You’ve gotta stick to your lane

You’ve gotta stick to your lane

I’m the type of person who, in the appropriate situation, would like to look, be, or say something sexy. I’ll go on a night out, spot a wall which looks kind of cool and ask a friend to take a photograph of me in front of it, thinking ‘omg yes this’ll be a good shot’. But then the second the camera starts flashing, I can hold my face for a few seconds before I’ve got absolutely no idea what to do with myself and I end up pulling a stupid face. Orrrrrr, I’ll think I’ve nailed it until my friend hands me back the phone and my figure just hasn’t given what I’d envisioned…so all of the shots head straight to the recycling bin. But it’s not that I’m being consciously self-critical in these moments, it’s just that I don’t think that I give off ‘sexy’ vibes…

By this, I think what I mean is that I don’t see myself as demonstrating a very specific version of femininity associated with models and actresses. I’m visualising the lasses who can take the fire pictures, with the perfect bodies, in the expensive underwear, with the sultry eye contact from across the bar, and the bad bitch vibe where the men come running the second they walk into the room. And even though this expression of femininity is gorgeous, often it’s been constructed in order to make women sexually desirable to men. However, connotations of patriarchy and misogyny aside (very difficult to sweep them aside, but stick with me here), I do still want to be sexy and desirable every now and then – probably even if it comes with a hint of objectification – because in that context it’s on my own terms, but no matter my intentions I just don’t think that I give off that sultry kind of energy.

Hence I wonder, is my slight discomfort with the word a disability thing? Possibly. I mean, for centuries the (physically) disabled body has never been portrayed as sexually desirable, in fact, people have often been encouraged to think of the idea of disabled people having sex as repulsive (if it’s ever thought to happen at all). So yes, that’s probably playing a part in my inner monologue. But I don’t think that that’s the main thing going on here; I think what’s happening is that part of me is assuming that you can only really be ‘sexy’ if others describe you in that way.

We (particularly women) seem to like to categorise ourselves and our friends: at some point, we’ve all decided – actively or passively – who is the ‘cute’ one, the ‘pretty’ one, the ‘funny’ one, the ‘clever’ one, the ‘sexy’ one, and so on and so forth, as if there’s a correct way to be each one of those characteristics. These categories then cement to each of us what we are (and what we’re not), so when we’re described as a word that’s outside of our lane, we assume that a mistake’s been made i.e., I’ve never been the ‘sexy’ one in any friendship group, so that’s probably why I don’t see myself in that light.

So even though I’ve never ended a blog with a homework task, get ready! Because this week I’d like to ask that you consider whether there’s a word (or words) you’ve told yourself you could never be. Then, if you’ve thought of one, the next time you go to the place or do the thing that allows you the time to be with yourself and have a good old think, I’d like you to consider why you can’t be that thing. Finally, once you’ve (hopefully) come to the conclusion that you’re being silly and should stop putting yourself in a box, stop thinking and go do something fun; that’s enough of the internal monologue for one day. Wouldn’t want to overthink it, now would we? Or did I do that already?…

Well that was a bit silly of me

Well that was a bit silly of me

Okay but, why is it that whenever I get bored, lonely, or horny (or heaven forbid a combination of all three), I think it wise to make some stupid decisions? Something happens in my head where I think that for some reason, a lad who I’m definitely not that interested in not only requires my attention, but he also deserves my stress and occasionally even my tears. I swear to you, if I had a pound for every time I’ve gotten irritated over some romantic situation, where, if I actually took a step back and thought about it, I’d decide I was really not that invested anyway, then I would be a very rich woman right now.

And I know that everyone says this but I promise you, pinky swear and lock it in, I don’t enjoy the unsaid games which happen before you’re in a relationship with someone. I can’t be bothered to wait for ages to text someone back, I don’t care about how long they take to text me back – unless it becomes clear that they’re playing the game, then that does irritate me – but more than anything, I hate how being involved in the game makes me overthink EVERYTHING. And yet, I still do it! Often with people I don’t even like that much! I’m also incredibly picky and very very rarely say yes to going on a date with someone. So am I part of my own problem? Possibly.

I think that part of it is that if you actually sit and think about the efforts a person would have to take to not think, speak about, or see romantic relationships in everyday life then you come to realise that it’s kind of impossible. Every time you turn the television on, it doesn’t matter if it’s reality tv or a drama, odds are there’s a hefty section devoted to finding a relationship, being in one, or leaving one. Then you walk down the street and someone’s being cute with their partner, or there are advertisements suggesting what you should do with your partner, or what you should buy them. Plus, you’re judged if you go out and do things on your own, let alone the lame fact that it’s kind of unsafe for a woman to fly solo in towns and cities once the sun has gone down, so even if you wanted to go for a drink on your own, there’s that little voice in your head wondering whether it’s worth the potential hassle.

Therefore, we’re encouraged to be lonely, we get bored, and if those two weren’t enough, the sex drive comes along to make us momentarily ignore that part of our brains which tells us that something is probably not a great idea. Because maybe it is a good idea for the near future. And it’s not that deep anyway! And they’re interested in me! Or they seem to be… And it’ll make for a fun story to tell everyone tomorrow morning.

I try not to waste time regretting my actions, since I know that if I were put in the situation again, I’d probs do the same thing anyway, but sometimes the embarrassment does find its way into my internal monologues and when it does, you’ve got to flush that shit away like a spider in the bath.

But second-hand embarrassment aside, at least I try to treat people the way I’d like to be treated so it’s not as if I’m out here being a massive cow when I’m making questionable decisions. However, this isn’t the part where I promise never to text someone who I know is only going to play some game and then irritate me by doing that, because ladies and gentlemen, I am silly at times. Buuuutttt, I will congratulate myself for finally being decent at knowing when enough is enough and just deleting the conversation thread. That’s some solid character progression right there. Go me.

Get your kit off!

Get your kit off!

Last week I was sitting with one of my best friends and I asked her how often she looks at herself naked. (Bit of an intense way to start a blog, I know, but I didn’t know how else to kick this topic off lol). I asked her this because we’re all well aware of the level of scrutiny our bodies are under in regards to what size they should be, what shape, what colour, what texture, et cetera et cetera. So, I guess I was just curious about how often my friend stands in front of a mirror and has a look, to then compare it to how often I do the same, especially since the act of looking at your naked skin in broad daylight is one of the most vulnerable things you can do. After all, we might not always like what’s reflected back to us.

My friend’s a total queen though; her response was ‘all the time’ and I said the same – buuuut, I did go on to explain that I don’t spend too many seconds looking at my Spina Bifida lump or my legs in the mirror, so I’ve got room for improvement.

I think that in general, as women, we’re not encouraged to stand with ourselves and get familiar without being critical, so it can be quite unusual to see a woman who is totally comfortable with her naked body. However, I would like to clarify here that by ‘totally comfortable’, I’m not suggesting that there aren’t things you dislike, or would prefer to not look a certain way some days because we’re going for honesty here, not idealism.

One of the best things I ever did for getting comfortable with my own skin was starting to sleep naked every night. I wouldn’t say that before doing that I was ever particularly uncomfortable with my body, but sleeping naked just forces you to see and feel yourself exactly as you are: you get used to your boobs falling in every direction depending on how you’re sitting; you see all the stretch marks and ‘imperfections’ highlighted by the sun when you wake up, and you stop getting a little startled by the image of your naked body first thing in the morning. But overall, sleeping naked allows your skin to breathe and everything feels better after that.

Quick sidenote: I do realise that a lot of my words and descriptions here lean very close to the topic of masturbation, and whilst I’m not really going to go into that much today, I will say: for god’s sake, masturbate! Especially you ladies! It’s good for you! (Literally.) :)))

Many people (especially (British) women) would rather die than speak about topics such as this one, but after being lucky enough to have known women of all shapes and sizes who are so comfortable in their own bodies that they’ll take their kit off at any given opportunity, I’ve never underestimated the power of being proactive in loving your body. Every clothing campaign badgers on about it nowadays – some in a very live laugh love sort of a way (*puke*) – but the human body is truly a remarkably beautiful thing, and even though we’re never going to love ourselves entirely every single minute of every day, making sure that we at least accept ourselves every day does wonders.

Regardless of how we each feel about our own bodies though, we should be careful to never (!) shame another person for being confident in their body just because you wouldn’t do the same. I like to sit/hang around my house in a towel, or my underwear and I’ll put the bin out with ‘just’ a big t-shirt and knickers on; you not doing the same doesn’t mean you love your body any less than I love mine, but it also doesn’t leave room for my body to be sexualised or criticised when all I’m doing is watching TV or putting the recycling out. After all, if you can’t wear as much or as little as you want in your own house, then where can you?

Cover those callipers!

Cover those callipers!

I was seventeen the first time somebody complimented my shoes. I remember, I was walking up the stairs in the secondary school I’d been attending for seven years already, when a new member of staff who I didn’t recognise came in the opposite direction, took one look at my callipers, and said ‘I like your shoes’. I stopped dead on those stairs feeling a mixture of shock, outrage, and confusion because I thought that he was taking the piss and I wasn’t exactly sure how to react to a teacher being blatantly cruel to me, but then I looked at his face I realised that this compliment was genuine; it didn’t come from a place of pity and it wasn’t him trying to wind me up. So I gave him a stunned look, said ‘thank you’, and went to tell my friends about what had just happened.

It’s strange because I know that my reaction to this type of situation implies that I’m insecure about my shoes, but I think to draw that conclusion is too easy. The fact is, that I know I’m physically disabled, I know I have to wear these callipers to correct the positioning of my feet, but wearing these shoes wasn’t a choice I ever got to make; I don’t particularly like the way they look, they mess with the silhouette of my outfits, they draw people’s attention to a part of my body I’d rather not be stared at, and the sight of them can make me be treated very differently. Yet, regardless of how I feel about them, there is absolutely nothing I can do to change whether I wear them. So, it’s not that I’m insecure about my callipers and my disability, it’s that I don’t necessarily enjoy the judgements people make of me when they see them – and I can’t really fathom them looking stylish…

Now I know what many of you might be thinking: if someone judges you because of two metal bars on each of your legs then that’s just their ignorance, it shouldn’t be something which you allow to bother you. Fair point, well made. But what I’ve noticed when speaking to people about this kind of thing, and then going out and existing in the world, is that individuals have absolutely no idea of the difference in how the able-bodied world treats me when they can see my callipers, versus when they can’t.

Let’s take going to the airport for example, since I was at JFK last week. I always wear trousers which cover my shoes when I go to the airport because it’s a place where you’re guaranteed to see a lot of people, you might be tired (maybe a bit stressed), and for me, I always know I’m going to get searched because my shoes will set the metal detector off, so I don’t want my callipers to draw any more attention to me than I’m already going to get. However, this then causes me problems when I ask for disability assistance because without those metal bars, nobody can understand how I could possibly be physically disabled enough to not be able to stand in a queue for 25 minutes; people take one look at me and they assume I’m trying to unjustly weasel my way into a shortcut. So, what do I do? I wear an outfit which shows my callipers just to avoid that hassle, even though I know it’ll mean seeing loads of people staring at them when I’m in precisely the wrong mood? Why should I have to do that?

This feels like a perfect point in the discussion to use the term many of us have seen knocking about on signs next to disabled toilets since the pandemic, and preach that ‘not all disabilities are visible’. But what I find hilarious, is that my disability IS visible! It doesn’t matter what I’m wearing, you can still see the glint of the metal bars at the base of my shoes – god knows people still give any centimetre of calliper a good stare – so I’m not sure that it’s even about how much of my shoes the world can see. I think there’s a problem that people either expect to see disability as consuming the appearance of a person, or not there at all, but if you’re the former then you’re too disabled to be anything other than that, and if you’re the latter, then you’re exaggerating and you’re not disabled enough.

I sit somewhere in between both of those ideas, and it means that a lot of the time, I’ve got no idea what I am so I just do what makes the most sense to me in a given situation. I wear outfits which show my callipers whenever I want and I switch off to the staring, but in the moments when I’d rather everything else about me take precedence over the disability, then I’ll cover them up, even if that comes with expecting to get some shit off of someone at some point – it doesn’t always happen, but it’s highly likely if I’ve covered them and then have to ask someone of authority for a bit of disability assistance. Also, you probably won’t see me going on a date, or meeting new people in an outfit which shows my shoes.

But before I leave you, I want to emphasise that these acts of hiding my callipers aren’t because I’m ashamed of them – I might not actively like how they look, but shame has nothing to do with it – it’s because having a visible physical disability encourages people to focus on it for longer than you might like them to. So even though I have nothing to hide, I hide it to take control of the situation and encourage you to look at and listen to me like you would anyone else, and then you can notice the Spina Bifida later. It’s a double-edged sword though because if I now need to ask for help, if you can’t see my shoes, then you might not believe me…

Tricky, isn’t it?

Graduation, but then what?

Graduation, but then what?

In my head, I think that I’m pretty good at hiding my emotions…but then every time I’m even slightly upset or angry, it usually takes my friends, family, or colleagues about 0.5 seconds to notice. So clearly, I’m slightly deluded. However, whilst it may be true that my overall mood is very easy for others to discern, I am that person who takes on a lot of things and eventually snaps when all of those things have piled up in my head. Then it’s in the moments when I’m close to snapping that my mood goes down, I’m tired, and I’m likely to burst into an ugly cry if anyone hits me with the ‘are you okay?’.

Don’t worry, I’m not about to confess to the internet that I’m in the middle of having an existential crisis…Though I will say that I’ve had a pretty intense last few months which have gifted me both good and bad stress, resulting in a few days when my mood hasn’t been as chirpy as it is normally. And one of these stresses has been something that I know many of my peers are overthinking right now: what the hell are we going to do after graduation?

For me, my graduation from university mostly brings a sense of relief. The last 3 years have been a lot of fun in parts but I’d be lying if I said that I don’t feel ready to leave; I’m tired of being confronted by the same annoying problems brought to me by Durham University, and I ache to leave the education system behind for a second. I mean, I’ve been in it for 17 years! That’s a long time. Granted, I had a year out before university but I did work in 2 schools for 6 months of that…then I taught in 3 of the 4 countries I visited…So no matter how much I know I’ll continue to study something for the rest of my life, I think I’d like to give formal education a rest for now.

It’s scary though. I can see it in my friends’ faces when we actually sit for a minute and talk about what we each want to do after uni: everyone masks the apprehension at being thrust into the adult world with talking about ‘panic masters’, internships, job placements, and the classically vague ‘maybe I’ll go travelling’ statements. The fact is that many of us have absolutely no clue what’s next or where we’ll end up, and it’s stressing a lot of young people out that they’re expected to have their whole life mapped out when just a couple of weeks ago we were sitting our exams.

I’m a lucky one in that I do know what I want to do, and I have made moves towards that, but even I feel like I haven’t had a second to breathe before I have to sort the rest of my life out. Also, there’s a stigma against the graduates who choose a different route from the traditional ones. For example, I know I’m moving to a new city and I know what I want to do there, but a career as a radio presenter doesn’t exactly have a cushty grad scheme for me to apply for, so whenever I tell people my plans, they inevitably sound half-baked, and that makes me self-conscious. Even though, we don’t all have to work in an office straight after university if we don’t want to…

Sometimes everything feels like it moves so quickly that there’s no way you can keep up, then other days it’s easy – occasionally, even a bit boring. I’m definitely not qualified to be giving advice on what to do in these situations given that I’m part of those going through the experience, but what I have said to my friends when we’ve been in the car or in a living room, stressing about the future, is that the best approach to have is to do whatever makes you happiest. That might be another year of university, working abroad and travelling, moving to a new city to start a new job, or having absolutely no clue and needing a couple of months of nothing to figure yourself out. Obviously, money is a factor in this and it’s not always easy to do exactly what you’d ideally want to do, still, try not to put so much pressure on yourself to have everything mapped out right now; take a minute to breathe.

Truly, there is no rush.

So,you think you’re a sl**

So,you think you’re a sl**

At this age, lots of us like to sit with our friends and rip into each other for all the times someone has been a liiiittle questionable when it comes to their romantic relationships – whether those relationships be purely sexual, on the road to something stronger, or somewhere in between. Maybe you’re the prolific dater, maybe you’re the type to get with someone then change your mind the second they start to like you, maybe you really enjoy flirting with people but you’re too picky (*cough* scared *cough*) to commit to something serious. Or, maybe you’re like me and you’re a combination of a few… 🙂 ! Well, whatever you are, as long as you’re not being awful to people, then I don’t see much harm in it. And, the chaos does make for a good drinking game.

I’ve posted enough blogs by now for you to know that I’ve never been in a relationship, and that the lads I attract tend to be a whole lot of talk and very little walk…HoWeVeR, I have been the third wheel for enough relationships (and been involved in enough situationships) by now to be able to say something about how we’re treating each other. And the main thing that I’ve noticed is that people are so terrified of being on their own, that they stay or get themselves into situations simply because it’s comfortable, and/or because out here in the single world most people are screwing each over left right and centre. I mean, the sheer lack of respect I’ve heard (and seen) demonstrated by some single people when they’re talking to or getting with someone on a night out is ridiculous. And there’s just no need for it!

I’m not saying that we can all come out of every experience looking like the good guy, because no matter how hard each of us might try, there’s always going to be a few moments when we’ve messed up and we just have to swallow that. That doesn’t mean that you shouldn’t at least try to not be a d*ck, though. Yes, this age is probably the best and most convenient age to get with as many different types of people, in as many different situations as your heart desires because it’s a time when we’re free to put effort into figuring out who we are and what we want, but be aware of what you’re doing as you do it pls.

I’m a big believer in the power of surrounding yourself with sex-positive people who don’t feel the need to apologise for their sexualities because as much as I’m also very sex-positive, there are times when I can fall victim to the voice in my head that likes to give me a cheeky slut shame when I’m hungover. And it’s never about how many people you get with because I know lasses who feel rubbish about the 1 or 2 people they’ve slept with or texted again when they shouldn’t have. It’s about the fact that lots of us aren’t allowing ourselves and others to just have a little bit of fun.

Personally, I’ve not been hurt by a lad in quite a long time now but that’s just because I got bored of being disappointed and making all the moves, so I’m leaving it up to the lads to have the balls from now on. But me having that perspective right now, doesn’t make it inevitable that I’m going to start being rude to a lad who I kiss in a bar by ignoring his texts or playing with his emotions. It also doesn’t mean that I wake up the next day and tell myself off for kissing someone I don’t intend to date. And finally, it most certainly does NOT give me an excuse to judge and shame my friends for having a different approach to romance than me.

So if you’re going to take anything from this week’s ramblings, let it be the acknowledgement that even though it’d be impossible to never be the bad guy in relationships, that isn’t an invitation to always forget about respect. Ask out who you want to ask out, kiss them if you’re both into it, try and be nice about it if you’re not, and go on, have a bit of a FLIRT!

Something’s wrong with my face today

Something’s wrong with my face today

Do you ever have those days where for some reason none of your clothes seem to fit you the way they did the last time you tried them on? You’re getting ready for the day, or for a night out, and your face just doesn’t face the way it should, you’re clothes don’t look right, your hair won’t do what it’s told, and the time is starting to run away; you’re going to be late to whatever you’re supposed to get to, so you start to get a bit hysterical and self-critical until you just wish you could crawl back into bed, hit a reset button, and try again tomorrow when everything hopefully does what it’s supposed to.

Just me?..

I’ve written before about how people shouldn’t let their insecurities control them, and I wondered whether I should write about this topic again when I could just reshare an entry I’d written a couple of years ago. Except, my body, and a whole lot of other stuff, has changed since then and I don’t really see this as a problem that can be fixed by a few hundred words.

So I’m going to give you a few hundred more! Yay!

We each know the power which comes with feeling confident, but like many other feelings, confidence is unfortunately very brittle. Just the other day, I’d woken up feeling pretty good about myself but it only took a few silly things happening throughout the day to leave me with a mind full of self-criticism by the time I was getting into bed for the night. And the frustrating thing is, that the moments which chipped away at my confidence were so minor it was stupid: I saw my reflection in a full-length mirror and I didn’t like the way my legs in my callipers looked, then a friend took a photograph of me and another friend and I thought my arms looked fat, and finally, the hot weather made me tired and subsequently self-conscious about how obvious my Spina Bifida was whilst walking through town.

Not one of these things is important, nor are they anything anyone else would take any notice of, let alone care about. But that’s what insecurity is: getting stuck inside your head about silly things which in the grand scheme of things, do not matter. Only, they matter to you and sometimes they matter so much that you torture yourself over thinking about them.

I’m lucky enough to be able to keep my insecurities at bay most of the time. But the times when I can’t – which do tend to be either when I’m drunk drunk, or experiencing the boozer’s blues the day after drinking – in those moments, I can’t do much except let myself just sit in it. I eat loads of snacks, or I cry to my friend, or I watch a film, or I stare at the wall whilst listening to my sad playlist. And I know that if a psychologist were to read those coping mechanisms, they’d probably say that they’re all really unhealthy – disclaimer: I’m definitely not about to make a case for you to do exactly what I do. However, I do think that my generation tries to psycho-analyse themselves far too much and that we need to just feel whatever it is we’re feeling for a second, without self-diagnosing. Obviously, there are limits and lines where a person needs help but it’s also okay to feel naff for an afternoon. In fact, surely it’d be worrying if we didn’t feel like rubbish once in a while?

I’m not going to patronise you now by listing all the reasons why we should be kinder to ourselves because I’m not a motivational speaker (shocking, I know), but also because we all know this already and knowing that I shouldn’t criticise myself, unfortunately, doesn’t mean that I won’t from time to time. It’s about being able to strike that balance where you allow yourself to feel what you need to, whilst also making moves to pick yourself up out of any ruts you encounter – it’s not always easy, and I’m not a pro, but we do our best.

So if you do wake up and your face isn’t facing, or your body isn’t bodying, and although you know it’s just in your head you’re still feeling meh, then that’s alright! As our lord and saviour Hannah Montana once said: everybody has those days.

Is it really that embarrassing to be alone?

Is it really that embarrassing to be alone?

Now, I am a lot of things: some of them good, some of them not so good, but one of the not so good things about myself which I have been trying to change is that I don’t do so well with being alone.

I’d thought that travelling to various countries on my own in the months before I started university had been a decent way to combat this in preparation for moving out. What I hadn’t considered though, is that yes, I went through the airports and across the countries solo, but once I’d arrived wherever I was going it only really took me a couple of minutes before I’d found people to pass the time with. So, I was never alone for that long. This meant that when I found myself sitting in a room on my own at university for hours at a time, week after week, trying to find my feet in my degree, and surrounded by people I’d known for two minutes, I struggled. But those achingly lonely moments at university aren’t the ones any of us are supposed to talk openly about because these are supposed to be ‘the best years of your life’ where you come out of your shell; you’re not supposed to retreat back in.

In our first year, every single one of my friends experienced moments where they felt overwhelmed by it all, but I know that the thing missing the most for me was the safety you get when you’re around people who completely understand you. Like all of us, it takes me a second to totally relax and ‘be myself’ with people; in fact, I think that going to university has made me take longer to do that than I ever did before. Yet even after forming some of the closest friendships I’ve ever had, I still struggle with the fact that nobody truly understands me because they don’t understand my physical disability. My friends from school kind of got it since they saw me in a wheelchair for months at a time when my foot acted up, but even then they didn’t really engage with it because we were kids and me potentially having to be in a wheelchair for a bit was just something that happened. Then even though my closest friends at university do try to support me with my feet, they could only really do that after my foot had gotten bad and again, even then it’s just not really something anyone else can help me with unless they’re with me all the time. So, I had to accept that I have to do it on my own, and for the first couple of years since that realisation, it felt really lonely.

But being alone doesn’t need to have as many negative connotations as we like to give it. (I think) I’ve now fully accepted that all the disability stuff is pretty much a solo mission, and there will be times when I cry about that because it gets really difficult, but that’s just how it is. We each have to accept that there are always going to be certain things we can’t get from people. For example, you’re always going to have that friend who’s a right laugh in person, but you definitely couldn’t rely on them in an emergency; that doesn’t mean that the friendship isn’t worthwhile, or that the person doesn’t care for you, it just means that we shouldn’t expect every individual to be able to give us everything we need because if we do that, we’ll only be disappointed. Besides, that’s a lot of pressure to put on every relationship we have with someone. In practice though, it is difficult to accept this and I should know, because I’ve relied heavily on people and ended up disappointed by them more times than I could count, and I’d be lying if I said that I’ve completely stopped doing this. Nonetheless, I am trying to become more self-reliant because it’s just not healthy to allow the actions of others to dictate your happiness.

Stopping myself from doing this is an active effort, given that everywhere we look in popular culture we’re hounded by the impossible image of a perfect life where we’ve got a perfect relationship and perfect friends who never falter and are there for every second and every ounce of what we need. I don’t want to suggest that my friends and family aren’t brilliant because they are. Instead, the point I want to make is that we each have to learn how to be good on our own because no matter how amazing your friend, partner, or family member is, they could never be everything you need, or understand you completely

Since I’ve started to be comfortable in doing things on my own like going to the cinema or to a gig because I want to and can’t be bothered to convince another person to come even though it’s not something they’re super into, it’s clear that there’s an unnecessary stigma around doing things in public on your own. For some reason, we’re telling people that they have to be with someone else, otherwise they look like a loser who nobody likes – and that kind of social rejection seems to be a fate worse than death for many of us. But seriously, when was the last time you saw someone walking around on their own and you thought ‘wow, what a weirdo, imagine being alone and not in the house, they must be a psycho’ ? Who even cares that much? 

And if you do judge people like that then get a new hobby because that one’s lame.

Thus, the moral of today’s blog is that I think you should do whatever the hell you want to do and not rely on other people for your happiness. After all, when you lie down at night, it’s just you in that head of yours, so you’ve got to make sure that you feel comfortable being there.

Be my Valentine

Be my Valentine

It’s Valentine’s Day, and I’ve thought long and hard about how I want to address that. Earlier in the week, I’d toyed with not mentioning it at all and just posting something else I’d written; I thought about how I don’t want the only two themes of my posts to be relationships or my disability, even though I know that those are the topics my readers gravitate towards. But Valentine’s Day is a big deal for lots of people (whether they want it to be or not), since everyone is so aggressively brainwashed to believe that we each need a romantic relationship to experience true happiness or success and that this is the time when we get to show off that happiness and success. Or, we get to not, and then have it implied that we should be sad about that.

I remember when I was about 18, talking to my mum about boyzz, and saying that I thought the reason I’d had disappointing experiences was because I trust people too easily. She scoffed at that, asked what I meant, and said ‘you don’t trust anyone’. That makes her sound really brutal – she’s not brutal, but she is honest, and she made me realise that I like to tell myself that just because I’m extroverted and kind, that that equates to me being super trusting of others. Except, what she said to me when I was 18 remains true as I type this as a 22-year-old: romantically, I don’t trust lads as far as I could throw them.

This lack of trust isn’t founded in some intense trauma; I might have had some bad luck in romance so far, but I’m fortunate to have never suffered that badly from it. Honestly, the worst thing that’s happened to me in that arena is that the very few lads I was really interested in have hidden me. The first boy I ever really liked actively kept me a secret, by asking me to do things like turn my Snapchat maps off if I went to his house so nobody knew I was there, he’d never post me on his story like he would when he was seeing other girls, and he’d only be out in public with me if it suited him. Then there were the other couple of crushes who preferred a kiss behind closed doors and us to never mention it again.

Now, I know what you’re thinking: all of that’s awful and I don’t seem like someone to stand for that ridiculously toxic behaviour with the things I say in these blogs. You’re right about both of those things. I tolerated all of that sh*t when I was younger because it was subtle, I was desperate to be a part of the romantic relationship world, and we don’t always practice what we preach when we’re in the situation.

If I were to describe how I’d feel about being in a relationship now though, I honestly think that my main feeling would be terror. (I laughed when I typed that though, so don’t read this as if I’m crying about it.) I guess I’m scared of being with someone because I have absolutely no idea what that’d look like in my life: I’ve seen others do it, but I don’t know who I’d be in that context. So, the prospect of that degree of new experiences and emotions is ridiculously exciting, yet I can’t help but be scared of it as well.

I think that Valentine’s Day is a funny one because it’s nauseatingly commercialised, and it’s one day of the year when people seem to be obnoxiously happy or obnoxiously bitter or ambivalent about the whole thing. We all know that in the grand scheme of things it matters very little if you get a bit of cardboard through the door saying ‘be my Valentine’ or not, but at the same time, many of us can end up feeling pretty low when the 14th February is like any other day. That’s just because we’re human, and we want to experience love.

So, even though we know Valentine’s Day is pretty pointless, be as obnoxiously happy or sad or anything in between as you want. Plus, it’s Pancake Day soon!

Wait, but I thought that I was supposed to hide this?

Wait, but I thought that I was supposed to hide this?

If there’s one thing that I always hate hearing from people as a young, disabled woman, it’s ‘oh you do so well’. I’ve heard it whilst sitting on buses, walking down streets, in the waiting areas of the doctors or in airports, from the mouths of my parents’ colleagues and those of my teachers, and plenty of times from strangers when they simply don’t know what else to say. And I know that the intention is often pure; people want to show some level of appreciation for the fact that my physical existence may not be as simple as their own. Only, most of the time it just comes across as a bit bloody patronising.

The flip side of this, however, is that I spend so much time coping with my disability whilst doing whatever I want to do, that I’ve been guilty of disassociating myself from the fact that I’m physically disabled and that these things I’m doing are impressive. I am also English, though – Northern at that – so I suffer from an acute inability to talk about my successes without the embarrassment setting in.

But when I really think about why I don’t acknowledge ‘how well I do’, it’s because ableist aspects of our western society make it such that I’m supposed to blend in. Therefore, if I make any reference to how it might be really bloody impressive that I’ve done things like travel to, and live in the middle of the Nepali jungle without any access to medical care for 3 weeks on my own when I was 19 even though 3 weeks before that I couldn’t even go into work because I had an infected foot, then doing that doesn’t make me blend in. It brings my disability to the forefront, and I stick out in precisely the way society has told me that I shouldn’t.

So this is the part where you, my lovely reader, (hopefully) think ‘yes, of course, that’s impressive! You shouldn’t want to hide who you are’. And just like I’ve said to every person who has had genuine kindness in their eyes when they’ve told me ‘you do so well’, I want to thank you for saying that.

But drawing attention to my physical weakness is hard.

Last summer whilst I was in Ukraine, I found myself in a situation where I knew I had to mention my disability in a very public way, in order to avoid awkward run-ins later on. As always, when arriving at a place full of strangers, I chose to wear an outfit which covered my shoes to avoid any judgements before people heard me speak, but then I remembered that summer camp counsellor is a pretty active job and when the kids arrive tomorrow, if people see me sitting down every now and then, then they might think that I’m lazy or slacking off. So, to save face, I sat next to my friend from the first year I’d worked there and I announced my disability to a group of around 35 people. I’d never done anything like that before, and it was awful; my voice shook with every word I said, and I was very close to tears. But people were lovely about it, as they often are, and my announcement actually created the space for individuals to feel comfortable and slightly obliged, to ask me specifically how my legs were doing during our intense working days – something no one except my parents had ever asked me.

However, every single time someone asks about my disability, or I have to explain how it limits me, it’s emotionally draining in a way that I can’t effectively explain. That’s not to say that people should stop asking – definitely don’t stop doing that. I just want to communicate to you that back to back disability explanations don’t come free: it’s new for me to meet people and my disability to be one of the first things we talk about, and it’s new for me to have to talk about it this much.

One of the most heartwarming things I experienced after my announcement in Ukraine was towards the end of the summer. I was walking back from running an activity for some of the kids when 2 girls asked me if I could please explain to them why I wear my shoes. For the first time ever, I turned to someone who’d asked me to spontaneously offload personal details, and I said ‘do you mind if I tell you tomorrow? Because it’s 11am and 25 people have already asked me today.’. 25 isn’t an exaggeration by the way, I’d counted. And at that moment I realised that I’d always answered people’s questions straight away because I’d never wanted anyone to get embarrassed or feel upset about asking me. I also realised that subconsciously, when people see something as physically obvious as a disability, they think that on some level they’re entitled to an explanation. This, of course, is problematic.

I did explain it to these girls though since they asked so nicely, but they had to wait a day.

So, I’m in a weird spot now because I’m seeing myself doing things I never would’ve done two years ago, like walk around my university library with my callipers on full show and mentioning how I’m physically disabled in the first few moments of speaking to people. Meanwhile, the stubborn part of me which never wants to be defined – positively or negatively – by my Spina Bifida persists, and it occasionally dismisses my physical successes as just what everybody does.

And I know that my writing style leans towards a nice, neat conclusion that pulls all of this together, but not today my friends. My relationship with my body is complicated, and that’s just it.