Oh my god, I’m so embarrassed

Oh my god, I’m so embarrassed

I, like everyone on the planet, struggle with real, uncontrolled vulnerability. As one of my best friends made clear to me once, I express the emotionally vulnerable parts of myself in a very measured way; what I say isn’t untrue, or dishonest, it’s just I lead the expression of vulnerability and would find it far more difficult to relax into a situation and let the vulnerability happen.

For a long time, when I’ve been romantically interested in lads, I’ve gone in all guns blazing because another thing I struggle to do is not say what’s on my mind, and when that hasn’t gone so well, I’ve had my sad girl hours, telling myself it was rejection. But then friends and lads I’ve dated, have also told me that I’m difficult to read, which has seemed like a total contradiction. What can be difficult to read about me saying exactly what I mean?

Have I actually said what I wanted to, though? Or did I sugarcoat it in vagueness, distraction, or flirtation to avoid misunderstanding, judgment, or rejection?

A couple of years ago, one of my close friends jokingly said that she could never live with me because I’m too needy. She laughed, I thought it rude and unfair but put it down to a poorly-judged joke. Then she said it again during another social situation, and eventually it just became a joke she sometimes fell back on. That one stuck with me and went straight into the part of my brain where the various other piercing comments I’ve had from other people live. Like when lads I’ve been dating have called me ‘too much’, or the more back-handed ‘you’re actually quite sexy’ said with an air of surprise just to make my eyes narrow even more.

All of these comments link up to illustrate why I’m cautious about being vulnerable: I don’t want to be judged as less or weak. I’m a young woman, and I know the way those perceived weaknesses could negatively impact how people see and treat me, because patriarchy doesn’t often allow for women to have imperfections and still be seen as valid. Further to that though, I have a physical disability, and whenever I’ve been in a moment with my feet which has forced me to be totally physically dependent on others, I’ve felt pointless. I’ve continued on as normal to try to distract everyone, but in the back of my head, I’ve just got this intense embarrassment that even though internally I’m the same as I was yesterday, now I can’t even open a door on my own.

Nobody likes feeling weak. And even though there’s absolutely nothing wrong with asking for help when you need it, and even though I know I don’t become pointless or change when my disability pipes up, that’s how it feels sometimes. It feels humiliating, and it leads me to always think silly things like if a man I fancied saw me on crutches or talking about my disability on my social media pages, then he wouldn’t look twice. There’s internalised ableism in these thought processes – no doubt about that – but also there are real, tangible facts that disability is viewed by the world as being so awful for a person that it entirely consumes them and their life. So, you expend so much time and energy trying to prove to people that that isn’t all you are, that it makes the times when your day is kind of ruled by your disability feel even worse because how can you distract everyone from paying attention to it when you need them to wait for you so you can hop up the stairs on your crutches? (Because no, there isn’t a working lift).

I love sharing my life with other people and telling them the reality of what it’s like to be a young, physically disabled woman. I know I’m so much more than my condition, and I know that people think of me as so much more than that, so I needn’t worry about how I’m perceived. Nonetheless, as I sit on this sofa with a bandage on my foot, and bruises on my right side from using crutches and falling when trying to protect the bandage, I’d be lying if I said that I feel my best. I don’t feel bad, because I’m inside and therefore not stressed by the embarrassment of others seeing me this way, but I don’t like it. I don’t like that one tiny cut on the side of my foot can leave me so vulnerable. I’d rather it hurt for a couple of days but heal like everyone else.

Maybe this last paragraph isn’t necessary, but I need to say that this isn’t me wishing my body away, or disowning my Spina Bifida, it’s simply an attempt to explain that I don’t wake up every day and feel okay with having it. I know it’ll be fine, and that it’s nothing to feel embarrassed about, but logic and emotions aren’t always compatible. And so, I’m excited for when I can walk to the kitchen using both of my legs again. There’s no infection, so hopefully not long now. 🙂

Fake friends sounds boring

Fake friends sounds boring

I was scrolling on TikTok, and I saw a video of a woman doing some crazy acrobatic yoga moves whilst listing things she wished she’d known in her 20s. In all honesty, I was concentrating more on the poses she was able to strike – passively imagining myself giving them a go and ending up in A&E for an afternoon – but when I did listen to what she was saying, I noticed that the running theme was she wished she hadn’t wasted so much time with people who didn’t really care about her, and who she never actually trusted.

And I’ve spoken about this quite a lot recently because the first four years of my 20s have included some failed friendships, as well as management of insecurities that came out of them. I’ve never struggled making friends – in fact, when I was little my (then) teenage brothers used to complain to our parents about me having loads of friends because occasionally I’d come home with a head full of knits, which I’d very generously then pass onto their 15-year-old heads. Sorry for that one lads; wasn’t on purpose.

Anyways, throughout school, I always had big groups of friends. But regardless of the group, eventually, one of the girls would end up waking up one morning and deciding that she hated me, make snide comments, criticise me for things I couldn’t change, and ultimately turn the other way. Friendship over. My efforts to avoid it or work it out never seemed to achieve much either. Every time it happened it stung, but as I got older this pattern started to become duller because often I was sure that I’d not done anything wrong to make her feel that way because if I had, I would’ve been the first to start crying and apologise because the guilt would’ve made me feel physically sick. Plus, in these moments when I’d asked the young girl in question why there was now a problem, she’d get all vague and heavily imply (or say) that she just didn’t like me. You can’t do much with that. Except get paranoid about when within the years-long friendship that became true.

Obviously, I’m not a perfect person, I’ve not always been the best friend to people but when I’ve made mistakes before I’ve been able to genuinely apologise, then move on from whatever it was I did. Plus, given that these times when I did make mistakes it was with my friends, who I love and care about, I never meant to upset them, so of course I said sorry – and meant it. But when I think of all of the friendships I’ve had since I was about 11, it becomes clear that some of those friends ended up making me feel pretty insecure. With certain people, I privileged avoiding conflict and ensuring that everyone liked me so much, that I ignored the snide comments, and told myself I was okay with always being the one to text, or call, or drive to wherever the other person wanted to be.

When your friends take the mick out of you, a lot of the time it’s harmless, genuine fun. They make a dig at you, you make a dig at them, everyone laughs, nobody is offended, everything is fine. However, you also have to be careful to notice when something actually stings you in a way that wasn’t intended by the person who threw the joke. Or maybe they did kind of mean for it to hurt. And maybe you’ve heard that joke that suggests they don’t actually like you a fair few times now, so it doesn’t feel very ‘jokey’ anymore.

No matter how long you’ve been friends with someone, or where or how that friendship started, you’re not entitled to their time, nor are you to theirs. Like everything, friendships require you to both put effort into them and if that balance becomes so off that the friendship ultimately breaks down, it can really hurt. Way more than when you stopped texting that lad you liked for a month. To try to avoid this pain now, I’ve noticed myself approaching friendships with people differently than before.

If someone is terrible with their phone then that’s (sort of) fine, but I can’t rely on them the way I might want to, so I place some distance there. Whereas, if they make slightly mean comments about me or what I do, or if they only ever message me when they want something from me, then that’s not friendship to me. So I don’t need it. But ultimately, it boils down to this: if you wouldn’t take it from someone you’re dating, then why are you taking it from someone you call a friend? Those I keep close to me now only make me feel good, and I wholeheartedly trust that every single one of them actually likes me. It sounds so silly, but I don’t think it’s something I’ve ever felt able to say with such certainty.

*Cue one of them thinking they’re funny and texting me ‘haha I actually hate you xo’ after reading this.

Change that channel

Change that channel

If you read last week’s blog, then you’ll already know that at the minute I’m on a getting-to-know-myself moment. (I was going to say journey, but I was a little bit sick in my mouth as I started to type it, so we’ll stick with the slightly less cringey, ‘moment’). Within this, I’ve decided to take a break from the world of romance and dating, but I’ve approached this break differently than I have before.

Like many of us who experience tedious, stressful, intermittently exciting situationships rather than healthy relationships, I’ve had times when I’ve told myself and everyone around me that I’m ‘so done with it’, I’m ‘not interested’, and I’m ‘just not going there’. And then I’ve scrolled on Hinge. Or had those wise words of ‘it’ll come when you’re not looking for it’ ringing in my ears, thinking I’ve now told the world that I’m not looking for it, so does that mean that it’s right around the corner? Therefore, I’ve not been taking a break at all, I’ve just done the same thing in a different font.

However, this time I decided to take a measure that quite a few people viewed as a little bit extra when I told them about it: I chose to stop watching any TV programmes that are based on falling in love and relationships.

Normally, I’m the type to watch the Netflix reality dating shows, like Love is Blind, Perfect Match; a little bit of Love Island here and there, then some Married at First Sight in the mornings whilst putting my make-up on. And even though many of these shows highlight how horrid relationships can be – with lasses crying their eyelashes off and lads losing the will to live – they also pump out the idea that romantic love is what everyone is always looking for and that without it, we’re lacking. Whilst I do believe that pretty much everyone wants a healthy, loving romantic relationship, when you’ve struggled to find one, having these programmes constantly remind you that you don’t have one can really impact your self-esteem. So I turned them off.

‘How’s that been going?’, I hear you ask. Well, do you know what? The effects have actually been really noticeable. Most obviously, I just don’t think about my not being in a relationship anywhere near as much as I did a few months ago. I’d never been kept up at night about it before, but I’ve definitely had fewer moments of sinking into sadness or loneliness on those evenings when I’ve been tired and my mind has begun to wander toward the sad girl playlist. In fact, I’ve begun to passively assess what kinds of things I’d been privileging over the past couple of years when it came to dating, and how it’s been a little bit off.

For example, I told my friend how as I was driving into work, a thought crossed my mind where I realised that I hadn’t dated or texted a lad who has made me properly laugh since I was a teenager. Yes, I’d laughed with them, or they’d laughed at something I’d said once and fed off of that, but nobody has properly made me giggle in a really long time. And I’ve always considered humour as a really important thing for me – or at least I thought I had. Also, I haven’t had really interesting conversations with these men about books, or art, or music, or anything that is actually important to me. So honestly, I’m wondering what we really spoke about.

I’m not saying any of this to suggest that all the lads I’ve been interested in have been boring – they absolutely haven’t, because I’m not one to waste my time with somebody who has nothing to say – it’s just that with all the popular culture in the world telling me that I need to be in a relationship ASAP, so I can be validated, I’ve been forgetting what actually makes me excited about people. Too often we privilege the story, or the text notification, or the sex over what we really love to do or talk about – sex is obviously still included in the ‘things we love to do with a romantic partner’, don’t get me wrong, but you know what I mean: it’s not as fun if you’re not emotionally invested in whoever you’re doing it with.

Maybe you don’t resonate with the things I’ve said here, but if you are the person who’s bored of feeling lonely on a Friday evening, or forever the third wheel to all their friends’ relationships, then try turning those shows off and see what it does for your state of mind. I’m not saying I’ll never watch a rom-com or a reality dating show again, it’s just that allowing yourself a break from the constant reminder that you’re single might show you that there are lots of far more interesting things about yourself than your relationship status.

You’ve heard of glass slippers…

You’ve heard of glass slippers…

If I tell you that I have a blister on my foot, then obviously you’re going to draw on your own experiences of the same thing in order to visualise or imagine it. But if then in the same breath, I tell you that a blister on my foot is enough to land me on crutches – or in a wheelchair back when I was at school – because the poor circulation and diminished sensation in my feet mean that it’s going to take ages to heal and is therefore vulnerable to infection, I’ve sort of showered with big words and abstract concepts, so you can’t really understand what I mean because you’ve got no direct experience of the same thing.

But so what? Why would you need to fully engage with this aspect of my disability anyway?

Well, I mean, you don’t really need to if you’re not very close to me. But then again, I’ve been left in a wheelchair or with infections because of people- including (though not limited to) friends, nurses, and security guards – hearing the word ‘blister’ and totally dismissing it as a big deal because it wouldn’t be if it was on their foot. Therefore, it’d probably help a lot of disabled people if everyone was encouraged to gain a little perspective on the delicacy and temperamentality of disability.

I effectively have a wound on my foot which I do my best every day to not fully reopen. And I use the word ‘fully’ here because this wound is never totally healed. It’s an opening in scar tissue from having three operations on the same foot to correct its positioning and improve the way I walk – I had three of the same type of operation (tendon transfers) because the first ended with a very dramatic infection, the second didn’t work, and the third kind of worked but by that point, I had no tendon left to transfer…These operations all happened in the years up until about 7. That scar tissue healed and fully closed when I was 18. Then it opened right back up again about six months later and is still open now.

Another caveat for you though, when I say that it’s ‘open’, I don’t mean some gory, bloody, oh my god that makes me feel a bit sick situation. Basically, on the side/bottom of my foot, I have these dots where the scar isn’t shut, which bleed, but are covered by a layer of hard skin – I guess, kind of like if you put a flat plate of glass on some paint. If I’m lucky, the dots are the size of a pinhead and the blood is black (therefore, not bleeding), but the dots can get bigger if pressure has been applied (i.e. by walking too much), and the blood moves through the gaps, and occasionally the blood is pushed to then form a blister. If it’s really bad, then there’s no blister at all; I just bleed from the center of the scar tissue. And it’s never fully healed because I walk on it: since that’s kind of how you use feet.

So I guess, technically, my foot is always bleeding – except for that six months when I was 18 – but it’s only a problem when that blood breaks through the glass layer of skin and reaches my sock. Under the glass, I can see it, but it’s not open and therefore vulnerable to infection; out of the glass…well, bacteria can get to it and cause some issues.

However, I can’t feel my feet; I take care of them purely by sight. I can see when a blister is about to develop, or if an infection is brewing, but the second I’m not looking, I don’t know what’s going on. This means that I look all the time, though I’ll be honest and say that sometimes I just won’t look because sometimes I don’t want to see the spiderweb of blood on the side of my foot. Instead, I’ll feel it with my hand for blisters, and if there aren’t any, I’ll spare myself the somewhat threatening image for a day.

This small part of my body is ridiculously delicate and yet it holds so much power over my life. I go to regular appointments to keep the glass layer of skin over the scar strong enough to not break, but thin enough to not cause blisters itself, and still, the weather, the condition of my footwear, and the amount of walking I do can create a crack or cause it to build up too much so that the next time I take off my shoes I’m greeted by a circle of blood on my sock. Always love that.

I could go on for hours speaking about the experiences I’ve had with this part of my body; the times when it’s caused me intense grief, frightened me, or deeply irritated me, but that’s for other blogs. What I want you to take away from these paragraphs, is (hopefully) the knowledge of why I can spontaneously end up on crutches when yesterday you saw me walking; why I can tell you that I’ve got a blood blister on my foot but walk and seem exactly the same as last week when I had ‘no problem at all’. But most of all, I want you to know that even when I don’t have a blister or an infection, that’s because I look at my foot religiously to ensure that those things don’t happen.

Life with a disability isn’t one set of simple, fixed symptoms that manifest in exactly the same way daily. I’m not stressed or upset about my foot every day because I’m used to it, and because I do a lot to make sure that it doesn’t need to cause me stress or upset every day. But if you take away or change one part of this foundation my parents and I have built my life on – like my shoes, my chiropody, or my car – then I wouldn’t be able to be everything that I am or do everything that I do.

So like I said, it’s delicate.

Maybe I don’t mind these walls

Maybe I don’t mind these walls

I’ve always considered myself as one of those people who, as the saying goes, wears their heart on their sleeve. But after hearing people give me their opinions on how I present myself – be they colleagues, friends, or potential romantic partners – it’d appear that I’m full of sh*t. This entire time I’ve been sitting here thinking I’m constantly giving away too much of myself, only to be told by one of my oldest and closest friends that I’ve always struggled to be vulnerable. So what am I understanding vulnerability to mean then? Because clearly there’s a disconnect going on somewhere.

The aspect of my life that people have always expected to be incredibly sensitive for me, is my physical disability. Only, I don’t think that I’ve ever struggled to tell whoever’s asked whatever it was they wanted to know; yes, there have been times when I’ve tired of having to say the same thing multiple times in a day, but the ‘I’ve got Spina Bifida, I was born with it, it’s a disability of the spine’ speech doesn’t really tap into my emotions. The aspects of it that are difficult to talk about are more to do with my desire to feel that it, and therefore I, am understood by someone other than my parents. And the anxiety that this might not ever happen.

On the other hand, when I’ve sat with myself and thought about the most vulnerable parts of me, what jumps out is the devotion I give to the people in my life who are most important to me. I might not be the one who sits in the cinema crying at the bit you should definitely cry at, but I am the one to feel physically sick if I think that I’ve accidentally upset someone I love. It’s silly really, but I go into a blind panic; my stomach goes into my throat, my hands will start to shake, and this will all happen regardless of whether I believe that what I did was actually wrong.

Then there’s the other side to the vulnerability of a person which isn’t necessarily related to negative feelings. With new social circles, I do hold back the part of myself that’s gentle and silly and playful because ever since I went to university, I’ve felt a little apprehensive about acting the way I always would around my school friends or my brothers because I don’t want my actions to be misinterpreted or judged.

Honestly, I think I hold back these parts of my personality when I’m first getting to know people because I’m just trying to read the room I’m in before I do anything to expose myself. When I was younger I’d go into social situations without any barriers up, but when you grow up you begin to learn that by doing that, sometimes it leaves room for hurt. Here, I’m not talking about something as drastic as bullying or abuse, I mean you might do something as simple as make the wrong joke around the wrong people because you assumed that they’d have the same sense of humour as everyone you grew up around, then find yourself branded as overly sarcastic or negative, when you were only trying to make everyone laugh. Or you might give your time, energy, and advice to someone who then gives you nothing in return, leaving you feeling deflated and cast aside.

Therefore, I don’t think it’s natural, or particularly helpful to show these possibly more vulnerable parts of your personality to others so soon after meeting, because you haven’t given yourself time to work anyone out yet. However, I do accept that by struggling to fully let go – especially around potential romantic partners – I sometimes show people what I think they want me to be in a given moment, rather than what I actually am. But then, who doesn’t? Especially at this age.

In all the conversations I have about my blog, my disability, and my life, the main thing I try to get across is that I know I don’t do everything perfectly – including accepting myself. However, as much as I’m a total perfectionist, I know that I’m never going to be without faults when it comes to self-love, so all I’m actively trying to do is my best. Therefore, unfortunately, I won’t always be comfortable in my own skin, accepting and loving of my disability, or as silly as I am with my brothers. But! These multiple layers of vulnerability are what makes people so interesting, and you’ve just got to be invested enough in a person to wait for the different parts to show.

Because, as a great philosopher once said: ‘Ogres are a lot like onions’.

Well now I feel guilty

Well now I feel guilty

The other week I posted a video on TikTok which has since received over a million views, tens of thousands of likes, and hundreds of comments – not all of them kind. In the video, I described a very wholesome encounter I’d had with a train conductor where when I’d asked him for help with finding a seat (because a spontaneous reduction of carriages on the train had made all seat reservations disappear), he’d not only sorted me out, but he did it in a way which included asking if I was comfortable with every action he took. For example, before he announced to everyone that I was disabled so please could somebody give me their seat, he asked if I was okay with him doing that first. Every part of me screamed ‘no no no no no, I hate you telling these strangers that I’m disabled’, but I needed to sit down, so I bit the inside of my cheek and I said ‘sure, that’s fine, thank you’.

A couple of the comments on this video were questioning how it makes sense for me to say that I hate bringing my disability up to strangers when I talk about it so openly on my social media and within this blog. At first glance, it might look like they’re giving me a tasty bit of hate on a random Tuesday afternoon – and that may well have been the intention – however, I do think they pose a fair question.

My relationship with my disability is complicated: it has always been complicated, and it will probably continue to be that way. I’ve told you before about how I struggle with the notion of being proud of my disability, but also how I’ve no problem with answering a stranger’s questions as long as they’ve said it in a way that doesn’t include the phrase ‘what’s wrong with you?’. I know what I am and I know that that includes Spina Bifida, and yet, I will rarely (if ever) ask a person to stand up on a bus or a train to let me sit down. I’d rather sit on the floor, or just ignore the soreness spreading in my knees as I stand. And I’ll rarely ever use the disabled toilet because I don’t see myself as requiring it. Even though sometimes that queue in a nightclub has me standing for far longer than I should.

This being said, I am learning to change my behaviour by trying to accept that there’s nothing wrong with me asking for help if I need it. Even writing that sentence, I know that people will jump straight to outrage that I even consider it a big deal at all, but I can’t explain to you how much I’ve been conditioned by the world as a young disabled woman to shut up and get on with things: to not complain, to not ask for help on the off chance that that request will leave me being dependent on others.

I’ve seen eyes roll when I’ve gently moved to the subject of changing a plan to help my feet; I’ve seen people close to me at the time try to find any excuse to do things the way they normally would had I not been there, and those moments have hurt. A trope associated with the life of a disabled person is that their medical issues cause those around them to change everything to cater to their needs; everyone close becomes a carer and the person with the disability, a burden. It’s an untrue, unfair, and immensely damaging idea that I have vehemently fought against as long as I can remember, but this has led me to feel tangible guilt for asking people to help me out on occasion.

So I can write blogs like this one and make silly videos where I talk about my Spina Bifida because your engagement with them is entirely up to you. But if I have to look someone in the eye – and they’re not my family or my closest friends – and ask them to walk slower, tell me the walking distances from this place to the next, or to please give me their seat, I feel the tears start to come and the embarrassment fills me. I know I need it to take care of myself, but I don’t want to ask you to do anything you wouldn’t normally do. It doesn’t feel fair. I don’t want it to seem like I can’t take care of myself, I don’t want you to think less of me, and I don’t want to make you feel guilted into doing something you don’t want to do. However, as another commenter said (beautifully, I’d like to add): ‘that’s not charity, that’s society’.

Away from my emotional reactions, I know that my guilt isn’t warranted, given that I don’t tend to be asking for much in these situations. So, I can’t promise you that I’ll never feel the guilt – I think part of me is just built that way – but I do try to not let it stop me from asking for help quite so often.

They ain’t all bad

They ain’t all bad

I’ve written before about how people stare at my shoes and how the image of them can sometimes complicate my relationships with others, and though everything I’ve said on this topic so far is still valid and based on true events, I do acknowledge that sometimes, in the moment, individuals are reacting to how I’ve presented my disability rather than acting on deep-seated social preconceptions. But that was a lot of words in one sentence, so I’ll try to explain myself more clearly. Using more words…in separate sentences this time though. 🙂

Growing up, I don’t remember ever feeling hugely different from my peers. Yes, I was in a wheelchair for stretches of time because of my operations, blisters, and occasional infections, so I knew that there was a physical difference between me and the other 6-year-olds, but I don’t think that I ever had a complex about it. There were moments when I was sad because all the other girls had the Polly Pockets in their shoes, or those glittery gel heels you could get from Claire’s, and I was stuck with these leather boots, but then I was also the only kid who could wear coloured shoes to school, so you know, swings and roundabouts.

Plus, I was never bullied for my disability, so I didn’t grow up knowing what it was like for my body to be publicly ridiculed by my peers – something which is unfortunately not a given for disabled kids. So this, along with my parents’ insistence that I always felt equal to my older brothers (and thus, them all being absolute feminist icons) meant that I grew up knowing I was different, but that that wasn’t a big deal. However, then you become a teenager and later an adult, and the world isn’t quite so consistently kind…

I’ve learnt a lot about my disability in the last couple of years alone, but possibly the most important lesson has been that if I step into a social situation like I did when I was 6, thinking that my Spina Bifida is (at best) only slightly relevant to the moment, then people are unlikely to make it a big deal. My 6-year-old self wasn’t bothered about the metal bars on her boots because that’s just what she had to wear, and why would anyone want to talk about shoes now anyway? Let’s go climb that tree! (Counterproductive for the shoes and Spina Bifida, but anyways…).

I went to Prague with one of my best friends last weekend and whilst I was there I tried to channel this 6-year-old point of view. I stopped myself from giving in to the feeling of embarrassment that comes with asking strangers to adjust to my disability, and I just asked how far the club was from the bar. It might sound trivial to you, but even something as simple as asking people to give me an exact walking distance is stressful to bring up when you don’t know what response you’re going to get. I didn’t stop there though. Oh no, she took it to another level, and she wore a short dress which put the callipers on show to the club – something I was never phased about doing before university made me insecure.

I’d be lying if I said that these were easy things to do because they weren’t and frankly, they were only really achievable because I had one of my girls next to me to tell me to stop being silly and wear the damn dress. But once I started approaching the social situations like yes this is just how it is, the people around me took it in their stride as much as when I suggested we do another shot of tequila. Just like when I was 6 in my Cinderella dress walking around Asda, what I had on my feet wasn’t a big deal. Or at least, not to me or to anyone who mattered in that moment.

It’s about balance, though. I can’t be like I was when I was 6 and not care about my Spina Bifida at all because I don’t have two parents and three brothers (and the rest of my familial army) ready to pick me up when I land myself in a wheelchair from climbing trees or hiking up hills. They’re still there, but not quite as close. Plus, society is pretty rubbish in its treatment and perception of disability, and my brain is so much more switched on to that than when I was a little girl. But there is something to be said for not assuming that everyone is going to be lame about it: I went on nights out with random people in Prague, we all got drunk together, we had a great time, and if I asked to sit down for a sec to rest my legs, nobody batted an eyelid. In fact, the lads with the egos were more than happy to prove that they could piggyback me down the street. No medical records explanation was necessary.

Trust me, I know how tedious I can be

Trust me, I know how tedious I can be

The other week I was talking to my housemates in our kitchen about some silly romantic situation I’d gotten myself into, asking them for advice, and then in a lull in the conversation, I said ‘if you’re ever listening to me tell my tales, and you start thinking that I’m tedious, just know that I’m fully aware that I am’.

We laughed.

For all my confidence in myself and security in many aspects of my personality, I know that I can really over-egg a point. I can talk for England once you’ve got me going and even though I try my very utmost to ensure that everything I say is of interest to the listener, I acknowledge that sometimes my energy levels can be too much even for some of the people closest to me. I try to monitor it and often I think that I give myself a much harder time about it than necessary, because I know that a lot of those close to me would describe me as a good listener as well as a good talker. But one thing I’ll always appreciate about my closest friends is that they know that sometimes I just need to go off on a monologue because if I don’t say my thoughts out loud, then they’ll spiral in my head and it’ll end in tears. Ugly tears.

But I don’t ever want to feel like a burden to other people – physically or emotionally – so in those moments when I do just feel like emotionally puking, I need to know that the person I speak to won’t judge me for it.

The type of ‘tedious’ monologues I’m talking about here is when you need to workshop your stresses about work, your PMS-induced intrusive thoughts, your anxiety about thinking you’re starting to like someone and not knowing how to play it, or when you just want to sit and reminisce about that time when you were 16 and your science lesson was hilarious. Basically, the times when you’re bored of sitting in your own mind, hearing your thoughts whizz around, and you need a human connection without conditions. However, trusting someone with this very personal and vulnerable part of yourself takes a lot because you can never really tell if they’re going to think less of you for showing them it.

For example, most of the people in my life who I’m closest to now are, and have always been, very different from me; bar maybe three, they’re all introverts who’d much prefer sitting on their own reading a book than having to engage in conversation with anyone. So I know that my (occasionally) highly strung expression of emotion can be exhausting for them and there have been times when I’ve felt guilty for that part of myself. But I do believe that supposedly ‘negative’ aspects of someone’s personality can have positive implications and my tendency to sometimes get myself overly worked up about things only happens because I care so deeply. Therefore, my most trusted friends and family members have never made me feel like I can’t open up to them when I need to – even though they miiiight have sometimes preferred the conversation to last 20 minutes less.

Then again, perhaps that last bit of the sentence was unnecessary self-deprecation. Knowing my lot, if they read this then I’m about to get some messages in capslock telling me to never think like that, because if I’ve gotta talk then they’re there to listen. I’d do the same for them, only everyone’s preferred type of support isn’t the same, so whilst my therapy is nattering, I know that some of my closest friends might just need me to sit next to them and be silly whilst we watch a movie. Regardless of the actions though, it’s about showing up for people in the way that they need and making it very clear that this is a no ! judgement ! zone ! because nobody should feel ashamed of venting when they need to vent.

I just don’t feel good enough

I just don’t feel good enough

One of the first things that they tell you when you say you want to be a radio presenter is that when the microphone light turns red, you just need to relax and be entirely yourself. Just be yourself! Except, after three years at university, I wasn’t exactly sure how to do that anymore.

I know that the trope for going to university is that you ‘find’ yourself, come out of your shell, and settle into the person that you’re going to be for most of your 20s. But whenever people have asked me how I found my degree, I tend to come back to them with a conflicted answer: on one hand, I insist that I had some really good times with some fabulous people because that’s true and I hate being negative, but frankly, overall my time at university left me with a tendency to retreat into my insecurities.

I want to say that it happened all of a sudden, but I didn’t wake up one morning and decide that I was going to wear outfits to cover my callipers, start to speak less in social situations, or suddenly feel the need for constant validation from my friends; it was a much more gradual process of feeling like I wasn’t enough for the people and situations I found myself surrounded by.

In some cases, it was specific things that individuals did which made me feel this way – both intentionally and unintentionally – but it was more the general vibe that didn’t suit me. For example, I went to a very normal state school in Bradford, but an aspect of that school that I’d never considered as being integral to how I thought about myself, was that it shared its premises and resources with a special needs school. So every day my fellow students and I walked past, spoke to, and sometimes shared classrooms with severely disabled children and therefore, became accustomed to seeing disability. Consequently, I might’ve had my shoes stared at every day, but subconsciously I didn’t feel unusual because I was never the only disabled kid around. I never thought about the importance of this at the time, but then when I went to a university where I struggled to access disabled parking spaces outside of the colleges or faculties, and where I only remember ever seeing two other visibly disabled students, the impact of that mixed secondary school environment on disabled and able-bodied people alike became startling.

Another area where I didn’t feel like I was enough was in my romantic relationship attempts and sometimes my friendships. To be honest, the theme of my romantic relationships has always been that either I’m not interested when they are or they’re not when I am, they’re in a relationship with someone else already and are just putting loads of tedium or confusion on me, or doing the classically non-committal ‘I like you, but let’s just sleep together’ thing – or we met on holiday and thus continuing anything is pointless. I have been known to shoot myself in the foot by prolonging pointless situations because of boredom or stubbornness as well. So a great combo all around then! But the not thinking I was enough for lads was definitely at its height at university; I knew I didn’t feel good about it, but I hadn’t realised the extent of the toll on my self-esteem until I went to a radio placement 15 minutes up the road in Newcastle and I was surprised to experience someone openly and unapologetically flirting with me. I remember walking away from that situation thinking ‘wow, I’m not actually unattractive then’.

But of all the types of insecurity I’ve felt in the last few years, it was the insecurity in friendships that cut me the deepest.

Honestly, it’s taken me months to come to terms with how beaten down I felt at university and how that had made me into someone who rarely ever felt secure in their relationships with anyone. I’ve always been a person who cares about others very deeply and intensely, I’m reliable and I try my best to be everything those close to me need. But no matter how hard you try, you can’t be everything all at once and it can be difficult to deal with the times when you fall short of that standard you’ve set for yourself. So there were many times over the last few years when I didn’t know what I was doing wrong or why I wasn’t enough for my friends, and this just pushed me further into myself.

Unfortunately, feeling like you’re not good enough is something all of us will experience at more than one point in our lives, no matter how hard we hit the self-care routines, and so the best treatment appears to be recognising when the nasty voice in your head is becoming way louder than it ever was before and doing things to shut it up again. Don’t get me wrong, I’m no guru when it comes to this kind of thing, but I think that I knew that my radgy internal voice had become too loud when I went travelling with one of my best friends and thanked her for being so considerate about my feet. She looked at me, surprised and offended that those words had even come out of my mouth, but it was a clear example of how I’d begun to feel like I had to apologise for everything that I am to try and appease my environment. Something you should never feel the need to do.

Since then, I graduated, so obviously I removed myself from the situation physically but it’s been more about rewiring my brain to trust my instincts, stop overthinking everything going on around me, and actively practise confidence again. And now, with the very normal occasional few blips of insecurity, I’m glad to say that I feel more myself than I have for years. I still have wonderful friends from university, and I wouldn’t want you to think that I never had any great times whilst I was there because that just wouldn’t be true, but I didn’t lose any sleep about my degree ending, put it that way.

You might think that that’s a shame and I suppose that it is, but sometimes life just doesn’t go the way you expect it to. That doesn’t make the change a failure or lack, it just is what it is. There’s plenty of fun still to be had in environments that won’t make me feel quite so self-conscious 80% of the time. And that sounds like a much stronger vibe to me.

You’re not really though, are you?

You’re not really though, are you?

A few days ago I had an interaction with a man that has really stuck with me. We’d just met, in the kind of setting where you hadn’t chosen each other’s company, but you were probably going to be sitting together for a while so it’d be best if you struck up some type of conversation. The first part of our chat was like all others: asking for names, why you’re here, where are you from, and various other painfully mundane topics for small talk. Eventually, we reached the part of the conversation where he wanted to know why I had pieces of metal coming up from my shoes and like always, I summarised my disability as clearly and simply as is possible in a casual getting-to-know-you chat.

This part of our interaction wasn’t a problem for me; I’m not exactly shy on the subject. It was the way he went on to dismiss me by saying ‘you’re not disabled though, so just ignore anyone who judges you’ after I’d said that there are some instances when I wear clothes to cover my shoes because I don’t want the preconceptions. That was when I got a little wound up. And on the surface, it might sound to you like this man was just being nice, by saying that anybody who treats me differently because they see my shoes is just a horrible person who I shouldn’t take any notice of. Except, this whole living with a disability thing isn’t that simple.

First of all, I don’t need a man I just met talking over me and telling me what I am. But aside from that unfortunate aspect of this particular conversation, let me now explain why people saying these things to me is problematic, regardless of how well it’s meant.

Let’s take the beginning of the sentence: ‘you’re not disabled though’. When he said this, I immediately came back with ‘but I am’, to which he replied ‘ yeah but not really’. And that! That right there is a blisteringly clear example of how our society’s history has led people to think that ‘a disabled person’ is somebody who is totally unable to do anything for themselves; they’re probably in a wheelchair, and their image is totally saturated with pity. Nobody disabled, regardless of whether they’re in a wheelchair or need constant care fits this weak and pitiful narrative, but I’m well aware of the fact that the nature of my Spina Bifida and every other part of who I am as a person makes it so easy for people to assume that my condition can’t be that bad. I might technically be ‘disabled’ on a medical record, but I’m not actually and any time I openly describe myself using this word, I’m kind of just looking for attention.

You might think that I’m being oversensitive about the chat I had with this man, but you wouldn’t believe how much time and energy I have to spend almost begging people to believe that I do have a physical disability when I need the help. When I was 16 years old I had to reapply for my disability benefits (which include my access to an adapted car) because the government at the time had decided that too many people were taking advantage of them, so called everybody in for reapplication. At 16 I was judged to be old enough to handle everything on my own (a ludicrous notion in itself), so I went into the first consultation with a nurse alone. She asked me about how far I can walk, how many operations I’d had, and how my disability affects me, and then she asked me if I have any friends.

I was entirely myself in this interview and because I didn’t cower or fit the image of the pitiful disabled person, the government took everything away from me. It was only after months of appeals and emotional trauma where I had to reduce myself to fit this image so the government would believe me when I said that I need this help so that I can live a full life, that I got everything back.

So yes, I am disabled even though it might surprise you to learn that after seeing or talking to me. And yes, people shouldn’t judge me or treat me differently because of that fact. But they do. Therefore, if you are surprised that I’m disabled then ask yourself why you reacted that way, rather than dismiss the existence or severity of my Spina Bifida.

I’ve not written this because I think that anyone who’s ever said variations of what this man said to me the other day are bad people with nasty intentions. Quite the opposite. I’ve written it because I want individuals to take more notice of what they perceive ‘disabled’ to mean for somebody’s appearance and experience of life, because saying ‘you’re not disabled though’ or ‘ignore people who judge you’ aren’t comforting things to hear, nor are they particularly useful. In fact, they kind of contribute to the problem.