Lockdown blues

Lockdown blues

A few days ago I was feeling really low: I wrote a blog all about my experience of coronavirus, my opinions on the way the government has handled it, and how depressing quarantining is. I didn’t publish it though, mostly because I’m super bored of talking about our shambles of a government…

Everybody hates being ill, and now more than ever we’re made to feel like we should fear illness. Obviously the pandemic has caused suffering on a huge scale to many people, but as we approach the winter, we need to give as much attention to our mental health as we’ve been giving to our physical. It’s been very easy to focus on coronavirus as the only relevant illness for the year, but a dangerous consequence of that has been that we’re kind of neglecting everything else.

As you might’ve read in my posts from back in the summer, I found quarantining in Peru really intense and exhausting at times. So on the 26th October when I realised that I wouldn’t be able to leave the house until at least the 8th November, I was thrown back into all of the emotions I remembered from the first lockdown. And I really don’t think that anyone has been talking enough about how awful it is to be on house arrest for weeks. Yes, it helps with slowing down the spread of the virus, but it also does some serious things to your state of mind.

Thus, the point I want to make this week is that we have to push the drama of the government’s restrictions to one side. Whether you agree with what they’re doing or not, when you catch this virus you’re going to have to stay inside for a couple of weeks. That experience can feel overwhelmingly bleak – especially when you know that you won’t be able to go out for food or for a drink at the end of it. You might wake up some mornings and not see the point of getting changed. Then when you check your phone and see text after text from NHS track and trace instructing you to stay inside, you might start to feel really suffocated. We’re all feeling the same things, and it’s sh**.

But you have to make the effort to get changed; to cook something interesting; to have fun with those you live with; to call the ones you don’t. Do your best to surround yourself with good vibes, and try your utmost to address how you’re feeling.

I’m not always the best at looking after myself, but as I get older, it gets clearer that my own happiness is my responsibility. So just keep reminding yourself of the positive things, because this lockdown world can so easily push you down.

I want to go for a walk

I want to go for a walk

For me, disability causes a constant conflict between personality and body. Ever since I was small I’ve struggled to mesh the two together because I’ve never wanted to accept that there are things that I’ll never be able to do. From the age of about 8 until 14 I was awful for it: I’d just do everything that my friends were doing because I wanted to, and I’d rarely give a second thought to my feet. But then I’d end up with infections, and in a wheelchair. So living that way didn’t get me very far.

After about the age of 16 I’d managed to (sort of) make my peace with it. I accepted that I couldn’t ever live my life the way most people could, and I mourned it, but ultimately I realised that those are just the cards I’ve been dealt. I mean, my disability could be so much worse, and what do I gain from fighting it?

Then I was 19 and I had my gap year. I proved to myself that I could travel the world on my own: I went to seriously remote places, away from medical institutions, and showed myself that doing what I want to do doesn’t always have to end in infection and debilitation. It might sound trivial to you, but it was breaking news to me, my family and my doctors.

This year, quarantine happened and after a while the government started allowing people out for walks and exercise. This change to the lockdown brought so much relief to most people, but not to me because I can’t just go out for a run. I can’t just walk down loads of steps to the beach and then back up them, because if I do, I have to accept that I might injure myself. I might put myself in a wheelchair.

This is where we get back to how complicated disability is, because many of my readers have seen me in person and have seen me walk plenty of times. I can walk short distances, and I’ve been known to dance for hours on a night out, but sometimes it’s just luck that I don’t end up with a blister after doing these things. I’m a seasoned professional when it comes to internalising my worries and pushing my disability as far as it can go. I’m stubborn and I’m young, and I don’t see why all my friends can but I can’t. Like I said, it’s a constant conflict.

But I don’t write these blogs to be all ‘woe is me’. Loads of people have it so much worse than I do, and everyone does the best with what they’ve got. It’s just that if I’m going to write blogs about when I feel empowered by being a young disabled woman, then I have to show you the side of my condition which gives me no joy whatsoever.

Some days I just don’t want to be this disabled person. It makes me feel weak and suffocated. I don’t want to have to think about whether I can go somewhere, I want to be able to just go. Sometimes I look at my feet and wonder how it’s fair that I have to be the only person I know who can’t just wear normal shoes and have normal legs. I wonder how it’s fair that I’ll have this for the rest of my life, and how I’m supposed to get over it when there’s nothing I, or anyone else can do to ever improve it.

There are no solutions to these problems. Life doesn’t work in ‘fair’ and ‘unfair’ – especially when I don’t believe in any type of God. As far as I can see, random people get random sacks of sh** to deal with, and we move. I have a really good time even with the headache of my Spina Bifida, and it’s shaped me in so many positive ways. To be honest, if someone told me that I could flick a switch to get rid of it I’m not even sure that I would. Disability can enrich a person’s perspective on the world and life in many ways, but I’d never, ever, wish it on anyone.

Not feeling it

Not feeling it

Until yesterday, I wasn’t going to write a mid-week blog. Mostly because I’ve spent so much time with myself these past 52 days. 52 days man: I’ve not been outside in almost 2 months. (!) In fact, I have absolutely no clue what the country I’ve been living in for that time even looks like. If it’s past the view from the windows, then I’ve never seen it.

So the routine of my week kind of revolves around writing blogs now. But I’m only any good at this when I’ve got something to say, and how can I have anything to say when I don’t do anything? I’m trying to write down the things I talk about in my head, but I’m soooooo bored of hearing that little voice blabbering on all the time. I’d kinda like to hear someone else for a bit.

Lol didn’t manage it though, did I? Here we are, reading another instalment of that little voice’s monologue… ah well.

Quarantine has been a serious strain on the mental well-being of my parents and I. We never argue and we get along uncharacteristically well, so generally speaking we’re totally fine. We have a laugh and our issues are never with each other. But human beings aren’t built to be locked inside for months on end; it doesn’t matter how much they like each other.

Thankfully, me, my mum and my dad have somehow managed to alternate our breakdowns so none of us have been miserable at the same time so far. It’s not every day but every now and then, it just hits you. And whoever isn’t feeling like jumping out of the window on that day, gets the job of comforting whoever does. Lots of hugs, loud music, drunken dancing on the balcony, crisps and chocolate, Blue Planet, Judy Garland, sarcastic jokes. You know, usual family stuff.

But what I’m trying to get at in this blog, is that if you’re waking up some days feeling absolutely miserable then that’s a totally valid feeling to have right now. It’s a completely mad, upsetting time. It doesn’t matter how lovely your house is, or how amazing the people you’re locked in with are, sometimes you just can’t face another day doing the same thing, in the same rooms, surrounded by the same people, with no idea of when you’ll all be able to do something else.

I could end this with ‘hey, it’s mostly not that bad, let’s not dwell’ – a very true point. But there’s a lot to be said for allowing yourself a minute to just listen to some maungy music and bask in how crap you feel. You don’t always have to rationalise things; sometimes you just feel rubbish. And we’ve been stuck in the house for weeks with no prospect of an end date, in a world where the only news story seems to be how many people are dying. So if that isn’t an excuse to feel sad for a day, then I don’t know what is.

Xx