Question 1

Question 1

We all know that horrible (kind of exciting) feeling when you see someone, think they’re fit, and you want to go up to them but don’t really know what to do once you get there. And normally, I’m pretty clumsy about it: I’m probably too loud and giddy, or too flirty or too subtle and then I spend hours after the time I saw the boy thinking about how I should’ve acted, or what I could’ve said, hating on what I actually said…it’s just a big old mess to be honest hahahah.

So I wanted to know, whether the boys us girls are embarrassing ourselves in front of, feel the same way in this situation…

And oh my god they do.

The overriding feeling coming from the answers I received though, was that they’d rather not feel like they have to make the first move. And I don’t blame them. We all know that this is a pretty toxic expectation of our society, but it’s also not an easy one to change. For example, I wrote an entire blog on how when I’ve made the first move it’s often made me seem like a slut…so…

But unfortunately, this huge pressure on young men has made some of them ‘not even bother’ because they ‘don’t know how’. Some boasted confidence with comments such as ‘I don’t approach, I get approached ;)’ but then went on to talk about how terrified they are of rejection. Not only that, they’re extra frightened that other people will ‘find out’ about it. And they’re especially wary of girls and their friendship groups because as they said, ‘once the girl hates you, so do all of her friends’. (*not always true, but fair assumption*)

Many were frightened of ‘having the piss taken out of them’. Or not being able to ‘come up with the most interesting conversation starter possible’. They don’t want ’embarrassing stories’ made up about them ‘failing’. And nobody wants the ‘reputation’ of always being the guy to ask lots of people out because then they look like a ‘f***boy’ and that’s not going to help them much either. Others also spoke about fears of ‘coming on too strong’, or seeming ‘creepy’ and accidentally ‘making the girl feel uncomfortable’.

So first of all, I’d just like to say that the fact all of these things are even thoughts going through your heads means that you’ve all got very little to worry about. You’re clearly decent, considerate, lovely people. A fact I already knew. Still I recognise, that my saying that won’t make the paranoia disappear.

Clearly, many of these boys don’t want to be that hyper-masculine, pushy version of a ‘man’, but they’re also not that comfortable with being the opposite. They fear that if they go in completely the other direction, they might be deemed a ‘coward’, ‘too quiet’, or just plain ‘awkward’. And finding that middle ground is difficult to do when you’re only 20.

It would also be entirely futile for me to respond to them and say ‘just be yourself’, ‘just relax’, or ‘try not to overthink it’. Since telling someone to relax in this situation is about as helpful as ‘where’d you leave it?’ when you’ve lost something.

But if these boys will allow me to give them a little piece of advice, since I’m part of the gender many of them are trying to pull, I’d say that awkward is not a deal-breaker. It’s not ideal, but it’s not a deal-breaker. Pushy and rude is a deal-breaker. So defo lean more towards awkward.

It’s completely unfair and pointless that we still have this social standard where boys are expected to make the first move. So I want to end this blog by making a request to all the girls reading this: do us all a favour and just risk it sometimes. If boys can be brave enough to put their egos on the line when they find someone attractive, then so can we. We’re all going to suffer some blows and experience rejection. It never feels great, but you don’t die either.

So f*** it: ask him out.

Sometimes I’m in a wheelchair

Sometimes I’m in a wheelchair

Occasionally I develop a problem with my feet, and it can be as small as a blister or a cut but it almost always becomes infected. I can’t walk on it until it heals, and *POOF*: I’m in a wheelchair.

So…what’s that like?

Well obviously it differs from person to person. It’s also pretty impossible to generalise ‘a normal day’ of having an infection for me because: how did it happen? do I have the correct footwear? do I have enough footwear? am I at school? am I at home? am I at University? is it the holidays? am I still growing? have I just had an operation?- the list goes on.

Now is the longest time I’ve gone without using a wheelchair because I’m able to just avoid it since I don’t have school anymore. But so I can paint a picture for you, this is how it was during my last experience when I was 15 and I stayed in that bloody thing for 6 months:

I’d wake up, check my foot, take the bandage off and see what level of infected I was that day. Then I’d crawl into the bathroom – I can’t hop, my balance is non-existent lol. I’d do some next-level spider-man moves to get into the shower without allowing my infected foot to touch any surface, then I’d get washed. Finished, I’d have to carefully dry around the wound and make sure to not damage it further. Next, I’d have to dress my foot.

So I’d take out my medical kit, with all the specific products my feet require. I’d make a perfect bandage, ensuring that there were no creases in the entire thing because creases mean blisters and blisters are not my friend. It’s also important to mention that I don’t have any feeling in my feet, so infections don’t hurt: I recognise when my foot is infected simply by looking at it. So these bandages have to be perfect because the second I put my sock on, I’ve got no idea what’s kicking off down there.

NEXT, I’d have to get changed without accidentally catching the bandage on my clothes, or making it roll up once I put my sock on. Whenever it did catch or roll up, I’d have to start again. Then I’d slide down the stairs on my bum; hopping around the house using my zimmer-frame. (That’s right, I used to have a zimmer-frame, I’m cool.) My dad would bring my wheelchair into the kitchen and after my breakfast, I’d strap in. Once at school he’d push me to my friends and I became their responsibility for the day.

At every point in my life, all of my friends have become friends with me whilst I’m physically independent. So we’ve never started off with them being used to, or knowing what it’s like, for me to be in a wheelchair. Thus being in my wheelchair doesn’t just change my life, it changes the relationships my friends and family have with me.

Thankfully, my pals were mostly brilliant and loved the novelty of pushing me around. But we were children. So there were times when they were accidentally really unsympathetic or insensitive because they just didn’t know what it was like. Plus, they knew me out of the chair, so were used to me doing things for myself. This meant that sometimes they forgot that I wasn’t asking them to go and get me food, or to push me to the bathroom just to be annoying: I was asking because for that period of time, I couldn’t do it for myself.

And they also didn’t realise just how humiliating it felt for me to have to ask them to do these things. Even though I physically felt fine, since I never have any pain, all of a sudden I was overwhelmingly dependent on other people.

I’ve chosen to live a life where most of the time I’m so independent that I don’t seem disabled at all. And that has meant that in those moments when my Spina Bifida catches up with me, and all the actions I take behind closed doors to monitor it come into full view for the rest of the world, it’s just really hard to navigate.

It’s easy to say ‘I’m in a wheelchair, so everyone should be sensitive to that and help me with whatever I need’, but people are people, and you can’t tell them how they should or shouldn’t be. You can ask for help, but you can’t also expect them to fully comprehend something they’ve never had to experience before.

This is a part of my life that very few will ever know the full scope of because ultimately my disability is mine to deal with – not anyone else’s. My family and friends have always done their best to support me when I’m in my wheelchair, and their best is more than enough. And thankfully, being in a wheelchair is not a reality that I have to live in very often – but it does still happen. And even when it does I try and stay as chirpy as I am normally, because why make my frustration worse by spreading it?

After all, I’m one of the lucky ones: at least I always get back out of the chair.

We all feel like a sea cucumber sometimes

We all feel like a sea cucumber sometimes

I think that loving your body and the way it looks every single day is impossible. But don’t worry, I don’t mean this as a massive downer, or some precursor to a hugely self-deprecating blog: relax.

I just mean it in the sense that having insecurities, and waking up some mornings thinking you look about as attractive as a sea cucumber (those things are not pretty, don’t try and tell me that they are), is not the end of the world. Insecurities are normal and healthy, as long as you don’t let them overwhelm you.

For me, the things I don’t love about my body are largely based around how I think I look when I move. I just don’t like the idea that my disability causes me to have a limp or is accentuated when I walk. This doesn’t mean that I think it’s a big deal when other disabled people have a limp, it just means that somewhere in my head, I feel insecure about whether I might have one. Does that make sense?

You might read that and think: ‘no, that doesn’t make sense, why be bothered by such a minor thing? Plus, you are disabled, so if you did have a limp then it’d make sense and not be a big deal’. But that’s how insecurities work: I tell you what I don’t like about myself, you say you barely even noticed, that you don’t care and think that I shouldn’t either, I thank you, feel better for a second, but still duck my head before I see my legs reflected in shop windows.

So where do we go from there?

Well, what’s clear is that businesses prosper when people don’t feel good about themselves: that’s part of the reason we buy things. We’re also addicted to scrolling through social media and looking at examples of ‘perfect people’ in ‘perfect places’ with ‘perfect lives’. Basically, we like to see what’s beautiful.

So obviously a huge remedy to our insecurities would be to recognise that what we see on social media is a fragment of the truth, but we know this already. And obviously we need more varied representation of body types in the media, but it’s also impossible to represent everyone because each individual human is different – and there are a lot of us. So in all of this, we haven’t really been able to solve the problem…

And that’s because there simply isn’t a quick, one-step solution to getting rid of all of our insecurities. Humans will always find flaws in how we look because improvement, jealousy and seeking perfection are just in our nature.

But something that we can definitely try to do, is not let our insecurities consume us. By all means, feel it, and even wallow in it for a minute, but don’t let what you don’t like about yourself be the only thing you think about. You know you won’t like how you feel after thinking about it, so why waste your time like that?

We all have to become more aware of how we treat ourselves, so if you’re looking for a one-sentence piece of advice on how to do that, I guess all I can say is:

just don’t be a b****.

International Women’s Day

International Women’s Day

In the spirit of International Women’s Day, I thought I’d dedicate a blog to all the strong women out there in the world. So to all my male readers: I’d really like you to read this one.

It’s no secret that I adore men. I grew up in a male-dominated household and will always have a huge part of me which craves attention and friendships with men. So that makes it even more infuriating when I speak about the struggles I face as a female in this world, and people think I’m attacking men. I’m not attacking men by being a feminist, I’m asking them to agree that we’re equal: I’m asking them to love and respect women, as much as I love and respect them.

Sexism is a word that has become trivialised and made into a joke. Feminism is brushed off as ‘crazy’ women growing out their armpit hairs, burning bras and hating men. But sexism exists everywhere, and feminism literally just means that the sexes should be equal – one shouldn’t be perceived as superior to the other. So, if you don’t identify as a feminist then you think that women aren’t entitled to the same rights and respect as men – and if you think that, then seriously, what century are you living in?

No matter your gender, you’ll face various struggles and moments of prejudice in your life – but objectively speaking, you’re already lagging behind if you’ve come into this world as a woman.

We have so many things we have to rail against when it comes to just existing: our bodies, our minds, our emotions, our successes, our failures, our opinions, our desires, our words, our clothes, are all subject to scrutiny and judgement on a day to day basis. And the fact of it is, if we were seen as equal to men in all respects, then every single human on the planet would benefit.

Just think about it: if women weren’t ridiculed for being over-emotional, then would it be so taboo for men to talk about their feelings? If women weren’t objectified sexually and encouraged to be passive, then would men always have to be strong and dominant? If both of the sexes were treated as equals, then how much time and energy would we save on not having to have this conversation over and over?

I’m 20 years old and I’m already bored of it; I can only imagine just how bored women and men who’ve been feminists for years are by now. However, regardless of the obstacles I face living as a young woman, I will always be proud of my gender.

I was lucky to grow up in a household where both of my parents chose to raise 4 feminists: 3 boys and 1 girl. If anything, my brothers got the most attention when it came to that because my parents knew that raising a feminist daughter was important, but not as important as raising feminist sons. No matter what I do, or how proud I am to be a woman, my gender dictates how much respect I’ll receive in the wider world. In order for the genders to be treated equally, unfortunately it’s the men who have to make the most noise: they’re already more likely to be listened to.

So when you see things talking about ‘International Women’s Day’ or ‘Feminism’, they’re not just directed at the women. Women AND men should love, respect and celebrate each other as much as possible, then maybe we’ll get somewhere.

Let’s affect some change boys, and trust me once we’ve done it, we’ll all feel better for it. But can we do it quickly please? I’m getting kinda antsy over here.

Xx

Can you be hot AND disabled?

Can you be hot AND disabled?

On Monday I had some really gratifying conversations with my group of friends. All the points we made and discussed, are points that I want to write about in future blogs but one in particular sparked this entry.

For a while I’ve been wanting to discuss what it’s like to be disabled in the dating world, but I’ve never really known how to articulate it. The truth is: I find it really unfortunate just how much it probably does affect how I’m perceived by boys, because it’s something about myself that I absolutely cannot control.

When my friend asked me whether I think my disability affects my dating life, my immediate answer was: yes, but I don’t think that anyone ever told me. My response may come as a surprise because as I’ve said before, I’m aware that once someone spends time with me, it’s very easy to forget that I’m disabled.

The thing is though, no matter how confident or independent or self-sufficient I am, I will always be disabled and will always have to live my life with certain adaptations for my health. When people get into a romantic relationship with someone, everyone has some preconceived idea about what it’s going to be like. These preconceptions come from all the popular culture and media we consume on a day to day basis – and have done for years. But very rarely does that popular culture include examples of relationships where one person is physically disabled and the other is not.

In the past year, I’ve gotten particularly impatient with my failed attempts at romance – as you’ve probably noticed hehe. Whenever one has failed, like most people I find myself looking for reassurance that sometimes it can work out. So I look around me, and at the media. But never ever ever ever do I see myself reflected in the relationships shown. I don’t often see couples on the street where one of the two is disabled. I definitely barely see it on Instagram. And I’m not sure that I’ve ever seen a famous person with a physically disabled partner walk a red carpet.

If I have seen a couple like this in the media or popular culture, it’s often felt tokenistic. By this I mean, in television programmes or Snapchat ‘Born Different’ stories it’s examples of severely disabled people and their partners. Whilst it’s (rightfully) always a celebration of those love stories, I still don’t feel represented or particularly comforted by them. And with that, the disability always seems to overwhelm everything else that makes that person attractive. Can you not be hot and disabled? Can that not be a thing too?

I don’t feel disabled enough to relate to those permanently in a wheelchair or with more severe illnesses than I. But then I’m still disabled, so I can’t fully relate to anyone who isn’t.

Since we don’t see examples of couples where one person is (not severely) physically disabled, subconsciously that plays a part in how we date. I’m not trying to say that it makes someone a bad person for not finding someone with a disability attractive, because that might not even play a part in how you feel about them. But then again, the intimidation which might come with how little you can relate to that part of someone’s life and the degree to which you feel prepared to try, might well shape your decision about dating someone.

Explaining what it’s like to be disabled to someone who has no idea, is an impossible task because no matter how hard they try, they just can’t access that type of human experience. So that’s obviously going to be intimidating when dating someone because you literally canNOT connect with them on such a huge level. And that might not be what you want. I totally get it.

In light of this, this blog is not meant to be a guilt-trip; I understand why people might do what they do – both consciously and subconsciously – when it comes to dating. Obviously I’d love to feel more represented, and to feel that my disability 100% doesn’t affect my dating life, but I can’t change the world overnight with my ramblings.

What is important, is that you know that just because someone has an issue that you know nothing about, that that doesn’t then mean that you would be useless at helping them with it. Disability needs to be more visible and in all honesty, we need to see more relationships in the public eye where a disabled person has an ‘able’ partner.

The day I see someone ridiculously famous walk a red carpet hand in hand with their physically disabled boyfriend/girlfriend, I think I might actually shed a tear.

Just an idea

Just an idea

Let’s talk about why we live in a society where we’re made to feel like if we ask someone out, and they’re not keen, that that is the worst humiliation that anyone could ever suffer. Because as I’m growing up, I’m beginning to realise that it’s really not that deep, and that we need to stop causing ourselves so much grief about it.

Obviously, getting rejected never makes you feel great, and sometimes it can really hurt. But does that short-lived disappointment really warrant never asking anyone out? Especially since if you do it early on in your infatuation for someone, and they shut you down, then you haven’t involved your feelings as much as you would’ve weeks/months/years down the line. It then follows (in my eyes) that everyone should maybe just get it off of their chests pretty quickly, before it escalates and feelings get super carried away…

Saying that, I’ve always been really timid when it comes to telling boys that I find them attractive or like them in a romantic way. In most parts of my personality, I’m pretty confident and fearless but for some reason – whether that be due to my own insecurities, or those triggered by popular culture- I’m shy with expressing how I feel to boys.

But then why should it always be the boys’ duty to make the first move? It’s common sense that they’ll feel just as shy or scared as girls in this context, so why continue the sexist trope of waiting for them to kick things off?

It’s literally only been in the last year that I’ve started to have moments of exasperation where I think: ‘why am I sitting around, dropping hints, being shy and wasting my time waiting for him to say something? Why don’t I just put what I’m thinking out there, and he can either take it or leave it?’

Yes, it’s not easy and yes it takes a lot of courage to say how you feel when you have no idea whether the other person feels the same way. But let’s be honest: is there really any point in making yourself suffer the stress of not knowing, when you could just rip the plaster off and ask?

So what if they say no? At least you know and can stop sitting there wondering…

I’m a total sucker for playing the flirting game, and I’m really not experienced in romantic relationships at all – so my word on these subjects is definitely not gospel. However, my conclusion from observing those around me is that the whole tip-toeing around the subject is pretty tedious and causes more grief than its worth.

So whatever your gender, if you like someone, just let them know. The worst case is that they reject you and you’re upset for a bit, but now you know that there’s no point pursuing it anymore. A vital comment to make here, is that the rejection shouldn’t and doesn’t take anything away from you! If they don’t like you like that, or if they’re messing you about, then forget about it: you don’t need the headache.

But then the best case scenario is that they say yes and when that outcome happens, you’ll be so glad you had the courage to be honest about how you feel.

So just do what I did when I was searching for my first job aged 16, and tell yourself: ‘well someone has to say yes at some point’. (Granted, that comment was laced with sarcasm and annoyance at the time, but it’s still a relevant point to make).

When I write these entries sometimes I inadvertently end up giving advice, but it’s important to note that what I say isn’t always reflective of how I act. That isn’t to say that I’m being a hypocrite, it’s just that whilst I like to show my vulnerabilities and flaws, occasionally my aim is to speak how I want to be and how I think I should be into existence. It doesn’t always work, but then sometimes it does.

Regardless of whether I’m saying how I am or how I want to be, I hope that after you read whatever thoughts I have, that we can both take something positive from it.

As always, thanks for reading this far.

Xx

Chill out mate

Chill out mate

Thankfully this week was a lot nicer, and a lot less stressful than the last.

My last blog was obviously a huge rant, but it might surprise you to know that after writing it, the situation didn’t bother me much. Instances such as the one with that delightful traffic warden aren’t that big of a deal for me because they kind of happen all the time. That being said, it’s never a highlight.

I’m pretty sure that the main contributor to my terrible week was just being ill, and it’s only when the illness leaves that you can realise just how much being full of cold can mess with your state of mind. Already feeling run-down, I was just overwhelmed by everything piling on top of me.

For years now I’ve been so excited about going to University and what it would bring to my life. Plus, I’ve always been pretty independent and self-sufficient so I thought that I would be absolutely fine once I actually moved. And all in all, I am absolutely fine and love it. But I do think that there’s a lot to be said for just how difficult starting University really is.

Not only have I moved to a totally new place, but I’m experiencing so many more pressures than I could have ever envisaged. One of the most stress-inducing being the academic pressures of my course. I mean I’m taking a degree in a language that I’ve never had any exposure to, and I really really struggle with not being good at something. First world problems, I know.

I’ve been telling myself that I’m really bad at Japanese when I stumble over translation or spontaneous speech, and have already cried in frustration at least a handful of times. But in these moments all I’m thinking about is why I can’t remember everything straight away, and I really beat myself up about it. But Japanese isn’t like French, and I need to fully accept that I’m not going to get it straight away, because on a base level: it’s just proper difficult.

I like to think that I’m a pretty self-aware person, so whenever I’m having these explosions of stress and exhaustion I know exactly what to attribute it to. I know when I’m tired, or stressed, or upset about some boy, or am emotionally volatile because I’m ill or on my period, or am missing home. I know that I work really hard, and that it’s okay for me to not understand everything straight away. But no matter how self-aware I am about why I’m being a cry baby, I also know just how stubborn I am.

It’s obvious that I need to not beat myself up about things, but it’s also really clear to me that I always will: I’m just wired that way. People talk a lot about bettering themselves in some sort of self-care scheme, and those schemes are clearly very worthwhile in many instances. But I also think that people should probably talk a little bit more about the parts of themselves that they don’t necessarily like, know aren’t good for them, but know are parts that they could never get rid of.

If I removed my strive for perfection and work ethic, then I just wouldn’t work as hard. And yes, sometimes I wouldn’t be as exhausted or as emotionally wound-up, but I’d also be bored out of my mind because I wouldn’t be doing anything. You can’t really have one without the other.

Plus, this intense part of my personality doesn’t just pop up when I’m in academic settings, it rears its head in my relationships with people. I just care a lot about everything.

I try really hard to always be kind and loving to those around me. Yes, sometimes it ends in unfortunate emotions, but most of the time it helps me to be surrounded by incredible people. And luckily, some of those people are there for the times when I get overwhelmed and just need someone to rant to, give me a big hug and tell me to stop being dumb. *shout-out for Richard last week, thanks buddy xo*

Sometimes I’m stupidly mean to myself…and I should try to not waste my energy like that.

Walk it

Walk it

So here I am: it’s Tuesday, I’m full of whatever illness my friends at college have gifted me and I’ve somehow been bothered to make it to my 2 hour Korean lesson. The day’s going well. (This blog is going to be pretty emotionally-charged by the way: strap in).

What I didn’t need added to my day, was some old, male, traffic warden peering through my windscreen whilst I was STILL IN MY CAR, to check if my disabled badge was a fraud. For the record, it’s weird and intimidating to have a stranger looking inside your car whilst you’re still in there. But the core of my annoyance, was the fact that I’m sick and tired of the disabled parking bays situation.

Now, if you aren’t disabled, or don’t have any close relatives or friends who are, then you might be thinking: what situation? Is there even a situation?

Well, my dear reader, yes there bloody well is a situation. And it’s one that has made my parents furious for years before me, but now I also have the joy of being angered by it too. Lucky me!

So it’s simple, right? You go to any public space and most of the time there are parking bays with bright yellow hatching, and the universally recognised symbol for disability. Everyone knows that that then marks those parking bays as exclusively for people who need it i.e. ones who own a blue badge issued by the government, indicating that they’re legally recognised as disabled. I won’t go too into it now, but trust me when I say that you don’t just get that badge. You have to undergo what is in my experience, an insanely gruelling, somewhat traumatising process so as to be recognised by the government as ‘eligible’ for it. But I’ll write a blog detailing that process another day- look forward to that one, it’s a corker.

Anyway: you need a disabled badge to park in the space closest to the destination, seen as it’s predominantly the people who’re disabled who’re unable to access things and places easily. Surprise!

Why is it then that when my dad dropped me off at Secondary school, on average only 2 out of about 8 disabled bays had cars with blue badges in them? One of which was my dad’s car. With my badge. I’d also like to add the information that my school was attached to a Special Needs school: attended by children with severe disabilities, whose parents probably needed to use those parking spaces when picking them up.

Why is it that this also happens every time I go to a supermarket, a shop, or just anywhere really? Why did I have to ask the receptionist at my University college today – a college which prides itself on diversity and acceptance – to ask the woman who uses a bay every week and doesn’t display a badge, to please park somewhere else?

You might wonder why this is so offensive to me. Or, like the traffic warden, think me ‘silly’ for even being offended by it. (His patronising choice of words really added to the moment, I must say).

It’s offensive because when people park in these spaces, they’re not thinking of how insanely immoral and unfair what they’re doing is. Those spaces are for people who literally need them. People who can’t walk that extra few steps to the building. People who need equipment to move and to live. People who have in recent years had to fight so hard, just to be deemed ‘eligible’ by the government for things that they need to survive.

If you park in those bays when you don’t need to, then you’re depriving a disabled person of their right to get on with their life and to be independent. I’m not always in a wheelchair, and on the surface it appears that I walk pretty well, but if I can’t park in those bays then I might have to walk a distance which will cause me to develop an infection, and to go in a wheelchair for months on end. So if that’s what’s at stake for me, then think about the people who’re wheelchair bound and what that space might mean to them.

Again, this might sound like an overreaction, but trust me when I say that it’s not.

It’s not just the walking distance, it’s also the backlash that comes from people abusing those spaces. Namely, the fact that it creates a culture of doubt. If those spaces were respected, then I wouldn’t have had some old man looking into my car to see if I was lying today. I wouldn’t have had him looking me in the eyes in disbelief as to why I was asking him not to do that. He told me that he was checking the disabled badge ‘for’ me: to ‘help’ me. I obviously understand why he checks, but I resent the fact that he thought I would lie.

So I appeal to you, to think about your actions and to just park somewhere else. Just walk those extra steps. Not just because you have the physical ability to do it, but also because I would never ask for something that I don’t need. I don’t abuse the system, in fact I probably don’t use it enough. But I need to park there. And I’m tired of defending my right to that space.

2019

2019

2019 has been the most influential year of my life, and it’s one that I’ll remember until I’m an old disabled lady, sitting in a comfy bed, complaining about the state of young people and their antics. Though, I kind of hope that I won’t do that last bit…unless it’s ironically…

Nepal was my first insight into what absolute bliss feels like. My favourite memory (of many) is sitting in a small pagoda in front of the monastery, on the side of a mountain, hidden by the jungle, as the sun was setting. I remember stroking the puppy sitting on my knee, 4 other dogs at my feet, and listening to the children singing their prayer in the temple to the background noise of all the other wildlife. I’m not religious at all, and I’m not really a spiritual person, but in that moment I completely understood why those monks chose to spend their lives in spaces such as that, away from the noise of the modern world. And no, I didn’t record it, since no recording on any device would’ve been able to capture it- but it’s always going to be in my head.

South Korea re-ignited my love for the Far East, and showed me that I can manage my disability on that side of the planet after all. The biggest indicator of this being the fact that I successfully spoke (broken) Korean in A&E of a hospital in Seoul, got myself some antibiotics, and didn’t have to fly home immediately. Oh, and I went on a date with a Korean policeman. Good times.

Fiji was the hardest of my trips. I had some points of bliss like Nepal – the most notable being singing to myself on a private island whilst washing dishes in the pacific ocean. It might not sound as sublime as how I described the scene in Nepal, but I liked the simplicity of it and I love the ocean, so it was perfect to me. But, I didn’t like all of my experiences in Fiji so I learnt how important, and possible, it is to make the best out of a disappointing situation.

Ukraine worked me harder than any of my travels, and it was some of the most fun I had this year. I have so many memories from those 2 months that it’d be too hard to pick a favourite. What that time taught me more than anything, was that I lOve people, and that I need to keep making friends from all over the world. As one of my wonderful American pals put it when we realised that we didn’t know when or if we’d have the chance to see each other again, I love knowing that you all exist somewhere in the world. I hope that you keep making people smile as much as you made me smile for those 2 months in the middle of the Carpathian Mountains.

This year I realised so much about myself and others whilst being in different countries, that when I came back I was able to appreciate everything in my native country so much more. To me, the Yorkshire hills are as beautiful as the Nepali mountains and the safety of being with people I’ve known forever, is just what I needed after all that newness. (That is a word btw, google it).

But overall, 2019 has taught me just how much I want to know about the world and everything in it. So I hope that the next 12 months bring me as many adventures as the last, and that next year’s post has as many happy memories in it as this one.

Eyes up here please

Eyes up here please

When I write or talk about my disability, I have to remind myself that the tiny things I experience are not also a part of everyone else’s day-to-day. So this Sunday, I’m going to tell you about one part of my life which may surprise you, though it seems tediously normal to me.

To put it simply: I can’t step out of the house without someone staring at my shoes. For instance, just the other day I was walking in my college at University and one of my fellow St Aidanites walked past me. She stared at my shoes for the entire time we were passing each other – a good 15 seconds – and at no point did she take the time to tear here eyes away from my feet to look me in the eye. Now. People. I get it. Often when you see my shoes it’s the first time you’ve seen anything like them in your life. But come on. Is it really that exciting? Did your parents never teach you that it’s rude to stare? Plus, the object of her amazement was literally just leather boots with some metals bars coming slightly up my legs. Wowee 😮

Growing up I became so used to people staring at my shoes and not looking in my eyes that I was sort of numb to it: on the street, on a bus, in a museum, at the cinema, at school, at the park, with my brothers, with my friends, on my own – you name a time and a situation, someone was probably having a look. Amazingly, I can’t remember ever really being phased by it as a little girl. But then I got older, and I got angry.

A particularly memorable experience is when I was 12 years old and I went to a shopping centre with my family. I was standing on my own in a queue for some food, when I saw a middle-aged woman abandon what she was doing just to gawk at my boots. She literally stopped in the middle of the floor and just stood there looking. I’m not even exaggerating. I was furious and humiliated, so I crouched down to make her realise that there was a person (a child) wearing those shoes who could see exactly what she was doing. She didn’t apologise after she realised I’d seen her, she just walked away. I’ve had more instances like this than I care to remember; with some days gifting me more than one.

Fortunately it’s not always like this. Very rarely, I’m made speechless when someone sincerely says that they like my shoes. Like! The first time in my life someone did this was when I was walking up the stairs at school, aged 17, and a supply teacher said ‘Nice shoes’ to me as he walked past. I stopped dead in my tracks with my mouth wide open, mumbled a stunned ‘thank you’ and watched him walk away. In all honesty I was ready to pounce because I thought he was taking the mick, but I realised that he wasn’t: he actually meant it. So I legged it into my common room and still in disbelief, told my friends about what had just happened. That was the first positive comment I’d ever gotten about my shoes from a stranger, and to this day, that’s only happened a handful of times.

Now that I’m older, somehow I don’t really care about my shoes or the stares. Although if you catch me on a bad/insecure day and I see you staring, then I will hate your guts for a second. Regardless of my mood though, I’ll always at least notice it.

I know that people stare because my shoes and my disability are probably things that they’ve never seen before. So if that then means that I have to be the one to watch you gawk at me like an object for a few seconds, so that you won’t do it to the next disabled person you see then that’s fine, I can take it. Just remember that whatever you’re staring at is being worn by someone, with feelings, and eyes to see you too.