled people actually being listened to and valued because we deserve your attention.

If I can manage that, then that’s a win really innit?

P.S.

Can we all pls manifest that I get a good grade on my diss lol IMAGINE

Peace to Ukraine

Peace to Ukraine

by elizabethmdouglas ♥ 0 Leave a Comment

Every day, devastating things happen across the globe; some make the news for a few days, whilst others go completely unspoken of because public news stories only ever last as long as people’s attention spans – which, if you need clarification, isn’t very long. But at the minute, if you’re in Europe, then pretty much the only thing being shown by news channels is the Ukrainian-Russian War, and because I know that there’s no way of telling how long Ukraine will keep the attention of the continent, it only felt right that I say something on a platform where I know that some people will listen.

Right now, I’m being reminded of the extent of my privilege as a white, English, young woman because I’ve never known what it is to have friends or family in a country suffering persecution and war. But this time is different. I worked in Ukraine for 2 months in 2019, and for 3 weeks in the summer just gone, so whilst I may only know this country on a very small scale, it’s frightening to be texting friends who’re hearing bombs and hiding in metro stations when just 6 months ago we were sitting and laughing together, as they taught me Ukrainian and teased me about my accent.

The concept of invasion by a foreign power is not something many Brits have any understanding of, given that for centuries this nation was the threat and not the other way around; conveniently protected by oceans. This has largely meant that we can’t fathom what it would be like to live in a country where you’re never safe from invasion. We don’t really have the cultural capacity to imagine what it’s like to be told that you’re not what you thought you were, that the language you speak is no longer allowed, or that your home is now not the safest place to be. Hence, I can’t truly be an empath for my Ukrainian friends right now – no matter how much I might want to – but what I can do is draw as much attention to their voices as possible.

This isn’t a time to be passively ‘upset’ about what you’re seeing on the news, because as much as feeling sad or frightened is totally valid right now, my friends need more than that: they need something tangible.

So, listen to what the Ukrainian people are asking for and donate to their armed forces, go to a protest where you live, and keep talking about how blatantly wrong it is that these imperialist actions are still able to happen in the 21st century. Even if I couldn’t put faces and personalities to this crisis, what’s happening in Ukraine right now is an unforgivable violation of human rights, which should never have been allowed to go as far as it already has. This historical event isn’t unprecedented, and it isn’t something unique to Ukraine. But surely, this happening so close to home should emphasise how people need to actually learn from history, rather than ignore it and then hopelessly repeat it until we all kill each other.

My words don’t feel sufficient right now, but they’re the best I can give to help my friends. Thus, I hope for them, that the rest of the world pulls through and that this insanity can end soon so that they’re not robbed of anything else.

All my love to you, and peace to Ukraine.

Be my Valentine

Be my Valentine

by elizabethmdouglas ♥ 0 Leave a Comment

It’s Valentine’s Day, and I’ve thought long and hard about how I want to address that. Earlier in the week, I’d toyed with not mentioning it at all and just posting something else I’d written; I thought about how I don’t want the only two themes of my posts to be relationships or my disability, even though I know that those are the topics my readers gravitate towards. But Valentine’s Day is a big deal for lots of people (whether they want it to be or not), since everyone is so aggressively brainwashed to believe that we each need a romantic relationship to experience true happiness or success and that this is the time when we get to show off that happiness and success. Or, we get to not, and then have it implied that we should be sad about that.

I remember when I was about 18, talking to my mum about boyzz, and saying that I thought the reason I’d had disappointing experiences was because I trust people too easily. She scoffed at that, asked what I meant, and said ‘you don’t trust anyone’. That makes her sound really brutal – she’s not brutal, but she is honest, and she made me realise that I like to tell myself that just because I’m extroverted and kind, that that equates to me being super trusting of others. Except, what she said to me when I was 18 remains true as I type this as a 22-year-old: romantically, I don’t trust lads as far as I could throw them.

This lack of trust isn’t founded in some intense trauma; I might have had some bad luck in romance so far, but I’m fortunate to have never suffered that badly from it. Honestly, the worst thing that’s happened to me in that arena is that the very few lads I was really interested in have hidden me. The first boy I ever really liked actively kept me a secret, by asking me to do things like turn my Snapchat maps off if I went to his house so nobody knew I was there, he’d never post me on his story like he would when he was seeing other girls, and he’d only be out in public with me if it suited him. Then there were the other couple of crushes who preferred a kiss behind closed doors and us to never mention it again.

Now, I know what you’re thinking: all of that’s awful and I don’t seem like someone to stand for that ridiculously toxic behaviour with the things I say in these blogs. You’re right about both of those things. I tolerated all of that sh*t when I was younger because it was subtle, I was desperate to be a part of the romantic relationship world, and we don’t always practice what we preach when we’re in the situation.

If I were to describe how I’d feel about being in a relationship now though, I honestly think that my main feeling would be terror. (I laughed when I typed that though, so don’t read this as if I’m crying about it.) I guess I’m scared of being with someone because I have absolutely no idea what that’d look like in my life: I’ve seen others do it, but I don’t know who I’d be in that context. So, the prospect of that degree of new experiences and emotions is ridiculously exciting, yet I can’t help but be scared of it as well.

I think that Valentine’s Day is a funny one because it’s nauseatingly commercialised, and it’s one day of the year when people seem to be obnoxiously happy or obnoxiously bitter or ambivalent about the whole thing. We all know that in the grand scheme of things it matters very little if you get a bit of cardboard through the door saying ‘be my Valentine’ or not, but at the same time, many of us can end up feeling pretty low when the 14th February is like any other day. That’s just because we’re human, and we want to experience love.

So, even though we know Valentine’s Day is pretty pointless, be as obnoxiously happy or sad or anything in between as you want. Plus, it’s Pancake Day soon!

Wait, but I thought that I was supposed to hide this?

Wait, but I thought that I was supposed to hide this?

by elizabethmdouglas ♥ 0 Leave a Comment

If there’s one thing that I always hate hearing from people as a young, disabled woman, it’s ‘oh you do so well’. I’ve heard it whilst sitting on buses, walking down streets, in the waiting areas of the doctors or in airports, from the mouths of my parents’ colleagues and those of my teachers, and plenty of times from strangers when they simply don’t know what else to say. And I know that the intention is often pure; people want to show some level of appreciation for the fact that my physical existence may not be as simple as their own. Only, most of the time it just comes across as a bit bloody patronising.

The flip side of this, however, is that I spend so much time coping with my disability whilst doing whatever I want to do, that I’ve been guilty of disassociating myself from the fact that I’m physically disabled and that these things I’m doing are impressive. I am also English, though – Northern at that – so I suffer from an acute inability to talk about my successes without the embarrassment setting in.

But when I really think about why I don’t acknowledge ‘how well I do’, it’s because ableist aspects of our western society make it such that I’m supposed to blend in. Therefore, if I make any reference to how it might be really bloody impressive that I’ve done things like travel to, and live in the middle of the Nepali jungle without any access to medical care for 3 weeks on my own when I was 19 even though 3 weeks before that I couldn’t even go into work because I had an infected foot, then doing that doesn’t make me blend in. It brings my disability to the forefront, and I stick out in precisely the way society has told me that I shouldn’t.

So this is the part where you, my lovely reader, (hopefully) think ‘yes, of course, that’s impressive! You shouldn’t want to hide who you are’. And just like I’ve said to every person who has had genuine kindness in their eyes when they’ve told me ‘you do so well’, I want to thank you for saying that.

But drawing attention to my physical weakness is hard.

Last summer whilst I was in Ukraine, I found myself in a situation where I knew I had to mention my disability in a very public way, in order to avoid awkward run-ins later on. As always, when arriving at a place full of strangers, I chose to wear an outfit which covered my shoes to avoid any judgements before people heard me speak, but then I remembered that summer camp counsellor is a pretty active job and when the kids arrive tomorrow, if people see me sitting down every now and then, then they might think that I’m lazy or slacking off. So, to save face, I sat next to my friend from the first year I’d worked there and I announced my disability to a group of around 35 people. I’d never done anything like that before, and it was awful; my voice shook with every word I said, and I was very close to tears. But people were lovely about it, as they often are, and my announcement actually created the space for individuals to feel comfortable and slightly obliged, to ask me specifically how my legs were doing during our intense working days – something no one except my parents had ever asked me.

However, every single time someone asks about my disability, or I have to explain how it limits me, it’s emotionally draining in a way that I can’t effectively explain. That’s not to say that people should stop asking – definitely don’t stop doing that. I just want to communicate to you that back to back disability explanations don’t come free: it’s new for me to meet people and my disability to be one of the first things we talk about, and it’s new for me to have to talk about it this much.

One of the most heartwarming things I experienced after my announcement in Ukraine was towards the end of the summer. I was walking back from running an activity for some of the kids when 2 girls asked me if I could please explain to them why I wear my shoes. For the first time ever, I turned to someone who’d asked me to spontaneously offload personal details, and I said ‘do you mind if I tell you tomorrow? Because it’s 11am and 25 people have already asked me today.’. 25 isn’t an exaggeration by the way, I’d counted. And at that moment I realised that I’d always answered people’s questions straight away because I’d never wanted anyone to get embarrassed or feel upset about asking me. I also realised that subconsciously, when people see something as physically obvious as a disability, they think that on some level they’re entitled to an explanation. This, of course, is problematic.

I did explain it to these girls though since they asked so nicely, but they had to wait a day.

So, I’m in a weird spot now because I’m seeing myself doing things I never would’ve done two years ago, like walk around my university library with my callipers on full show and mentioning how I’m physically disabled in the first few moments of speaking to people. Meanwhile, the stubborn part of me which never wants to be defined – positively or negatively – by my Spina Bifida persists, and it occasionally dismisses my physical successes as just what everybody does.

And I know that my writing style leans towards a nice, neat conclusion that pulls all of this together, but not today my friends. My relationship with my body is complicated, and that’s just it.

She loves me, she loves me not

She loves me, she loves me not

by elizabethmdouglas ♥ 0 Leave a Comment

Recently, I’ve noticed a change in myself when it comes to how I approach friendships with other young women. As some of you may know, I grew up alongside three older brothers, and have always had a close relationship with my dad. This isn’t to say that my mum and I aren’t close, because she’s undoubtedly one of my best friends, still, I’ve always felt more comfortable in the company of men.

All four of us were raised as feminists and were encouraged to show appreciation and love for the successes of individuals regardless of their gender. Yet, my parents could only do so much when it came to raising children in a society built on thousands of years’ worth of patriarchal ideas. So the fact is, that when I went to school and I socialised with kids outside of my home environment, I found myself experiencing way more grief when it came to my friendships with girls compared to those I experienced with boys. For instance, I could type page after page of stories of when I’d been friends with a girl for a long time then all of a sudden she had decided she didn’t like me for some reason or another, and boom: the bitching starts, everyone’s crying, friendship over.

Hence, I find myself walking into rooms full of all types of people, and the ones I feel the most intimidated by – without a shadow of a doubt – are the cis heterosexual women. Especially ones in a big group. But a lot of the time, I’m not intimidated because I don’t think that I would like them, it’s because I figure that the second I open my mouth and show myself as confident, self-assured, articulate, or (god forbid) comfortable around cis heterosexual men, these women won’t like me. I just can’t be arsed with the judgemental stares.

Only, I fucking LOVE women. I am one ffs. But society and its patriarchy are so unbelievably divisive that the second we’re away from those we love, and even occasionally whilst we’re with those we love, women are taught to rip each other to absolute shreds. We’re taught to judge, and distrust, and hate each other so much that sometimes we can’t help but subconsciously give in to the misogyny. As much as we raise our friends up for being confident and loving themselves, it’s not always easy to carry that approach into every situation. Plus, women can and are really awful to each other sometimes, so it’s not always easy to like every one.

However, the main point I want to make in this week’s blog, is that all women should stop being so distrusting of one another just because of the fact that we’re female; doing so doesn’t help anyone. My friendships with the women in my life now are some of the closest, most colourful, joyful relationships I will ever have, and I think it a shame that sometimes I might have accidentally stopped others from developing because I’ve assumed things before I’ve asked any questions.

So, the moral of this story is: you’re not going to like everyone, but don’t let the reason you don’t like someone be because of their gender.

Netflix and..?

Netflix and..?

by elizabethmdouglas ♥ 0 Leave a Comment

So guess what I tried out last week then.

*guesses*

Tinder. I tried Tinder. lol.

Now, there will be quite a few people who know me very well who’ll be thinking ‘what is she on about, she’s had that app plenty of times before’. And yes, I downloaded it at points when I was a bored teenager, looking for some validation from strangers, as well as something which felt slightly risky to do. I know, I was a wild child: hold me back. Then when I started at university, the pulling scene was tragically dire because nobody here seems to be able to do anything without a drama ensuing, or, it turning out that that random person you got with the other night knows every person in your friendship group. (You might think that I’m overexaggerating, but I’m deadly serious: everyone’s connected in Durham in some way or another).

So yes, I’ve HAD Tinder on my phone before. But have I kept it for more than 3 days? No, I have not. And have I expended much energy texting anyone before? No, I have not. So this time, with the New Years’ Resolution of no drama in mind, I took to the internet and I committed to having Tinder on my phone for a week. Which doesn’t sound like very long, but it was quite substantial for me.

The reason I’ve always been so quick to delete Tinder is simply because I don’t like how soulless the whole thing is. I’m not on board with the fact that you’re judging people in a matter of milliseconds based on the photos they’ve chosen to represent them; it takes away all of the fun of being surprised by someone having good chat, or being really funny, or clever, or charming, or any other aspect of what actually makes a person a person. Also, the pressure of writing a bio to describe exactly what I’m like is far too much. I can’t be funny on command. Plus there’s the whole thing of, do I explain my disability straight away, or do I wait until we meet, do I want to have those conversations on Tinder with a stranger? blah blah blah

More than anything though, I’ve always had a level of anxiety around the idea that I’d spend time texting a stranger and then have to actually MEET UP with them. And I know that that sounds stupid, since I’m not shy in social situations, but maybe the fact that I’ve never been on a ‘first date’ before makes me freak out at the idea of what it would actually be like, so then the concept of seeing someone I’ve met from TINDER (!) goes against every instinct I have. Nevertheless, a few of my friends have had successes when it comes to the app, so I thought in this romantically hectic university environment, I’d give it a go.

I’m not going to go into crazy details about my experience but long story short, I texted someone for a few days, he was nice, I was feeling spontaneous and I went round to his to watch a film. (Before you start, we did actually watch the film, that wasn’t a euphemism.) As nice as the evening was however, it did solidify that the Tinder life is just not the one for me. It’s too orchestrated. I know that it depends on what you want from it, and I definitely wouldn’t want a relationship from Tinder, but even the prospect of just wanting sex out of it, I don’t know, I think I like the build-up too much.

As far as I’ve seen, the pandemic has made it so we’ve kind of forgotten how to flirt with each other. We’re so not used to being able to be in rooms with people we know, that we don’t always remember how much fun it can be to interact with total strangers. To me, flirting isn’t something you only do with a person you’re attracted to and I know that that approach has gotten me into trouble a bit sometimes because people have misinterpreted my intentions towards them. But speaking to someone in a flirtatious way can be subtle and nuanced, and merely a method for having a bit of a laugh: it really doesn’t have to be that deep.

So, there we go, the second week of January 2022 showed me that I like the dance of working someone out when I first meet them, and Tinder just sucks all of the fun out of human interactions for me. If it doesn’t do that for you then power to you – everyone’s different. But, I don’t think that that app will be making an appearance on my phone again any time soon and if you do spot me on there, then ask me if I’m okay please.

I don’t want to wait until I’m older

I don’t want to wait until I’m older

by elizabethmdouglas ♥ 0 Leave a Comment

For a few months now I’ve been reading a lot of literature on the topic of disability and sexuality. I’ve been doing this mostly because it’s what I’m writing my dissertation on, but it’s also doubled-up as an exercise in understanding how to be a better ‘advocate’ for disability.

The first thing I learnt, which didn’t surprise me whatsoever, was that the study of disability history is a relatively new branch of academia – though obviously disabled people have existed for as long as anyone else. And whilst there are a million comments I could make on the nuances of disability history, I don’t really fancy self-plagiarising, so I think I’ll save those details for the 8,000 words I’m required to write. I do, however, wish to take some time now to acknowledge just how uncomfortable physically disabled people have been made to feel by society when it comes to their bodies. I’ve read page after page of interviews with physically disabled people, where they describe how not only have they never been led to believe that they could be beautiful or attractive and physically disabled, but that many of them are actually disgusted by the sight of their physical appearance on some level.

Disgusted. I just want you to notice that that was one of the words used by them.

This embarrassment, and in some cases repulsion, at the sight of one’s physically disabled body isn’t something people should be having to feel just because they don’t look like what some eye in the sky defines as ‘normal’. But these individuals are so poked and prodded, and pushed into a corner by societal expectations that eventually they’re left feeling physically lesser in more ways than those written in their medical notes. And these feelings of irrelevance are present in more aspects of society than many able-bodied people notice. For instance, clothes shops are made so inaccessible that people in wheelchairs can’t reach half of the clothes, or, if they can reach them, most clothing isn’t designed to fit people who need to use medical equipment or have deformed body shapes. Thus, many physically disabled people can neither look at, nor consider wearing half of the clothes everyone else is browsing, and they’re pretty much told to just cope with that.

Then there’s the fact that the medical aids designed to make life easier for people are designed solely with purpose in mind; never aesthetics. For example, let’s take the case of my callipers. Callipers are a pretty straightforward medical appliance, used by thousands of disabled people. They’re two metal bars that are inserted into the soles of my shoes, and they help to keep my legs straight. That’s it. And my shoes are made specifically for me, with personalised insoles and little tweaks here and there, but overall they just look like Docs. So, if that’s how simple the provisions are, and Doc Martins/boots are insanely popular, then why can’t I have as many designs and patterns as are sold in the Doc Martins shops? Would it be that difficult to make them?

I’ve just given you two examples out of I can’t even tell you how many, but the running theme in this discussion is that hardly anyone is considering that physically disabled people might want to look nice too. They might want to experiment with how they present their bodies just as much as anyone else. Only, their medical history means that the ability, or option, to do that is taken away from them.

Undoubtedly, there are some out there who don’t relate to what I’ve said here at all. Nonetheless what I’ve seen from my research so far, is that it often takes physically disabled people a long time to get to a place where they can wholeheartedly say that they’re comfortable with how they look.

But I don’t want to wait until I’m older to be able to do that.

It’s no secret that I’m confident in my disability. Still, I don’t look at my full-length reflection. And it’s sad to admit it, but I do think that the image of me walking is gross. What’s sadder though, is that I only think these things because my legs aren’t like everyone else’s. Thus, it’s been through my dissertation research that I’ve realised how much shit I’ve internalised when it comes to my perception of my disability. Here I was, thinking I’ve always been pretty comfortable in my body, without realising that I was only ever thinking about myself from the knees-up. But these insecurities about how I look when I walk aren’t constantly on my mind – in fact, the world has so consistently shown me that my disability isn’t pretty, that I can only describe it as an ambivalent acceptance.

But fuck that. Fuck accommodating centuries of patriarchy and nonsensical beauty standards just because some of my nerves are in a knot. And fuck writing off a whole percentage of the population’s moral right to their own sexuality, simply because of their biology. I don’t see how any of it makes sense. So, I just posted a video of me walking on my blog Instagram (it’s _bettydouglas_ btw, just in case I haven’t bullied you into following it yet) as my way of showing that I’m trying to fully accept this Spina Bifida. I can’t promise I’m going to look at my reflection now every time I walk next to, or towards a glass window, but I’ll try not to look away so enthusiastically when I spot my reflection.

A day in the disabled life

A day in the disabled life

by elizabethmdouglas ♥ 0 Leave a Comment

The other week someone asked me what a normal day with my disability is like, and I laughed.

Like many, this person was looking for me to recount a complicated series of events that measure up to the stereotype of an arduous, pitiful day of living with Spina Bifida. Only, life isn’t like that, and my answer to this strangely-worded question will always be the same: it depends on the day. I will say however, that by having my first blister in 3 years a couple of weeks ago, and living more on my own than I ever have before, I’ve started to think about and recognise the number of things I do, and things I know how to do, which simply don’t go through the minds of many of my peers.

I look at my feet religiously every morning and every night: I check for tiny little differences from what it looked like the last time I looked, and I press on my scar tissue to feel if it’s weakening because god knows it can decide to weaken at any given time, for absolutely no reason. With my blister – which I thought had healed, but it hasn’t completely – I have to constantly apply this gel my doctor gave me which dehydrates the wound to constrict the blood vessels and hopefully heal the blister more quickly. Just a few days ago some old blood from when the blister had been active came out whilst I had my shoe on, and as always, I only noticed this once I took my shoe off and saw the blood on my sock. I was at my friend’s house at the time and asked her for some antiseptic, she said she didn’t have any, I made her laugh by saying ‘that’s privilege’, and then I asked her to boil some water and put some salt in it because I know that that’s the next best thing to sanitise a wound. Then amongst all of the practical things I do, at the minute I’m having to weigh up which social events I can go to, whilst also factoring in the amount of walking I’ll need to do for lectures, whilst also wanting to continue to have fun with my friends like I was before my foot decided to be a dick.

And regardless of whether I have a problem or not, there are always days when I put my shoes on and my legs feel weak: I’m tired, I trip more often, I’m self-conscious of the possibly exacerbated limp to my walk. If the pair of shoes I’m wearing are new, I can tell that all of the structure is in the right place because as I walk my feet try their very best to revert back to their naturally deformed position, but the hard leather pushes them to where they should be, making walking both easier and stiffer than before.

I know how to make a perfectly flat bandage for any tricky angle or curve on my feet, and how to spot it when an infection is tracking towards my ankle. I could tell you exactly the type of medication I need if I get an infection, and I could tell you a million tales of when I’ve had to take it. In recent years, I’ve learnt that Spina Bifida also means that I can occasionally experience bladder retention when I’ve had too much to drink, meaning that I temporarily lose the ability to empty my bladder on my own and I have to catheterise myself before the pain starts and I have to go to A&E. It’s not a nice thing to have to do, and it hurts the next day.

Knowing all of these things (and more) is second nature to me because I have to know them, and I’ve always been taught to acknowledge that it could be so much worse. But by just getting on with it, I’m not sure that I ever take the time to consider how tiring it can be to have all of this in my head and nobody to acknowledge that I’m having to think about it.

When I was a little girl, I didn’t know what was going on. I didn’t know or care that I walked funny or that my feet were different to everyone else’s. I started to clock it when I was having operations; when there were times that nurses came to the house every day to dress my foot, and I missed out on things my friends could do because I was in a wheelchair. Then I became a teenager, and I got angry about it, or I ignored it, and I didn’t look after my feet the way I could’ve. Now we’re here, I’m an adult, and I know how to do it better than anyone else. But the one thing – my biggest crutch – that I don’t have as much as I did when I was younger, is the ability to just look at my parents when I’m weary from it all and see that they know. So I miss that look sometimes.

I had an extremely happy childhood, a wonderful adolescence, and so far so good when it comes to adulthood. But every now and then I step away from the monotony of everything I know I have to do, to realise that Jesus Christ it’s a lot. It could be worse, and everyone has things they cope with in life, however, that doesn’t mean that I won’t have moments when I’m a little tired by it.

Thus, I’m afraid that I don’t have a neat or interesting ‘day in the life’ for you because that’s not how this disability thing works. Or how anyone’s life works for that matter. And let me clarify that I didn’t type this searching for pity, or for a little moan. In my head, I think that by writing this down and publishing it I’m trying to give myself that look of acknowledgement that I can only get from my parents because no matter how they try, my friends here can’t do it yet. They’ve simply not known me long enough. And away from all of the clumsy self-psychoanalysis, this blog is another attempt to show you as much of my disability as I can communicate through words.

So there you go, now you know that if you’ve ever got a nasty cut or blister that needs nursing then I’m your girl. I’ve got the personal first aid kit of your dreams mate.

I don’t wanna hear it anymore

I don’t wanna hear it anymore

by elizabethmdouglas ♥ 0 Leave a Comment

Sometimes when I’m at a house party, people come up to me and ask me about my blog, often interested in how I decide what to write about. The only way I can describe the process is that a topic will pop into my head, and I’ll feel a compulsion to type something about it: I guess it’s like a diary in that sense. Unlike a diary though, I know that these words will be read by others so I edit them and I rationalise them in an attempt to not sound like a prat. I can’t promise that I manage it every time, but we do our best. Although today, I’m not going to edit and I’m not going to rationalise: we’re just gunna go with it.

To make an extremely long, and tumultuous story short, in the past couple of weeks I’ve come to realise that I’ve never really been in a romantic situation with a lad where he’s tried as hard to get to know and understand me as much as I have him. I’ve consistently been the one who’s been actively interested in a bigger way than the physical sense; asking all of the questions, noticing the small things, and making an effort to work out what’s important to the person I’m interested in. And this realisation came to me when I was cleaning my room, sorting my shoes out, listening to music. I was feeling so relaxed and so honestly myself, and it made me think that there are so many parts of who I am that I’ve never shared with someone because I’ve been too busy trying to get to know them, and they’ve never asked.

That feeling was of course, kind of sad, but at the same time, it made me realise just how stressful ‘dating’ can be. How people have spent so much time and energy messing with my head, telling me yes then telling me no then telling me they would if they could but they can’t so they won’t; making it seem like I’m involved in the situation when really it’s just about them. I’m involved by name, but I’m never particularly relevant. Yawn.

So I went upstairs to my housemate the other day when I was feeling a little low, and I mentioned all of these feelings to her, and after listening to me she thought over all of the romantic relationships she’s had with boys and she completely empathised with me. Then without even bringing up how I’ve been feeling, multiple girls just this week have told me how they’re tired of being wanted physically; being told they’re hot by a drooling drunken boy at 2am, but never being given the time of day once the sun comes up.

Fortunately, I’m pretty emotionally robust so I can deal with the rejection. However, just because a person’s self-esteem is in decent condition, that doesn’t make it indestructible. And being told by someone that they’re really into you, or they really fancy you, is lovely for 2 seconds but it very quickly becomes hurtful if all it is is words. What I mean by that, is that the words become less believable if you don’t do anything about them. I’m flattered in the moment, but I’ve been in so many situations like this where boys have put my hopes up so far, then at best ignored me, that at this point I don’t trust words.

I don’t really understand why this is a thing, and I don’t know why I seem to attract it, but god almighty it’s a headache. Not least does messing with someone’s head like this fuck with their feelings, but it made me feel completely objectified at points. After the excitement of the moment had faded, I’d wake up and wonder if what’d actually happened there was a young lad only saying what he’d thought I wanted to hear because he wanted to sleep with me. Making that dramatic confession untrue, and all the emotional turmoil completely unnecessary.

All of this isn’t to say that I hate every lad I’ve had a situationship with; I’m still quite fond of a few of them, but I have to say my piece because I’m tired. Not to mention the fact that a healthy level of self-esteem doesn’t just happen; it’s incredibly fragile and takes a lot of work to maintain. So I refuse to allow the yeah-but-no-but treatment I’ve had from lads this year, to morph into self-criticism and thus take a toll on my self-esteem. Naturally, this is always easier said than done but once again, we do our best.

Thus, I want to finish with a request for all my readers (no matter your gender): please think before you speak. Decide whether what you’re about to tell a person is beneficial to them, or do you just want to say it to help yourself? Go into things with the correct intentions, and try not to fuck with someone’s head in the process. You might not always manage it, but it’s always worth a try. Because personally, I don’t need or want to hear it anymore, if you’re not going to do anything about it.

Is physical disability really that much of a turn-off?

Is physical disability really that much of a turn-off?

by elizabethmdouglas ♥ 0 Leave a Comment

I remember in my first year of university, I was asked by one of my friends whether I thought that my physical disability had ever meant that people found me less physically attractive. (He had perfectly sound intentions by the way, and knew that that type of questioning wouldn’t offend me, so we’re good.) My short answer was yes; not because of any insecurities, or because I was fishing for pity-filled compliments, but yes because I’d seen it happen right before my eyes. I’ve seen lads begin to chat me up, then at the mention of a disability, turn the other way, and I’ve consistently had more success on a night out when I wear trousers to cover my shoes, or when the place is too full and too dark for anyone to see.

As real as they seemed, these were still always just suspicions derived from body language and facial expressions. So I’d wonder. Could it really be true that the sight of some metal bars on a young woman’s shoes is enough to intimidate? Is physical disability that much of a turn-off?

This week I read an article where George Robinson (the actor who plays Isaac in Sex Education) spoke to the BBC about sex and disability: two words you rarely see mentioned in the same sentence. I won’t summarise the article here as I’d prefer you read it yourself, but one part which really hit a nerve for me was when the reporter wrote that in 2014, 44% of the British people asked said that they wouldn’t consider having sex with someone who was physically disabled. And I emphasise ‘consider’ here because that wording is particularly cutting.

I could go on and on unpacking this statistic, but what I’d like to first draw your attention to is the fact that the term ‘physically disabled’ describes a hugely diverse group of people, and yet it seems that society associates it exclusively with paraplegic wheelchair-users. That in itself is mad and highlights so many issues in society’s narrow understanding of disability, however, my main concern today is the suggestion that physical disability strips a person of their sexuality. If you’re disabled then you have no sex drive, you’re unable to have sex, or whatever type of sex you can have isn’t normal and is shrouded in stress and embarrassment, and you’re not sexy.

Frankly, I never thought I was sexy. And I attributed that to the layers of misogyny which group young girls and women into the boxes of cute, pretty, sporty, or sexy. (We can unpack those toxic elements of the patriarchy another day). But now I realise that it was my being disabled which contributed to the surprise and disbelief I felt if someone called me sexy. I’d just never known that I had access to that word because no one who looked like me had ever been described as it. At least, I’d never seen it.

Thus in my late-teens, when talking to boys and developing crushes on them, I’d always envisioned that my disability would be peripheral in our relationship and it’d be something that I’d prefer him to ignore as much as possible. I’d want support when I really needed it, but if I had ever gotten a boyfriend then I’d wanted him to treat me like a ‘normal’ girl. Depressingly, hindsight makes me realise that 17-year-old me was equating ‘normal’ with able-bodied. Then when I went to university I started speaking to a lad who never once asked about my disability, after months and months of talking. I found myself conflicted because it was sort of what younger me had always wanted, but older me didn’t see how we could ever start a relationship if such a big part of my life was going to be ignored: it didn’t seem practical.

So now I’ve decided that I want something truly radical: I don’t only want a romantic partner to be interested in and tolerate my physical disability, I want him to find it attractive. I want him to look at my surgical scars and find them as beautiful as he does any other part of me. I don’t want to have to reject my disability in order to feel sexy. But as any reader of my blog will know, I’m yet to experience much more than a casual relationship with a lad so I can’t end this on a Disney note where I say I’ve found everything I’ve ever wanted and here he is *ta-dah*. Nonetheless, there’s one specific experience I’ve already had where I got a glimpse of what it might be like.

One morning I woke up next to a young lad I’d slept with a few times before. I cared for him, and enjoyed his company, but I didn’t have any romantic feelings towards him. I was used to him being affectionate by moving my hair out of my face as I slept, or kissing my shoulder, but on this particular occasion he took it further, as I woke up to feel him carefully tracing the curves, indentations, and lines of the lump on my lower back. That lump is the root of my disability, and it’s been something I’ve tried my hardest to look at as little as possible, let alone touch. So as I woke up, I realised what he was doing, and I lay there as he gave the most emotionally and physically vulnerable part of my body more love and attention than even I had ever given it. It was nice: I felt safe.

That young lad, even though he probably had no idea what he was doing, emphasised just how important it is that when I find someone I want to be with, they have to understand and love my disability as much as they love every other part of me. It’s not something to be ignored, and it’s not something which strips me of my sexuality: people and prejudices do that. But I don’t believe that the 44% statistic is rooted in malice; rather, it’s rooted in ignorance and a misunderstanding of disability. We all want love and to feel wanted, but I don’t see why my physical condition should decide whether I qualify for that or not.

I’m physically disabled, I have a sex drive, I enjoy sex, and just like everyone else, the details of how I like to have sex are only your business if I decide that you can make it that far.