Tag: society

Raising a disabled child 101

Raising a disabled child 101

by elizabethmdouglas ♥ 1 Comment

As a young girl, I was incredibly confident, outspoken, enthusiastic, and so fortunate that my parents never allowed my disability to suffocate that. My childhood had a fair few tumultuous years: I had operations, infections, insufficient footwear causing more infections, new parts of my condition popping up as I grew and so many other problems I can’t even remember. All of this was then exacerbated by my free-spirited attitude leading me to accidentally injure myself and then not understand why I couldn’t walk like the other kids, obviously ending in huge upset.

I don’t think I’ll ever be able to imagine how completely I could’ve been crushed by my Spina Bifida. There are children out there who are unable to live away from it, and in all honesty, for a time I was one of those kids. Aged around 7, I spent the best part of 18 months in and out of hospital and in a wheelchair and yet, my family managed to make me feel just like any other kid. They worked tirelessly to protect my personality from my disability: a feat I will probably never be able to repay them for.

It’s well-known that parents need to be supportive when their children are struggling in order for that child to feel safe, loved and happy. But having a child with a disability that you know nothing about requires a whole other level of support. To make life all the more challenging, my eldest brother has Marfan Syndrome and has his fair share of medical problems. So not only were my parents navigating raising 4 children whilst working full-time as English Literature teachers, they were working out how the hell to cater to 2 separate disabilities, whilst ALSO encouraging those children to feel equal to their non-disabled siblings and the rest of the world.

They managed it though.

I spoke a lot in my last entry about how complicated it is to live with a disability, but an important aspect of my experience is that I spent the first years of my life living as disabled with my family. I was so overwhelmingly supported that there was never any aspect of it where I was alone.

When I describe my childhood and adolescence as perfect, that isn’t to say that there weren’t points where I really struggled. For instance, I was in a wheelchair at 3 separate points in Secondary School – prime time for teenage insecurity and social paranoia. What made my early years perfect though, was the fact that everyone around me constantly made me feel normal. In the moments when I was physically or emotionally isolated from my peers at school, my parents and brothers kept me laughing and focused on a positive outlook on life.

This did then mean that at the beginning of this year, before my travels and before moving to University, I was confronted by the loneliness of moving out. I knew that I’d make friends at University, or wherever it was I went, but I now knew that my support system was about to be miles away. My family and friends who all knew my condition as well as a non-disabled person can, weren’t going to be 2 seconds away. This would mean that I would have to re-explain myself to people, bringing attention to my limitations in a way I’d never done on my own before. There would be no-one who knew me: I had this moment of realisation on the floor of my room, crying to my Dad, with an infected foot, weeks before my plane to Nepal.

It was only when I started to travel that I realised that I can do this on my own – even though it’s definitely not been easy so far. And it’s only thanks to the immense amount of love and support I had whilst living at home that I now (sort of) know how to. Thanks to my family, I’m confident in social situations and don’t shrink into myself when my disability is mentioned. Owing to my parents’ strength, I’ve learnt how to get respectfully passive aggressive with institutions or individuals when they seek to deprive me of things I need, because to some I don’t appear ‘disabled enough’ (side-note: what does that even mean?..). But most importantly, it’s thanks to all of my family’s unwavering support that I know that as lonely as disability can be, there will never ever ever be a time when I’m alone – no matter where we all are in the world.

And that, ladies and gentlemen, is how you should raise a disabled child.

I’m that disabled girl with the shoes

I’m that disabled girl with the shoes

by elizabethmdouglas ♥ 4 Comments

Out of all of my blogs, this one is the one that I’m most unsure about because I worry about the assumptions you’ll make when you can’t see the person talking to you. I don’t want you to have a picture of me that isn’t what I’m really like just because I’ve now told you that I’m disabled. Hence why this post wasn’t one of my first…

When meeting new people, whether that be in Primary or Secondary School, at a party, in an airport, at work or even just meeting my brothers’ girlfriends, my disability has sparked interest. It doesn’t affect my speech, my brain or much of my appearance, so it’s almost hidden. This has meant that most people don’t always realise I am disabled until they spot my legs and after speaking to me for a while they delicately venture to say: ‘is it okay if I ask about why you have to wear those shoes?’. And generally, I prefer people to ask since it shows that they’re interested but also it means that they won’t continue to stare. Which, I’d like to mention is always obvious, no matter how subtle you think you’re being. Also, I use ‘generally’ here because sometimes people have opted for: ‘what’s wrong with you?’ as their phrasing. My reaction to this question is always going to be a bit radgy, seen as there’s nothing wrong with me but what’s wrong with you for phrasing it like that buddy? However, *exhale*, most people mean well so occasionally you have to swallow your pride and go with what you know they meant.

First and foremost, disability is an umbrella term. Even if 2 people have the same disability on a piece of paper, biology is such that 2 bodies will never be exactly the same. So it follows that those 2 individuals will have different variations of the same thing, and extremely different experiences of living with it. My Spina Bifida is a lump on my lower back which holds a ball of knotted nerves inside of it. These nerves are those which would allow me to have complete feeling and movement in both of my lower legs. During my childhood I had 6 operations which sought to drain the fluid in my lump and to correct the position of both of my feet because to put it simply: I can’t walk properly. I also have bad circulation in both of my lower legs and feet, meaning that if I’m cut or have a blister, not only can I not feel the pain (and therefore regulate putting pressure onto it), but it takes a lot longer to heal and is then vulnerable to infection. These cuts or blisters can be caused by anything ranging from a fold in my sock to me walking too far or standing for too long. If I develop a blister and/or an infection, I can’t walk at all and have to use a wheelchair until it heals.

I HATE my wheelchair more than anything in the world. Even now, the idea of me having to use it would reduce me to tears. The reason being that generally I don’t have to use one and am naturally very self-sufficient, independent and stubborn. My wheelchair strips me of my independence and when I’m in it, I never know how long it’ll be until I’m out and myself again. I was never encouraged to feel too sorry for myself during these times, as I always knew that I’d get out of the chair and that there are so many people in the world without that luxury. But that approach doesn’t really make it better in the moment.

To be honest, my perception of disability is complicated. I’ve definitely always struggled to communicate my true feelings about it (like now lol) because when I say things like I don’t want to join my University’s disabled society, it comes across as if I’m rejecting the disabled community. In reality I think that what I reject is the implication that because I’m disabled by definition, that that is all I am as a person. I see it as me being disabled first and everything else second, which is not how I ever want to be described. I’m proud to be disabled, and I think that disability awareness and support groups are vital for society, it’s just that I’d prefer for my disability to be peripheral in discussions rather than the focus. However it’s becoming painfully obvious to me as I grow into the world, that I need to be more explicit about my experiences as a disabled person since there’s just so little varied representation out there.

I don’t love my Spina Bifida but I do love how it’s shaped me, and I categorically do not want to be pitied or patronised, because that never does anyone any good. Everyone has their own issues to deal with and mine just happens to be this. I’ve never wanted to dwell on it but I think I’m learning now that there’s a difference between self-pitying and just describing how it affects my life. In order to be accepted and treated equally, people need to talk about things such as disabilities more often so that when they’re brought up everyone doesn’t apologise for asking. It shouldn’t always be a touchy subject because it doesn’t have to be a negative conversation.

So I’ll do my best to be that person to talk about it, knowing that for me disability is only one of the many defining factors of who I am as a human being.

In my feels at Ukrainian Summer Camp

In my feels at Ukrainian Summer Camp

by elizabethmdouglas ♥ 1 Comment

One thing I’m very proud of is the fact that I’m a West Yorkshire girl. We may have cold, rainy weather, and it might be constantly assumed that we drink tea or have some sort of superior authority when it comes to judging a Yorkshire pudding (tho the latter’s true tbf), and it might well be accurate that we struggle to spend money on anything. BUT, it’s because of these facts and many others that I love where I’m from. However, aside from that cheeky bit of patriotism, there are plenty of things about the Northern English psyche that I don’t love all that much.

The main one that was appropriate when it came to my time in Ukraine was our tendency to be emotionally guarded. I grew up in a family where sarcasm is encouraged, and through making digs (lovingly) at each other my siblings and I gained a thicker skin in preparation for the wider world. One consequence of this was that I, like many other Britons, have a tendency to take the mick out of anything that shows excessive enthusiasm or ‘deep’ emotions. By ‘deep’ I mean when you’re sitting with your group of friends and someone brings up the meaning of life, and because you’re English one of you responds with ‘that’s deep’ and you all laugh it off, then change the topic to something ‘lighter’.

A natural avoidance of topics requiring more emotional vulnerability such as this made life in a Ukrainian Summer Camp all the more alien to me. Our first week in the Carpathian mountains was a training week, where counsellors and English teachers got to know one another without any children running around. We played games every day, and brainstormed activities we could do with the kids, but then on an evening we’d sit and have conversations where everyone seemed to willingly bare their souls to strangers. Now I was struggling to get used to the fact that we actually had to learn dance routines for the kids to mimic for 15 minutes before EVERY meal, let alone that everyone would then have heavily emotional chats with each other before bed time…

The Yorkshire lass in me wanted to laugh and take the mick at so many points, but it became clearer that I was the minority in the room when it came to not wanting to publicly emote. It’s apparent in Europe, and from what I’ve seen the rest of the world, that those ‘deep’ conversations the English only seem to have when drunk or in therapy are standard dinner time chit-chat. It’s in this way, amongst others, that we play to our stereotype of being uptight and emotionally closed-off.

To be honest, I do like this characteristic of our culture to an extent. In my eyes, we privilege monumental emotions over minor ones. By this I mean that we don’t emote constantly, but (for want of a better phrase) save it for a big occasion. In this way, we don’t force our emotions onto people excessively, for fear of being branded a ‘downer’ or, in Yorkshire terminology, ‘a whinge’. That being said, this is definitely a toxic trait when it comes to mental health: the English have a real problem with internalising emotions and therefore allowing those feelings to overwhelm and isolate the individual. Through living in Ukraine surrounded by people of all nationalities (not exclusively European), and being in a hyper-emotional environment, I was encouraged to be a lot more vocal and in-tune with my own feelings. Life in a summer camp is effectively a hot box where everything you feel is heightened due to extreme levels of stress, responsibility and a whoooole lot of laughter.

In this week’s concluding paragraph – seen as I just can’t seem to get that A Level English Lit essay structure out of my bones- I basically just want to say that the English need to have some more ‘deep’ conversations. As a community, we need to make it clearer to each other that emotions aren’t scary or unusual. I’m not suggesting that everyone sits and has a cry with each other regularly, although an occasional cry is good for you. But some of the most valuable parts of summer camp for me, and others, was everyone leaving little notes for each other just to say thank you for leaving the art room tidy, or helping with an evening activity, or just to say I think you’re amazing and this is why. Ukraine showed me that when a group of people are almost completely emotionally vulnerable with one another, life is easier. We wound each other up and occasionally we argued, but overall I formed some of the closest friendships I’ve ever had in 2 months flat and laughed until I cried multiple times every day.

So next time someone wants to talk about something ‘deep’, humour it and get involved for a bit. It might be interesting and afterwards you’ll feel good. Plus, then when you want to lighten the mood and have a laugh with each other your relationship is going to be stronger, more genuine and so much more fun.

Culture shock in Fiji

Culture shock in Fiji

by elizabethmdouglas ♥ 0 Leave a Comment

Out of all of my trips, Fiji was an emotional roller coaster: there were a few moments where I almost spent all of my money on a plane trip home. Not due to the scenery being underwhelming, or the people unwelcoming, (definitely nOt the case) but because in many respects the country was so far away from everything I knew and expected.

Quick tip: don’t travel from the North of England all the way to the heart of the Pacific Ocean for 2 weeks. It’s faaaar too long a journey for such a short amount of time. That being said, it’s stunning so give yourself long enough to properly explore. Also make sure that you’ve got a hefty bank account so you can afford the island life: I didn’t have that much money, but I made the best out of it. I even had a wild Manta Ray swim past me in the Pacific Ocean (GAP YAHH)!!!!!

I’m hesitant to be completely honest about my experience in Fiji because I met some really great people there, many of whom I hope to see again. But my first week didn’t give me the same bliss I experienced in the second, on a private island surrounded by the ocean.

I spent the start of my trip helping in a local boys’ school as a teaching assistant, and went into it thinking that it might be similar to my experience in Nepal: it wasn’t. The children themselves were super sweet, but kids are always sweet, they can’t help it. What was more notable, was the underlying physical and emotional violence present within the school. Namely through the teachers in the school using corporal punishment. The class I was with was one of the youngest, and worst behaved, so I watched the teacher strike and verbally intimidate the kids regularly. This created an atmosphere with heightened physical violence where the boys would spend a lot of their break-times hitting each other during playtime. The first thing the teacher I assisted told me was to not get close (emotionally) to the children. I understood that she meant it on a disciplinary level: to create distance and respect between adults and children. But I can’t see how the way she went about it helped the children at all. It was clear to me that many of those who were misbehaving had learning difficulties or experienced physical violence at home, or both.

At this point it became very clear to me that there was very little I could do in that situation. I can’t describe how affecting it is to have a 6 year old child look you in the eye with tears in his eyes as his wrist or ankle is slapped with a wooden ruler, and not be able to do anything. But it comes down to the fact that as the intruder in the room, what right did I have to tell someone that an element of their culture was right or wrong? Some might say that I should have said something, but I didn’t see how that would have achieved anything but made it seem like I was a privileged white girl trying to push my Western views onto another culture. Instead, I tried very hard to stop the boys from doing things to provoke punishment. For those who fell behind in their work, I did my best to catch them up and for those who were about to do something mischievous, I pegged it across the room to try and stop them from doing it. I also allowed them to stand behind me and hug me when their teacher wasn’t looking, seeing as it was obvious that many were starved of positive physical contact.

I’m couldn’t really tell you my opinion of that teacher. On one hand, I watched her hit the kids, and that repulsed me. But then she also seemed like a hard-working, tough woman intent on ensuring that those children received a decent education. Spending time in that classroom, even for such a short time showed me that living in different cultures is not always easy. I have strong views on the subject of corporal punishment in schools as a result of my upbringing in the North of England. That teacher’s views were the polar opposite to my own, but then she had a very different upbringing to me. What is difficult to navigate in that situation, is to what degree I can express my opposition without reeking of western imperialist superiority.

I’m not sure how well I did in such a short time, but I like to think that those kids will remember the hugs I gave them and the parts of the alphabet I taught them.

My city break in the Far East

My city break in the Far East

by elizabethmdouglas ♥ 0 Leave a Comment

For my next trip I didn’t fly solo: I had the pleasure of exploring a part of the Far East with my lovely best friend of 9 years. We chose South Korea as our holiday destination for many reasons. The main being that ever since we were 15/16 we have grown a love and appreciation (and for a time, a slight obsession) for K-Pop. We then quickly fell in love with Korean culture as a whole. Now I know that most people hate to admit any affection for Pop music, let alone foreign Pop music, since it’s generally deemed uncool or lacking authenticity. Thus I realise that half of the people reading this have probably just rolled their eyes at that sentence. But hear me out.

In recent years Western Pop music has begun to pay very close attention to the Korean music industry. K-Pop itself is completely manufactured, but just because it’s manufactured doesn’t mean that it doesn’t showcase talent and originality. Granted, what’s spoken about within the songs is often not particularly raw, personalised emotion, but to dismiss the work put into each song and performance for that reason is unfair. I’m no more than a music lover, so I can’t even fathom the amount of time and effort individuals within the industry put into writing, producing and performing the songs. To add to that, in K-Pop every single released has an accompanying dance routine which has been created, choreographed and performed by someone. That doesn’t even take into account the talent and creativity showcased within the Korean music video industry, where each 3 minute video is treated as if it were a fully fledged feature film. And then there’s all the design of the clothes, and the live shows, and the make-up…

This acute attention to detail is prevalent in all parts of South Korean culture. The buildings are ridiculously well-designed, the food is amazing and the people are all immaculately dressed. My best friend and I felt pretty out of place in our 3 year old jeans… Everything was just so bloody clean, and there weren’t even that many bins knocking about.

It became clear that the Korean people have a level of internal discipline that the West lack. This was not a huge surprise given that the Far East Asian stereotype is that there are many child prodigies able to play Debussy aged 10 and consistently achieve perfect grades at school. Obviously this stereotype is true for a tiny percentage of the population, but for everyone else it’s just that: a stereotype. Regardless of their musical or academic ability however, the South Korean psyche is such that everyone strives for success and to be the best. So the presentation of everything within the society just seemed next level, to me.

Having independently studied South Korea, I’m aware of some of the pros and cons of this ambitious, dedicated and persistent psyche. The people and their creations appear beautiful and perfected but their mental health suffers from the idea that not being faultless is a failure. Students study for obscene lengths of time (often 15 hours a day) in Hagwon institutions and plastic surgery is rampant as the people attempt to reach a ludicrously narrow standard of beauty.

I believe travelling is the best way to realise that no society is infallible, but that all of them should be of interest in one way or another. To me, South Korean people are some of the kindest and warmest around, in a way that the English aren’t. Generally, without even realising it we are cold and reserved here but then in my opinion we have a killer sense of humour and our sarcasm is unmatched. The South Koreans have managed to create a clean, successful and rich society even in the context of losing half of its land, resources and people just 74 years ago. Whereas the British have a history rich with invention and multiculturalism. But South Korea also has such intense societal pressures that often to fail academically is to fail completely. Whilst one of Britain’s societal shortcomings is the recently magnified problem with xenophobia and racism.

I love both countries for their successes, failures and for how they continue to evolve. In my eyes, to say that one culture is backwards or less advanced than another is a pointless statement. What should be focused on is that people can, should, and sometimes do learn from each other.

Life in the Nepali jungle

Life in the Nepali jungle

by elizabethmdouglas ♥ 0 Leave a Comment

To be honest, the first thing I want to say about Nepal is that it’s just a ridiculously beautiful country that everyone should visit. So that’s the core of this blog established. But hey, whilst we’re here we may as well elaborate. ONWARDS.

Nepal is super famous for it’s mountains, the Himalayas, and all the amazing hiking routes they offer. Saying that, my experience was spent living and volunteering in the heart of the Chitwan jungle. Needless to say, the scenery was some of the most stunning I will EVER see. I could go all English Lit student and spend paragraphs describing it but even then I could never ever do it justice with words. So, to be brief: we woke up to the sound of monkeys and showered surrounded by geckos. Enough said.

3 weeks in this country introduced me to so many breathtaking things: one of the first to strike me, was the overwhelming poverty of the people. You hear so much about third world countries in the news, and see adverts on TV showing images of starving children so often that somehow the tragedies become trivialised. When physically seeing the way some people live every day in a glorified hut in the middle of nowhere however, you’re forced to understand the reality of true poverty. And it’s astonishing.

Actually, the first scene I saw when driving from Kathmandu airport was a naked child relieving himself on what can only be described as a mound of rubbish by the side of a dusty road. But poverty in Nepal manifested itself in so many more ways than just stark images such as that.

I worked as a children’s English teacher with 2 other English girls, and 1 Montenegrin girl in a Buddhist monastery for most of the 3 weeks: the children’s ages ranged from 6 to 18 and there were around 100 of them, some orphans and some not. The Nepali government’s textbooks we used to teach were riddled with grammatical errors and nonsensical sentences. We would correct these mistakes in front of the classes as we read the children the same thing they’d been reading for months, only now we told them what they thought they’d already learnt, was wrong. We constantly fought against confusing them in order to teach them correct English. The kids themselves were an absolute joy to teach: they tried so hard to follow everything we were saying as they scrawled notes in their beloved (dilapidated) exercise books.

The poverty they experience is all-encompassing. As mentioned, their school equipment is basic to say the least. They eat the same thing every day so their level of sufficient nutrition is non-existent. They rinse their plates under a tap and eat with their hands. They wear the same school uniforms every day and the clothes they have for leisure are clearly second-hand, since they’re covered in holes and stains. They live in the most basic housing and their bathrooms are definitely not sanitary judging from the smell. They shower and clean their clothes in the same area outside with minimal soap. Many of their little bald heads show the marks of ringworm.

These children deserve so much more than the amazing staff of the monastery could ever give them. The nuns and teachers devote most of their lives to the kids and the amount they care is tangible, but there is seriously only so much that they can do with what they have. It became painfully obvious to my 3 new friends and I that everyone there couldn’t even fathom our European lives, nor would we ever really be able to explain it to them.

It’s obviously heart-breaking that people live in situations such as this, without the basic resources the West don’t even pay much attention to. That being said, we, the ‘privileged’, can learn so much from people such as those I met in Nepal. The children and staff in the monastery might have lacked so much when it came to physical things but their love for life and each other shone a different light on my world.

I spent every day in that monastery in total bliss: listening to them sing in the temple at dawn, mealtimes and dusk; lying on the roof with my friends watching my first ever shooting star inside a sea of others; laughing with children and adults who tried so hard to, but could barely understand much of what I said, and most of all, just not even slightly caring about material things. My parents never encouraged me to care much about objects, but the reality is that our society conditions us to rely on them no matter how hard we try.

Obviously we could and should supply these people with more money and resources. Everyone already knows that. On a human level though, I think that every financially comfortable individual should be physically exposed to true poverty. Then assess their own privilege, hold back their pity, and celebrate how humans always find a way to survive, and how they smile whilst they’re at it. Those kids in that jungle are financially poor but I know so many people in the West who are a whole lot poorer than they are when it comes to an appreciation of being alive.

So all in all, Nepal taught me to just take a second. And enjoy.