psychology – An Indelible Friend

You know, it’s come to my attention that sometimes I’m not very kind to myself. And I’ve also just realised that that was a really deep way to start a blog… 🙂

Over the last decade or so, it’s become very fashionable for people to recognise when they’re being really hard on themselves and to rectify those moments. We start to do yoga, we meditate, we go on holiday (lol, imagine), we buy an adult colouring book, we have a good cry, we talk to each other. But still, no matter how self-aware we are, and no matter how many affirmations we say to ourselves in the mirror – although, I’ll be honest and say that I’ve never personally tried the talking to yourself method…seems a bit intense to me, but anyway – humans still don’t seem able to escape from those self-criticism shackles.

I was speaking recently with one of my housemates about this and we both noted that for each of us, part of growing up has been coming to terms with who we are: the good and the bad. Generally, I’m very comfortable in who I am and I like to think that I’m a pretty decent human being, but I know that every trait I really like about myself does have a side effect. For example, when I care about things I really care about them: I work really hard for it, I’ll spend hours on it, I’ll do everything I can to make it work – whether that be a friendship or my degree. However, the flip-side of that is that if I can’t control it and if something goes wrong, I lose my shit. I pin part of my self-worth on the success of that one thing, and if it fails then I get angry and I’ll probably end up sobbing until my eyes swell-up and the colour of my skin resembles Clifford the Big Red Dog. It’s intense.

Another thing I like about myself is that I’m pretty good at rationalising situations: I can be objective, and am decent at understanding why I’m feeling the way I do. Still, my overactive brain is very skilled in ignoring and doubting my own rationalisations, so I’m also pretty bad at practicing what I preach. Therefore, sometimes when I write a blog and I’m able to give what I hope is decent, pragmatic advice, that’s me writing a love letter to myself. Obviously, I’d love to always be as calm and measured as I can make myself out to be, but these words are carefully considered and they’re not always a reflection of my actions. But then, do any of us always follow the advice we give to our friends? Probably not. Do we know that we should? Yep. So why don’t we? Fuck knows.

I suppose I’m saying this because the more blogs I write, and the more advice I inadvertently give, the more I realise that I’m setting myself up for a fall when my friends see what I do and say ‘do I have to send you your own blog?’. (Which, though cutting, is always kind of hilarious when it happens.)

These blogs are the times when the rational part of my brain is able to take over and make sense of everything; to try and keep my anxieties and insecurities at bay. But, in this age of crafted opinions and convenient omissions, I’d like to make the disclaimer that I’m 21 years old and whilst I may know something is the right thing to do, that unfortunately doesn’t mean that I’ll always do it. What’s important, is that we each at least try to take care of ourselves as much as we can, and that we identify when we’re not doing such a great job of it. But as Hannah Montana wisely said: everybody makes mistakes, everybody has those days.

Enjoy the sunshine! Xx

For me, disability causes a constant conflict between personality and body. Ever since I was small I’ve struggled to mesh the two together because I’ve never wanted to accept that there are things that I’ll never be able to do. From the age of about 8 until 14 I was awful for it: I’d just do everything that my friends were doing because I wanted to, and I’d rarely give a second thought to my feet. But then I’d end up with infections, and in a wheelchair. So living that way didn’t get me very far.

After about the age of 16 I’d managed to (sort of) make my peace with it. I accepted that I couldn’t ever live my life the way most people could, and I mourned it, but ultimately I realised that those are just the cards I’ve been dealt. I mean, my disability could be so much worse, and what do I gain from fighting it?

Then I was 19 and I had my gap year. I proved to myself that I could travel the world on my own: I went to seriously remote places, away from medical institutions, and showed myself that doing what I want to do doesn’t always have to end in infection and debilitation. It might sound trivial to you, but it was breaking news to me, my family and my doctors.

This year, quarantine happened and after a while the government started allowing people out for walks and exercise. This change to the lockdown brought so much relief to most people, but not to me because I can’t just go out for a run. I can’t just walk down loads of steps to the beach and then back up them, because if I do, I have to accept that I might injure myself. I might put myself in a wheelchair.

This is where we get back to how complicated disability is, because many of my readers have seen me in person and have seen me walk plenty of times. I can walk short distances, and I’ve been known to dance for hours on a night out, but sometimes it’s just luck that I don’t end up with a blister after doing these things. I’m a seasoned professional when it comes to internalising my worries and pushing my disability as far as it can go. I’m stubborn and I’m young, and I don’t see why all my friends can but I can’t. Like I said, it’s a constant conflict.

But I don’t write these blogs to be all ‘woe is me’. Loads of people have it so much worse than I do, and everyone does the best with what they’ve got. It’s just that if I’m going to write blogs about when I feel empowered by being a young disabled woman, then I have to show you the side of my condition which gives me no joy whatsoever.

Some days I just don’t want to be this disabled person. It makes me feel weak and suffocated. I don’t want to have to think about whether I can go somewhere, I want to be able to just go. Sometimes I look at my feet and wonder how it’s fair that I have to be the only person I know who can’t just wear normal shoes and have normal legs. I wonder how it’s fair that I’ll have this for the rest of my life, and how I’m supposed to get over it when there’s nothing I, or anyone else can do to ever improve it.

There are no solutions to these problems. Life doesn’t work in ‘fair’ and ‘unfair’ – especially when I don’t believe in any type of God. As far as I can see, random people get random sacks of sh** to deal with, and we move. I have a really good time even with the headache of my Spina Bifida, and it’s shaped me in so many positive ways. To be honest, if someone told me that I could flick a switch to get rid of it I’m not even sure that I would. Disability can enrich a person’s perspective on the world and life in many ways, but I’d never, ever, wish it on anyone.

An Indelible Friend

Tag: psychology

Love letters

I want to go for a walk