Sex education

Sex education

This week I’m on my period. So for the past few days, I’ve had the pleasure of experiencing painful cramps, mood sWINgs, and a whole lot of bleeding. Too much information? Well tough.

Even though I have my period once a month, and it’s an entirely healthy part of my life, society encourages me to never talk about it. Then a direct consequence of this, is that women generally know very little about how their bodies work, and how to take care of them. And the men around them know even less. So no one knows anything, and half of the population’s physical and mental health is put at risk.

Not ideal.

But I’m not talking about everyone being able to regurgitate the facts they learnt in science – although you should be able to do that. This is about acknowledging the hormones and the pain women feel whilst on their periods as legitimate. We’re not overreacting: it f**king hurts. And as funny as it might be to see a girl cry over her bobble snapping, those hormones do genuinely mESS you up for a couple of days. I mean, sometimes we literally wake up in a pool of our own blood.

So, periods are intense and tedious enough: I don’t need society telling me that I should be embarrassed by them too. Nor do I need people to tell me how/what I should feel/wear/say/think when no one is taking an interest in my body or me anyway.

At the same time, I don’t know much about what male bodies go through. I know they don’t have such a dramatic time of it every month, but that doesn’t mean it’s always smooth-sailing. Like puberty, that doesn’t sound like a walk in the park for a boy – physically, or psychologically.

The point is that we never ask detailed, comprehensive questions about our bodies. But we go further than not asking: we stigmatise the topics so much so that it becomes ‘gross’ or ‘uncomfortable’ to even think about going there at all.

For women especially, getting to know yourself intimately isn’t normalised, so a lot of us just don’t do it – by ‘intimately’, I mean both sexually and biologically. A lot of my female friends have never even taken a mirror to have a look at themselves, let alone experiment with masturbation. Whereas a huge proportion of my male friends know their genitals as well as any other part of their body – maybe even better.

So if we’re saying that women barely know anything about their own bodies, and we then take that to talk about health and safety, how could we ever know that something is wrong, if we don’t know what we look like when we’re healthy? Then on a psychological level, how is it right that we’re so disgusted by our own bodies? We won’t touch or get to know ourselves but we’ll let some random lad who might ditch us next week do whatever he wants? I dOn’T tHiNk sO.

Conversations about our bodies shouldn’t be separated according to whatever genitals you were born with, because we don’t exclusively socialise with people of the same sex. We need to ditch the euphemisms and the pressure, so we can learn to look after each other and ourselves more effectively. After all, knowing this information will definitely save someone’s life one day – maybe even your own.

Get woke

Get woke

The last 8 months have drastically altered the way the world works. By being forced to stay indoors for weeks – in some countries, months – on end, we’ve been thrust into personal isolation in a way we’ve never experienced. In the future, some will probably only talk about how they were really bored, unable to go on holiday, or gained an unhealthy obsession with TikTok during this time (guilty…). Whilst others will have worse tales to tell.

Overall however, there seems to have been an increase in how much the general public pay attention to the news. It’s an unsurprising change, given we had very little else to do…but even though people started watching the news more, it seems we still struggle to fully engage with what we’re hearing.

When we go through school, there are often moments in our classrooms when we’re encouraged to discuss the politics relating to whatever we’re studying: whether that’s how the social climate of 1920’s America influenced F. Scott Fitzgerald’s The Great Gatsby, or whether it’s answering the million-dollar question: why did Henry VIII have so many wives? However, a lot of the time our curriculum doesn’t actually encourage us to really think about the topics, and then relate what we learn to our society today. We learn phrases we know ‘the examiner wants to hear’, but we’re 15, so why would we need to care about these things outside of the classroom?

But then we come into the world and we’re completely unprepared to understand everything that’s going on. Only we’re not completely unprepared: it’s just that we’re rarely taught how to recognise that what we learnt about the Tudors, the Bolsheviks, or the Ancient Romans is relevant to us now. Furthermore, people think they don’t have access to politics because they don’t know the lingo. But politicians complicate things on purpose; they’re trying to make you think that you don’t get it because then you’ll leave them to it.

Plus as humans, we separate ourselves from our history and assume that because we weren’t there, we don’t need to give it that much attention. And our learning at school is for exams, it’s rarely for the sake of knowing. But trust me, you’d probably recognise a lot of the ideas and political tactics kicking about now, from your history lessons if you took a second to think about it. After all, humans can be amazingly innovative but we also have a habit of ignoring our past, then repeating it because we’ve ‘forgotten’ about it.

So I couldn’t care less about how many news articles you share on your social media: it’s your profile, do what you want. What I do care about though, is people asking questions and actively learning about the world they live in. We’re the next cohort of citizens and we’re inheriting a big, phat, stinking mess. I mean, the planet is literally dying…

You learnt so much about how the world works today from school and everything you’ve ever read. It’s not irrelevant and it’s not always ‘boring/depressing’: educate yourself about the positive/exciting parts of world history too. But there’s so much to be said for paying serious attention to humanity’s past mistakes, learning from them, and finally doing something else.

I listened to a podcast the other day that said around 22% of American millennials don’t even KNOW what the Holocaust was. And that’s terrifying. So please please please exit Instagram/Facebook/Twitter/TikTok for a couple of hours today and read a book, watch a documentary, listen to a podcast, read an article – I don’t care, just learn something new.

Discrimination is surprising

Discrimination is surprising

The response to last week’s blog has been amazing: people were completely outraged! And this was so weird (lovely !!, but weird) to me, because my getting blocked by students at my University didn’t even make me that angry: it wasn’t an unprecedented event. But you were all so shocked and furious! So, I realise, that you have no idea of just how poorly your disabled community is treated…

So let’s actually talk about disability and society, and let’s first take the idea of ‘looking’ disabled. Well, I don’t ‘look’ disabled. But the fact that I don’t has had serious consequences on the way society treats me.

There are two instances from Secondary School relating to this which particularly stand out for me. The first was when I was in Year 7: I was 11 years old and I’d recently developed a blister on my foot from walking too much, or having a fold in my sock, or something else tedious. (Yes, folds in socks can shove me in a wheelchair for months: it’s that stupid.) So in an attempt to avoid going into my wheelchair, I started to use the lift for disabled students to cut down my walking.

I was outside the lift one afternoon on the way to my next lesson with my best friend when my Deputy Headteacher came over and asked me what I was doing. I politely explained how I had a note from my parents, that I had a blister and that I had to use the lift. She didn’t look at my note, and she wasn’t interested when I started to lift my trousers so she could see my shoes. Instead, she yelled at me saying ‘a blister?! I’ve never heard such a thing! You’re stopping disabled students from using this lift!’. So I went to lesson in floods of tears: completely humiliated.

In this moment I didn’t ‘look disabled’ to my Deputy Headteacher: I didn’t have a noticeable body deformity, sound disabled, nor was I in a wheelchair. Flash-forward 2 weeks however, and I was in a wheelchair…no challenges as to why I was using the lift then…

The other memory I have is from being in Year 10 – the 3rd time I was in a wheelchair at Secondary School. My friends were pushing me through the halls to our lesson, and a student I didn’t know saw us. He shouted ‘piss off! I saw you walking last week, get out of that thing!’ at me across the hallway. I was stunned but my friends shouted back at him and we kept moving. Clearly, to this boy I was a liar; I was the person the media and government demonise as ‘abusing disability services and benefits’, and he took this moment to publicly expose my lie.

The world is constantly fed this finite version of what it is to be disabled: what it looks like, what it sounds like and what it feels like. But nobody ever takes the time to work out whether this stereotype is true. So just think about how many people you know without a disability: are they all the same? Do they all have the same bodies and personalities and emotions and ideas? Now think about applying that to disabled people. Do we all have the same disabilities? Do people who even fall under the same type of disability, have the same variation of that disability? Do we all look the same? Sound the same? Feel the same?

The answer is clearly ‘no’. Still, we’re grouped into one blob and are treated poorly by people and institutions who take very little time to try and actually understand us.

I’ve never been bullied directly because I’ve always had people standing up for me, and I’ve always had the confidence to stand up for myself. But I’ll always be vulnerable to discrimination by institutions and the general public because of an unwillingness of people to sit down and actually learn about things they know nothing about.

If you’re outraged by my experiences then start learning about other people’s, because I’m such a privileged white girl and my exposure to discrimination is nowhere near as bad as it gets. Trust me, you know more disabled people than you think, and you have more preconceptions about disability than you recognise.

Lol, I got blocked

Lol, I got blocked

When I first started this blog, I didn’t really think that anyone would read it. Then after a few months I realised that hundreds of people every week were clicking on my links. (!) And I thought that if I promoted it on social media, then maybe even more strangers would take the time to read what I write.

One of the ways I did this was by occasionally sharing posts to my University’s ‘overheard’ page. For those of you who don’t know what that is, it’s basically a Facebook page run by students of universities where the members share all kinds of things: information about houses, people trying to find things they lost on nights out, promotion of student events or student projects, all sorts. And when I shared blogs to this page, I received hundreds of reads on each article (one time, the views even reached over 1000 in 24 hours), with strangers sending me messages saying how much they’d appreciated my writing. Some even said ‘thank you’.

However, whilst many were grateful to me for talking about subjects such as social class at Durham University, others reported me as promoting a scam…This then caused me to get blocked from the page – a fact I only realised when I checked and saw that I could no longer access the student community.

Bit harsh, but never-mind, whatever.

When I asked the administrator of the page to unblock me, they did it straight away. Then last Wednesday I shared a blog about disability representation. I did so because disability is really not something I ever hear mentioned at Durham, and I thought that reading a blog about it might be a safe and easy way to get students in on the discussion. Plus, I thought, if you don’t want to read it, then just scroll, it’s not exactly an offending topic???

I received hundreds of reads and around 50 likes on that post. But once again, some found it so insulting that they chose to report it, and got me blocked. Only this time when I asked the administrator if they could undo it, they said they couldn’t because at least 50 students reported the post. At least 50 !!! The administrator didn’t remove or report it, my fellow students did.

Why am I even writing about this, you ask? Well, I’m writing about it because when I shared blogs about dating or relationships, they stayed up on the page for weeks – no problem. But then when I discussed social class or disability, at least 100 people took the time and effort to report me. So this isn’t about my ego, it’s about how objectively insane it is that at least 100 students at my university have reported articles about social class and disability as having no place on a Facebook page devoted to a student community. These people may make up a minority, but they exist, and they’re actively rejecting conversations about disability and social class, and I’m not okay with it.

Durham is one of the best universities in the country and many of those attending it will reach powerful positions in their lives; some will even become the people who make the rules in this country. So if later down the line these people are going to control my rights as a disabled person, then why can’t I ask them to try and understand what it’s actually like to be the disabled person?

If you don’t like my writing then it’s calm, just keep scrolling. But don’t tell me to sit down and shut up, or get me blocked because I’m not talking about something you want to hear: it’ll only make me more persistent.

I want to go for a walk

I want to go for a walk

For me, disability causes a constant conflict between personality and body. Ever since I was small I’ve struggled to mesh the two together because I’ve never wanted to accept that there are things that I’ll never be able to do. From the age of about 8 until 14 I was awful for it: I’d just do everything that my friends were doing because I wanted to, and I’d rarely give a second thought to my feet. But then I’d end up with infections, and in a wheelchair. So living that way didn’t get me very far.

After about the age of 16 I’d managed to (sort of) make my peace with it. I accepted that I couldn’t ever live my life the way most people could, and I mourned it, but ultimately I realised that those are just the cards I’ve been dealt. I mean, my disability could be so much worse, and what do I gain from fighting it?

Then I was 19 and I had my gap year. I proved to myself that I could travel the world on my own: I went to seriously remote places, away from medical institutions, and showed myself that doing what I want to do doesn’t always have to end in infection and debilitation. It might sound trivial to you, but it was breaking news to me, my family and my doctors.

This year, quarantine happened and after a while the government started allowing people out for walks and exercise. This change to the lockdown brought so much relief to most people, but not to me because I can’t just go out for a run. I can’t just walk down loads of steps to the beach and then back up them, because if I do, I have to accept that I might injure myself. I might put myself in a wheelchair.

This is where we get back to how complicated disability is, because many of my readers have seen me in person and have seen me walk plenty of times. I can walk short distances, and I’ve been known to dance for hours on a night out, but sometimes it’s just luck that I don’t end up with a blister after doing these things. I’m a seasoned professional when it comes to internalising my worries and pushing my disability as far as it can go. I’m stubborn and I’m young, and I don’t see why all my friends can but I can’t. Like I said, it’s a constant conflict.

But I don’t write these blogs to be all ‘woe is me’. Loads of people have it so much worse than I do, and everyone does the best with what they’ve got. It’s just that if I’m going to write blogs about when I feel empowered by being a young disabled woman, then I have to show you the side of my condition which gives me no joy whatsoever.

Some days I just don’t want to be this disabled person. It makes me feel weak and suffocated. I don’t want to have to think about whether I can go somewhere, I want to be able to just go. Sometimes I look at my feet and wonder how it’s fair that I have to be the only person I know who can’t just wear normal shoes and have normal legs. I wonder how it’s fair that I’ll have this for the rest of my life, and how I’m supposed to get over it when there’s nothing I, or anyone else can do to ever improve it.

There are no solutions to these problems. Life doesn’t work in ‘fair’ and ‘unfair’ – especially when I don’t believe in any type of God. As far as I can see, random people get random sacks of sh** to deal with, and we move. I have a really good time even with the headache of my Spina Bifida, and it’s shaped me in so many positive ways. To be honest, if someone told me that I could flick a switch to get rid of it I’m not even sure that I would. Disability can enrich a person’s perspective on the world and life in many ways, but I’d never, ever, wish it on anyone.

Not feeling it

Not feeling it

Until yesterday, I wasn’t going to write a mid-week blog. Mostly because I’ve spent so much time with myself these past 52 days. 52 days man: I’ve not been outside in almost 2 months. (!) In fact, I have absolutely no clue what the country I’ve been living in for that time even looks like. If it’s past the view from the windows, then I’ve never seen it.

So the routine of my week kind of revolves around writing blogs now. But I’m only any good at this when I’ve got something to say, and how can I have anything to say when I don’t do anything? I’m trying to write down the things I talk about in my head, but I’m soooooo bored of hearing that little voice blabbering on all the time. I’d kinda like to hear someone else for a bit.

Lol didn’t manage it though, did I? Here we are, reading another instalment of that little voice’s monologue… ah well.

Quarantine has been a serious strain on the mental well-being of my parents and I. We never argue and we get along uncharacteristically well, so generally speaking we’re totally fine. We have a laugh and our issues are never with each other. But human beings aren’t built to be locked inside for months on end; it doesn’t matter how much they like each other.

Thankfully, me, my mum and my dad have somehow managed to alternate our breakdowns so none of us have been miserable at the same time so far. It’s not every day but every now and then, it just hits you. And whoever isn’t feeling like jumping out of the window on that day, gets the job of comforting whoever does. Lots of hugs, loud music, drunken dancing on the balcony, crisps and chocolate, Blue Planet, Judy Garland, sarcastic jokes. You know, usual family stuff.

But what I’m trying to get at in this blog, is that if you’re waking up some days feeling absolutely miserable then that’s a totally valid feeling to have right now. It’s a completely mad, upsetting time. It doesn’t matter how lovely your house is, or how amazing the people you’re locked in with are, sometimes you just can’t face another day doing the same thing, in the same rooms, surrounded by the same people, with no idea of when you’ll all be able to do something else.

I could end this with ‘hey, it’s mostly not that bad, let’s not dwell’ – a very true point. But there’s a lot to be said for allowing yourself a minute to just listen to some maungy music and bask in how crap you feel. You don’t always have to rationalise things; sometimes you just feel rubbish. And we’ve been stuck in the house for weeks with no prospect of an end date, in a world where the only news story seems to be how many people are dying. So if that isn’t an excuse to feel sad for a day, then I don’t know what is.

Xx

Does being masculine mean you shouldn’t slut-drop?

Does being masculine mean you shouldn’t slut-drop?

I wanted to know whether these young men feel like they need to act/look/talk/think a certain way when they like someone, and whether they think there’s a generally accepted version of ‘attractive’ for the male sex.

My favourite response was: ‘I’m not saying I go around crushing beers against my forehead but I do maybe try and avoid slutdropping for hashtag bant’. I mean, that first part is just a really funny mental-image.

But overall, the answers were interesting because they were all pretty 50/50 on ‘yes’ and ‘no’, with equally passionate viewpoints on both sides. However, the ‘no’ answers had quite a lot of contradictions, with boys saying ‘no, not really’ or ‘definitely not’, but following it with ‘I try to be the most appealing version of myself’. Noting that it’s ‘pointless’ to be something they’re not in the first stages of getting to know a person, but still wanting to make themselves ‘more likeable’ to ‘not put girls off’.

I did completely understand what they meant: we all try to temper or alter ourselves when we first meet someone because we want them to like us. But, I can’t help feeling sad at how much pressure we put on ourselves just because we want the approval of a stranger…

Regardless of how many of these lads said ‘I just kinda do me’, there were a lot of mentions of the ‘tall, dark and handsome’ trope. The ‘v-line’ and the ‘older look’; the ‘jawline’ and the ‘muscular look’; the ‘confidence’ that always almost crosses over into ‘arrogance’. Oh, and ‘that typical white boy look’: I’m learning that for both men and women, other races have a lot more trouble with fetishisation than us Caucasians. But that’s a whole other blog.

Overall, the boys were saying a lot of things which equate to the experiences girls have our age. We all overthink how we should be when we’re trying to impress someone. We try not to change in front of strangers we fancy, but often we do it anyway. We have social standards we kind of want to live up to – no matter how impossible they might be. Our upbringing and our social class influence what version of ourselves we think is preferable to whoever we’re talking to. We’re all just kind of insecure and unsure at this age.

However these boys made a point that deserves a specific mention: not enough time is given to how much these pressures to look a certain way damage the mental health of young men. My friends were so right to tell me that ‘body image amongst men isn’t taken as seriously’ as it should be, because according to the National Centre for Eating Disorders in the UK, men are thought to make up around 50% of all cases. And I don’t know about you, but that statistic came as a surprise to me…

I think we’re doing pretty well in diversifying what it means to be ‘masculine’ in the modern world. But we’re moving so slowly. We still need to fully recognise that sexism is a huge problem for both men and women now: in 2020. If we sorted it out for women, then men would definitely feel the benefits too. Maybe we’d even realise that if someone likes us, then they probably couldn’t give less of a sh** about our hair colour or our height. Imagine it! A world without gender rules.

So, does being masculine mean you shouldn’t slut-drop? Well I certainly hope not. And FYI lads, if you want to play with gender expectations, then a little bit of eyeliner can go a long way too…I’m just saying.

Question 1

Question 1

We all know that horrible (kind of exciting) feeling when you see someone, think they’re fit, and you want to go up to them but don’t really know what to do once you get there. And normally, I’m pretty clumsy about it: I’m probably too loud and giddy, or too flirty or too subtle and then I spend hours after the time I saw the boy thinking about how I should’ve acted, or what I could’ve said, hating on what I actually said…it’s just a big old mess to be honest hahahah.

So I wanted to know, whether the boys us girls are embarrassing ourselves in front of, feel the same way in this situation…

And oh my god they do.

The overriding feeling coming from the answers I received though, was that they’d rather not feel like they have to make the first move. And I don’t blame them. We all know that this is a pretty toxic expectation of our society, but it’s also not an easy one to change. For example, I wrote an entire blog on how when I’ve made the first move it’s often made me seem like a slut…so…

But unfortunately, this huge pressure on young men has made some of them ‘not even bother’ because they ‘don’t know how’. Some boasted confidence with comments such as ‘I don’t approach, I get approached ;)’ but then went on to talk about how terrified they are of rejection. Not only that, they’re extra frightened that other people will ‘find out’ about it. And they’re especially wary of girls and their friendship groups because as they said, ‘once the girl hates you, so do all of her friends’. (*not always true, but fair assumption*)

Many were frightened of ‘having the piss taken out of them’. Or not being able to ‘come up with the most interesting conversation starter possible’. They don’t want ’embarrassing stories’ made up about them ‘failing’. And nobody wants the ‘reputation’ of always being the guy to ask lots of people out because then they look like a ‘f***boy’ and that’s not going to help them much either. Others also spoke about fears of ‘coming on too strong’, or seeming ‘creepy’ and accidentally ‘making the girl feel uncomfortable’.

So first of all, I’d just like to say that the fact all of these things are even thoughts going through your heads means that you’ve all got very little to worry about. You’re clearly decent, considerate, lovely people. A fact I already knew. Still I recognise, that my saying that won’t make the paranoia disappear.

Clearly, many of these boys don’t want to be that hyper-masculine, pushy version of a ‘man’, but they’re also not that comfortable with being the opposite. They fear that if they go in completely the other direction, they might be deemed a ‘coward’, ‘too quiet’, or just plain ‘awkward’. And finding that middle ground is difficult to do when you’re only 20.

It would also be entirely futile for me to respond to them and say ‘just be yourself’, ‘just relax’, or ‘try not to overthink it’. Since telling someone to relax in this situation is about as helpful as ‘where’d you leave it?’ when you’ve lost something.

But if these boys will allow me to give them a little piece of advice, since I’m part of the gender many of them are trying to pull, I’d say that awkward is not a deal-breaker. It’s not ideal, but it’s not a deal-breaker. Pushy and rude is a deal-breaker. So defo lean more towards awkward.

It’s completely unfair and pointless that we still have this social standard where boys are expected to make the first move. So I want to end this blog by making a request to all the girls reading this: do us all a favour and just risk it sometimes. If boys can be brave enough to put their egos on the line when they find someone attractive, then so can we. We’re all going to suffer some blows and experience rejection. It never feels great, but you don’t die either.

So f*** it: ask him out.

Boys are just as scared of you, as you are of them

Boys are just as scared of you, as you are of them

When I talk about my experiences, they’re always from the female perspective – a very important one to hear. However, it’s not the only viewpoint out there, and I’m aware that a lot of lads read my blog. I’m also aware that young men are renowned for hiding their thoughts and feelings – and that this contributes to a lot of them having poor mental health.

So as a feminist, and a big fan of the male species, I’m going to try and make this a space for them to voice those thoughts. Not just so that they can see themselves reflected in what I write about, but also so that as a young female with brothers and lots of close male friends, I can understand them better – and help them if they ever need me.

And also because girls want to know what goes on in their heads anyway…

This week I asked as many boys as would let me (surprisingly ended up being 25 of the buggers) a set of questions focused on how they perceive themselves, and how they think they’re perceived by whatever gender they’re trying to pull.

There were so many interesting details in their answers; far too many to summarise in one blog. So I’m going to give them lots of attention and scrutiny in the coming weeks, writing blogs discussing each question one by one. Plus some of these lads are eager to have a feature on my blog anyway, so that’ll give me plenty of opportunity to quote all of them…as well as making them obliged to read more than one and up my ratings hehehe.

What surprised me most when I received all of their answers though, was seeing how grateful many of them were to just be asked. A few of them even straight-up thanked me, and that really plucked on my heart strings.

It became so clear that many of these young men lack someone who just asks them how they feel, without having any exterior motive like wanting to pull them or get some gossip out of them. They have amazing groups of friends who they love and trust, but they don’t always have spaces where they feel like they can just give their opinions – without judgement.

Some of them appreciated the fact that I wasn’t about to call them a ‘fboy’ or a ‘pr**k’ for saying that they didn’t want a girlfriend right now. Since, at our age, everyone’s entitled to make mistakes or just want to flirt with whoever. Many appreciated that I’d keep it anonymous, and they liked that all I wanted to know was what they thought. I didn’t want them to cloud it with jokes or euphemisms.

Young men are the same as young women. We all want to be made to feel interesting and relevant. We all have good parts and bad. We’re all in the middle of learning who we want to be and who we want to love. But more than anything, at this point in our lives we just want to work out all of those things without fearing judgement.

With all that in mind, in the coming months I’ll do my best to write some good blogs with the information you gave me lads: I hope I do you proud.

(If not, then I’ll do a wottle……jk, I’m not doing that hahahaha)

Xx

*wottle*: young person’s terminology for downing an entire bottle of wine as quickly as possible a.k.a a death sentence

Sometimes I’m in a wheelchair

Sometimes I’m in a wheelchair

Occasionally I develop a problem with my feet, and it can be as small as a blister or a cut but it almost always becomes infected. I can’t walk on it until it heals, and *POOF*: I’m in a wheelchair.

So…what’s that like?

Well obviously it differs from person to person. It’s also pretty impossible to generalise ‘a normal day’ of having an infection for me because: how did it happen? do I have the correct footwear? do I have enough footwear? am I at school? am I at home? am I at University? is it the holidays? am I still growing? have I just had an operation?- the list goes on.

Now is the longest time I’ve gone without using a wheelchair because I’m able to just avoid it since I don’t have school anymore. But so I can paint a picture for you, this is how it was during my last experience when I was 15 and I stayed in that bloody thing for 6 months:

I’d wake up, check my foot, take the bandage off and see what level of infected I was that day. Then I’d crawl into the bathroom – I can’t hop, my balance is non-existent lol. I’d do some next-level spider-man moves to get into the shower without allowing my infected foot to touch any surface, then I’d get washed. Finished, I’d have to carefully dry around the wound and make sure to not damage it further. Next, I’d have to dress my foot.

So I’d take out my medical kit, with all the specific products my feet require. I’d make a perfect bandage, ensuring that there were no creases in the entire thing because creases mean blisters and blisters are not my friend. It’s also important to mention that I don’t have any feeling in my feet, so infections don’t hurt: I recognise when my foot is infected simply by looking at it. So these bandages have to be perfect because the second I put my sock on, I’ve got no idea what’s kicking off down there.

NEXT, I’d have to get changed without accidentally catching the bandage on my clothes, or making it roll up once I put my sock on. Whenever it did catch or roll up, I’d have to start again. Then I’d slide down the stairs on my bum; hopping around the house using my zimmer-frame. (That’s right, I used to have a zimmer-frame, I’m cool.) My dad would bring my wheelchair into the kitchen and after my breakfast, I’d strap in. Once at school he’d push me to my friends and I became their responsibility for the day.

At every point in my life, all of my friends have become friends with me whilst I’m physically independent. So we’ve never started off with them being used to, or knowing what it’s like, for me to be in a wheelchair. Thus being in my wheelchair doesn’t just change my life, it changes the relationships my friends and family have with me.

Thankfully, my pals were mostly brilliant and loved the novelty of pushing me around. But we were children. So there were times when they were accidentally really unsympathetic or insensitive because they just didn’t know what it was like. Plus, they knew me out of the chair, so were used to me doing things for myself. This meant that sometimes they forgot that I wasn’t asking them to go and get me food, or to push me to the bathroom just to be annoying: I was asking because for that period of time, I couldn’t do it for myself.

And they also didn’t realise just how humiliating it felt for me to have to ask them to do these things. Even though I physically felt fine, since I never have any pain, all of a sudden I was overwhelmingly dependent on other people.

I’ve chosen to live a life where most of the time I’m so independent that I don’t seem disabled at all. And that has meant that in those moments when my Spina Bifida catches up with me, and all the actions I take behind closed doors to monitor it come into full view for the rest of the world, it’s just really hard to navigate.

It’s easy to say ‘I’m in a wheelchair, so everyone should be sensitive to that and help me with whatever I need’, but people are people, and you can’t tell them how they should or shouldn’t be. You can ask for help, but you can’t also expect them to fully comprehend something they’ve never had to experience before.

This is a part of my life that very few will ever know the full scope of because ultimately my disability is mine to deal with – not anyone else’s. My family and friends have always done their best to support me when I’m in my wheelchair, and their best is more than enough. And thankfully, being in a wheelchair is not a reality that I have to live in very often – but it does still happen. And even when it does I try and stay as chirpy as I am normally, because why make my frustration worse by spreading it?

After all, I’m one of the lucky ones: at least I always get back out of the chair.