You’re not really though, are you?

You’re not really though, are you?

A few days ago I had an interaction with a man that has really stuck with me. We’d just met, in the kind of setting where you hadn’t chosen each other’s company, but you were probably going to be sitting together for a while so it’d be best if you struck up some type of conversation. The first part of our chat was like all others: asking for names, why you’re here, where are you from, and various other painfully mundane topics for small talk. Eventually, we reached the part of the conversation where he wanted to know why I had pieces of metal coming up from my shoes and like always, I summarised my disability as clearly and simply as is possible in a casual getting-to-know-you chat.

This part of our interaction wasn’t a problem for me; I’m not exactly shy on the subject. It was the way he went on to dismiss me by saying ‘you’re not disabled though, so just ignore anyone who judges you’ after I’d said that there are some instances when I wear clothes to cover my shoes because I don’t want the preconceptions. That was when I got a little wound up. And on the surface, it might sound to you like this man was just being nice, by saying that anybody who treats me differently because they see my shoes is just a horrible person who I shouldn’t take any notice of. Except, this whole living with a disability thing isn’t that simple.

First of all, I don’t need a man I just met talking over me and telling me what I am. But aside from that unfortunate aspect of this particular conversation, let me now explain why people saying these things to me is problematic, regardless of how well it’s meant.

Let’s take the beginning of the sentence: ‘you’re not disabled though’. When he said this, I immediately came back with ‘but I am’, to which he replied ‘ yeah but not really’. And that! That right there is a blisteringly clear example of how our society’s history has led people to think that ‘a disabled person’ is somebody who is totally unable to do anything for themselves; they’re probably in a wheelchair, and their image is totally saturated with pity. Nobody disabled, regardless of whether they’re in a wheelchair or need constant care fits this weak and pitiful narrative, but I’m well aware of the fact that the nature of my Spina Bifida and every other part of who I am as a person makes it so easy for people to assume that my condition can’t be that bad. I might technically be ‘disabled’ on a medical record, but I’m not actually and any time I openly describe myself using this word, I’m kind of just looking for attention.

You might think that I’m being oversensitive about the chat I had with this man, but you wouldn’t believe how much time and energy I have to spend almost begging people to believe that I do have a physical disability when I need the help. When I was 16 years old I had to reapply for my disability benefits (which include my access to an adapted car) because the government at the time had decided that too many people were taking advantage of them, so called everybody in for reapplication. At 16 I was judged to be old enough to handle everything on my own (a ludicrous notion in itself), so I went into the first consultation with a nurse alone. She asked me about how far I can walk, how many operations I’d had, and how my disability affects me, and then she asked me if I have any friends.

I was entirely myself in this interview and because I didn’t cower or fit the image of the pitiful disabled person, the government took everything away from me. It was only after months of appeals and emotional trauma where I had to reduce myself to fit this image so the government would believe me when I said that I need this help so that I can live a full life, that I got everything back.

So yes, I am disabled even though it might surprise you to learn that after seeing or talking to me. And yes, people shouldn’t judge me or treat me differently because of that fact. But they do. Therefore, if you are surprised that I’m disabled then ask yourself why you reacted that way, rather than dismiss the existence or severity of my Spina Bifida.

I’ve not written this because I think that anyone who’s ever said variations of what this man said to me the other day are bad people with nasty intentions. Quite the opposite. I’ve written it because I want individuals to take more notice of what they perceive ‘disabled’ to mean for somebody’s appearance and experience of life, because saying ‘you’re not disabled though’ or ‘ignore people who judge you’ aren’t comforting things to hear, nor are they particularly useful. In fact, they kind of contribute to the problem.

London: it’s a love-hate relationship

London: it’s a love-hate relationship

Whenever I’ve travelled to a different country or have met people from around the world, in the first moments of us getting to know one another, they hear I’m English and they inevitably ask me if I’m from London. I tend to laugh in response, and then we begin the charade of me saying a city they’ve no idea about, and then I try to help them place me by talking about football teams – most of the time we settle on Manchester. Which, of course, if anyone knows anything about the war of the roses and the subsequent beef between Yorkshire and Lancashire, they’ll know that there’s a whole lot of difference between the two areas. Not least in accent.

I don’t mind at all that people from different countries have never heard of Bradford: why should they care? What cuts a little though, is the amount of times I’ve had to have this exact conversation with people from the south of England. Some of them don’t even know what I’m talking about when I mention Leeds! Leeds is a big city!!! And it’s not just that many people don’t know where cities in the north are, it’s the bitter pill that the only place which seems to be of any significance to them is London.

But why care so much?

Well, I care because of the huge economic differences between the north and south of England, and the consequences this has on the lives of the people in the two areas.

I’d never really had much to do with London and the south growing up, other than seeing the London schools on CBBC getting the random celebrity visitors, or knowing that London was where the Queen lived, and that it was really far away from Bradford – in more ways than just distance. But this isn’t the part where I say I grew up in an impoverished household, where my parents had to work 3 jobs for us to eat , because my ability to see the wealth-gap between the north and south isn’t reliant on my family’s economic situation. My parents know what it is to be on the dole, and they have never had any savings, but I’ve never been poor. That doesn’t mean that I don’t know what it looks like, though.

Poverty isn’t just about the money you have, but a secure financial situation gifts people and communities so much more than you might first think. If a family is wealthy, and thus money isn’t something they have to worry about, then they have so much more time, energy and resources to do other things. For example, they can buy books, or go to a different city or country, or buy a membership to a gym. They have the ability to see value in investing in cultural capital: learning to play an instrument, or reading a book is no longer deemed as a ‘waste’, and so many more things like going to university or moving to a bigger city to do an internship seem attainable. Money gives people time and opportunity, and economic stability allows people the freedom to think further than what they need to survive.

So no wonder when I drove into central London last week, the majority of people I saw looked healthier and wealthier than those I’d seen in Shipley earlier that morning. You could see economic stability in the fact that their skin colour didn’t look tired and yellow; fewer people were overweight; more were nicely dressed, in clothes they’d carefully picked out to suit their bodies; all of the shops were open, and around every corner there was a museum or a gallery or a theatre. You can literally see the differences, if you’re bothered to look.

Unfortunately, the last time I spoke about a north-south class divide, was when I wrote a description of my experience as a northerner at a Russell Group University. I did my best to not be overly critical of people, but still that blog was reported by at least 100 members of my university’s Facebook group, and it helped to get me blocked from the page for over a year. So, it would seem that this desire to ignore and neglect the uncomfortable parts of our society we blamed on older generations, persists into psyche of the ‘progressive’ millennials.

It gets very tiring very quickly to be stereotyped as a stupid northerner, from the middle of nowhere, when you know that those stereotypes are rooted in blatant economic inequality. So no, I don’t find it very funny when I sit on a delayed tube and make a joke saying ‘none of this in Bradford’, and a super healthy, well-dressed, young girl with a southern accent says ‘is there anything in Bradford?’. Because regardless of how she intended it, or whether she’s a nice girl or not, it just doesn’t sound very funny coming from a stranger with that accent.

I’d like to finish this blog with clarifying that the north of England doesn’t need pity or to be patronised, and that obviously I’m aware that the south isn’t full of only privileged people. There’s plenty of culture, history and privilege up here, and there’s plenty of poverty down there. But it would be helpful for everyone if individuals started to take more notice of the disparities and the inevitable effects those disparities have on communities. After all, government and institutions will only start to spread the wealth out more, if people (especially those from the side with more) are seen to actively want that to happen.

Economics and equality are complex topics, and there’s no way I can put the world to rights with one blog entry. Nonetheless, I know that there will be many of you reading this who had never considered why a southerner taking the piss out of a northerner might sting a little more. And maybe my northern peers don’t feel irritated by it in the same way I do, but I felt like I needed to say it – especially in the divisive political climate of the last 10 years. I don’t hate London; in fact, I love it because it’s exciting, and the buildings are beautiful, and everything’s there, but then again, why does everything have to only be there?

Is this a witch hunt now?

Is this a witch hunt now?

Recently, I’ve been trying to learn as much as I can about the world and other people. Though I’ve always enjoyed asking questions, it’s been the past few years of my life when I’ve really made an effort to engage with what’s going on around me. But I’m not just talking about reading the news, or history books; I’m talking about asking my peers questions about sex and relationships, questioning those in positions of authority, and challenging my own views on things as much as I can.

I’ve not reached any definitive conclusions – obviously, I’ve been on the planet for about 20 seconds. However, one of the things that I have come to realise is that people have a real issue with trusting each other. It’s understandably due to all the corruption and deceit experienced throughout human history. But it seems that even in the moments when there’s no need to be so suspicious, we’re automatically assuming the worst of each other.

And that’s kind of sad.

I’m not saying that people should never be suspicious of others, I’m only saying that in always assuming the worst of each other, we’re really losing sight of the importance of community. To make matters worse, in the total tumult of a global pandemic, our own government are explicitly encouraging us to turn on each other. So it might seem like nothing, but the second our government urge us to snitch on our neighbours, that is the moment when our society has a HUGE problem.

Preaching about your civil rights is all well and good, but remember that you aren’t the only person in this society. You can’t dob people in just because you judge what they’re doing as wrong: it’s your right to live your life the way you want to, but don’t forget that your neighbour has the same rights as you. Let’s not have an ego trip and start playing judge, jury and executioner over a neighbour allowing another person into their own home. Frankly, taking that road leads society to dictatorships, ignoring the presence of concentration camps, and public executions. It definitely doesn’t lead to any kind of effective democracy – it never has.

Thus even though it can sometimes lead to disappointment, we really need to trust each other more. After all, very few people commit crimes sp there’s no need for us to assume that the worst will always happen first.

Government likes to dismantle community to strengthen its own control. But the government won’t be the ones rushing to your aid if you get knocked over by a car and start bleeding in the middle of the street. They won’t be there to speak to you when you’re lonely. They won’t be the ones you ask to look after your children whilst you run to the shop to get some more milk. So be careful about burning your bridges with your community: they’re the people you actually need.

Walk it

Walk it

So here I am: it’s Tuesday, I’m full of whatever illness my friends at college have gifted me and I’ve somehow been bothered to make it to my 2 hour Korean lesson. The day’s going well. (This blog is going to be pretty emotionally-charged by the way: strap in).

What I didn’t need added to my day, was some old, male, traffic warden peering through my windscreen whilst I was STILL IN MY CAR, to check if my disabled badge was a fraud. For the record, it’s weird and intimidating to have a stranger looking inside your car whilst you’re still in there. But the core of my annoyance, was the fact that I’m sick and tired of the disabled parking bays situation.

Now, if you aren’t disabled, or don’t have any close relatives or friends who are, then you might be thinking: what situation? Is there even a situation?

Well, my dear reader, yes there bloody well is a situation. And it’s one that has made my parents furious for years before me, but now I also have the joy of being angered by it too. Lucky me!

So it’s simple, right? You go to any public space and most of the time there are parking bays with bright yellow hatching, and the universally recognised symbol for disability. Everyone knows that that then marks those parking bays as exclusively for people who need it i.e. ones who own a blue badge issued by the government, indicating that they’re legally recognised as disabled. I won’t go too into it now, but trust me when I say that you don’t just get that badge. You have to undergo what is in my experience, an insanely gruelling, somewhat traumatising process so as to be recognised by the government as ‘eligible’ for it. But I’ll write a blog detailing that process another day- look forward to that one, it’s a corker.

Anyway: you need a disabled badge to park in the space closest to the destination, seen as it’s predominantly the people who’re disabled who’re unable to access things and places easily. Surprise!

Why is it then that when my dad dropped me off at Secondary school, on average only 2 out of about 8 disabled bays had cars with blue badges in them? One of which was my dad’s car. With my badge. I’d also like to add the information that my school was attached to a Special Needs school: attended by children with severe disabilities, whose parents probably needed to use those parking spaces when picking them up.

Why is it that this also happens every time I go to a supermarket, a shop, or just anywhere really? Why did I have to ask the receptionist at my University college today – a college which prides itself on diversity and acceptance – to ask the woman who uses a bay every week and doesn’t display a badge, to please park somewhere else?

You might wonder why this is so offensive to me. Or, like the traffic warden, think me ‘silly’ for even being offended by it. (His patronising choice of words really added to the moment, I must say).

It’s offensive because when people park in these spaces, they’re not thinking of how insanely immoral and unfair what they’re doing is. Those spaces are for people who literally need them. People who can’t walk that extra few steps to the building. People who need equipment to move and to live. People who have in recent years had to fight so hard, just to be deemed ‘eligible’ by the government for things that they need to survive.

If you park in those bays when you don’t need to, then you’re depriving a disabled person of their right to get on with their life and to be independent. I’m not always in a wheelchair, and on the surface it appears that I walk pretty well, but if I can’t park in those bays then I might have to walk a distance which will cause me to develop an infection, and to go in a wheelchair for months on end. So if that’s what’s at stake for me, then think about the people who’re wheelchair bound and what that space might mean to them.

Again, this might sound like an overreaction, but trust me when I say that it’s not.

It’s not just the walking distance, it’s also the backlash that comes from people abusing those spaces. Namely, the fact that it creates a culture of doubt. If those spaces were respected, then I wouldn’t have had some old man looking into my car to see if I was lying today. I wouldn’t have had him looking me in the eyes in disbelief as to why I was asking him not to do that. He told me that he was checking the disabled badge ‘for’ me: to ‘help’ me. I obviously understand why he checks, but I resent the fact that he thought I would lie.

So I appeal to you, to think about your actions and to just park somewhere else. Just walk those extra steps. Not just because you have the physical ability to do it, but also because I would never ask for something that I don’t need. I don’t abuse the system, in fact I probably don’t use it enough. But I need to park there. And I’m tired of defending my right to that space.