City living hurts my head

City living hurts my head

Since I moved to London last August I’ve had to adjust to lots of things. At first, the most pressing life problem was being able to financially support myself in one of the most expensive cities in the world, whilst also leaving myself enough time in between jobs to pursue the career which brought me here in the first place. Not easy to do. Then I had the added pressure of moving all my hospitals down here and making sure that I could receive the treatment I need even though none of the doctors here knew me. Again, not ideal and I’m still waiting for the pair of shoes I ordered back in October. But I want to give the disability talk a rest today – imagine ! – and chat about what’s going on in my brain instead.

Something I’ve realised about myself as I’ve become total self-sufficient is that I have a tendency to want to run away from things when I get overwhelmed. I’ll pack a million things into my days, tell myself I can handle it, struggle with the concept of being bored, eventually crash, and then feel this desperate need for space and quiet. So in those moments I get in my car and I run to the seaside, or to a secluded lake or field, or to my parents’ living room; all places where I feel like I can be truly quiet and not allow my brain to run at a hundred miles an hour. Just for a minute.

A couple of months ago, I was getting to that point again after my most recent stint of hard graft, and I met up with a friend who I hadn’t seen in years. We sat and summarised our lives since the last time we’d spoken – not a simple feat when you’ve had whole university degrees and countless life changes since your last chat, but we gave it a go. Once we got onto asking each other how we’d both found moving to the capital, my friend managed to capture exactly how I was feeling in a way that I just hadn’t been able to for months. I’d told her that sometimes I feel so claustrophobic in this massive city, that even having to go at 20 miles per hour everywhere can make me feel like I can’t breathe and I don’t know why; it’s not like there aren’t a million places or go or people to see all the time. At which point she came back with, ‘it’s because there’s no horizon anywhere’. And for me, that simple sentence managed to summarise everything I’d been feeling so beautifully.

She’s going to love that blog feature as well, so happy Tuesday to you mate.

This idea that every day I go to work or out to meet friends or just to wander around, but there’s no end to the city skyline everywhere I look leaves me feeling like I’m boxed in. It’s wonderful and vibrant, and there’s always so much going on, but there’s no space, so the northern country girl in me ends up feeling periodically trapped in a corner by the constant light and sound. Thus I wake up some days and all I want to do is look at something expansive like a field or the sea, or drive at 60 miles per hour on a road to feel like I’m actually going somewhere.

Don’t get me wrong, I love everything that the city has to offer as far as opportunity and creativity are concerned, but most people here work themselves to the bone, so that, mixed with the constant sensory stimulation, tires (!) me (!) out every now and then. In my core, I’ll always be the Yorkshire gal, and with that comes the love for a field. Somewhere quiet where all you can hear are the sheep and the river. In those spaces I breathe better and I don’t feel quite so tense. But the radio stations aren’t in the fields and I’ve got things to do, so if keeping a life in the city means that I’ve got to run away for a bit every month or so then so be it. There are worse coping mechanisms to have.

I’m not normally this irritable…

I’m not normally this irritable…

It’s been a running joke in my life for the past six months that I’m the fool who’s working four jobs so I can afford to 1) live in this city, 2) enjoy living in this city, and 3) pursue the career I actually want to do. Obviously, I didn’t move down here expecting to be working in so many different places all of the time, but it became clear to me very quickly that that’s not entirely unusual for people who choose to live in London. I’d be coming in to work as a receptionist in a restaurant, saying I feel stressed out of my mind because I just finished a shift at a different job, only to have a pretty surprising amount of colleagues completely relate because they’d just done the same thing. And if they hadn’t already worked for hours in a different place, they were set to work double in the restaurant.

So, if you don’t have a cushty job with a big salary, or the safety net of inherited wealth, living in London is no easy task. Although, it does seem like even if you do have those things, the culture in this city is to work work work until your body and your mind can’t take it anymore…

Personally, I’ve no problem with grafting for what I want because my ambition and my stubbornness lead me to believe that if I work really hard for it, then I’ll get there; the jury is still out as to whether I’m deluded about that, but we’re doing well so far. However, the amount of work I was doing in the first few months of living in London ended with me having to spend five days in the hospital and feeling pretty highly strung most of the time. But I only acknowledged the extent of this after I’d been away from work for three weeks because of my operation, and I returned to my workplaces.

Needless to say, I love it every time I’m working at a radio station. Yes, I’m often behind the screen and helping with aspects of the production of shows but like most things in this country, the opportunity for progression in London and the ability to meet people you’d just never come across anywhere else makes every shift more exciting than the last. It’s a cliche, but you really have no idea of who you’re going to bump into in the lift, and how that can affect your life. Therefore, every radio shift I do reminds me that I’m exactly where I need to be for what I want to do, and it recharges me for when I then have to go to my other jobs.

At this point though, I don’t want it to seem like I’m showing up at my part-time jobs and hating my life for every second I’m there, because that’s not true. I sincerely love the people I work with and I’ve gained so much from now having experience in the service industry – in fact, I think that everyone should have a service industry job at some point in their lives, just to try and reduce the amount of heat we receive from customers because my GOD people can be awful. Regardless of the laughs I have with my colleagues though, working a silly amount of hours a week in a silly amount of places and being confronted by the public’s lack of manners and ignorance, started to regularly show me parts of my personality that I’m not a huge fan of. Most notably, the fact that I can be a bit of a passive-aggressive b*tch if my patience is tried.

Lol.

I know that my reflex is always to be a nice, open, smiley person, but I’m human and if you have (literally) hundreds of people in one day asking you the same thing; lots of them shouting at you because the environment is loud, and a pretty significant amount just being outright rude towards you, whilst you’re already running on fumes because you’ve worked non-stop for 6,7,8 days in a row, then you might start to answer people’s questions a little passive-aggressively. Or you might walk into the next job and have to stare at the ceiling in the toilets, trying not to cry, after your other boss asked you to work a few extra hours. It’s not surprising that I started to react to situations in this way, but the confrontation and the negativity aren’t me, so there came a point where I had to get rid of one job before those previously small parts of my personality grew into something more solid. And thus, I handed in my resignation for one of the part-time jobs. I’m sad to be leaving my colleagues, but I’ve secured enough radio shifts now to make up the money and I’m looking forward to feeling less irritated by the public.

Without a doubt, it’s a luxury to be able to leave a job the second you see that it’s making you into a person you don’t want to be, and I don’t want to publish this blog without acknowledging that. However, I’ve too often seen people in this country stay in a situation that they truly hate just because they think that it’s less hassle to stay. This goes back to what I was saying last week about change though, in that it’s based on the assumption that if you make a change then everything will be worse, but if it’s really so bad now then wouldn’t it be nice to try and find something better? Again, I know that not everyone is in the financial or circumstantial position to just up and leave their job because they hate it, but hating your job (and low-key hating your life) shouldn’t be as universally accepted as it seems to be in this country. It’s not always easy to do, but we do need to get better at prioritising our own happiness because this working-until-you-croak thing is no way to live.

So if you really and truly hate your job, then see if there’s anything you can do about that, because we spend an awful lot of time in the workplace and it’d be a shame for that time to be saturated in negativity.

Employability first, disability later

Employability first, disability later

Since moving to London last month, I’ve applied for part-time jobs which will allow me to have enough money to live, whilst also leaving room for me to pursue a career in radio and broadcasting. And during these job applications and subsequent interviews, I’ve been repeatedly faced with society’s favourite question about disability: how does your condition affect you on a day-to-day basis?

Everyone loves this question; it offers neat and comfortable parameters within which a disability can be defined and the methods for ‘dealing with it’ clearly laid out. Yet, every single time a person asks me this question all I ever feel like doing is laughing, because even though their intentions are probably good, the question makes literally zero sense.

On the surface, what’s being asked is how my Spina Bifida will impact my ability to work – or, if the government is the one asking, then it’s more about how it will impact general life. But the problem is that this seemingly simple question doesn’t have a simple answer, because it assumes that disability is this one fixed condition, which has these fixed symptoms, which impact everyone who has this specific disability in these fixed ways. Such an organised experience of disability would be nice – trust me – but it’s about as likely as pigs flying tomorrow morning.

Each time I apply for a job, I’ve carefully considered whether I think the role is something I can physically manage, so I don’t feel it necessary to tell the employer I’m physically disabled at that point because I’d prefer to be judged in the same ways as all the other applicants. Plus, at this stage, I don’t think that my medical history is anyone else’s business. However, when I get to an interview and the employer asks if I have any questions, that’s when I’m explicit about my needs – basically, I just need to be able to sit down regularly to relieve the pressure off of my feet for a bit. But by then, I’m 90% sure it’s wouldn’t disrupt my ability to do the job and it’s something the employer could sort out pretty easily. If the employer agrees (which, more often than not, they do) then we start filling out all the HR forms so I can be put on rotas.

This is where it can get a bit sticky because I always have to send over my medical information to prove my disability so the company can do a risk assessment, but that mountain of paperwork paints my condition as a ticking time bomb because all that’s mentioned are my operations, blisters and infections. But, as I explained to the lovely lady who recently gave me one of my jobs, the government (a.k.a. who the paperwork is written for) only cares about when the Spina Bifida has been at its worst; there’s no room in the notes for the million and one ways I take precautions every day to ensure that I’m fine.

So why is it a bit silly to ask me how my disability affects me on a day-to-day basis? Well, because I don’t know which days you mean. I could tell you the days when my foot is in a good condition, but how far are you asking me to walk? Are my shoes new? Is it hot outside? Am I walking uphill, downhill, or on a straight road? Can I drive part of the distance? Am I tired?.. Is there a correct answer to this question?

Obviously, I know that in the context of employment, companies have to cover their own backs and make sure that they’ve got the correct provisions in place to look after me. But the point I’m trying to make is that even though life with a disability can’t be explained as neatly as we might all wish it could, I still want and need to work, and ‘catering’ to the needs of disabled people in the workplace actually isn’t that hard when you listen to the person with the condition. I’ve worked all around the world in shops, and schools, as a summer camp counsellor, in radio stations and in car dealerships, and if I ever had a problem with my feet whilst employed, I communicated with my boss and I dealt with it just like everyone deals with random problems in life.

So, I don’t have an issue with employers asking a person how a disability affects their daily life, I just hope that they’re not surprised when they don’t get a simple answer. Also, I hope that there’s an acknowledgement that the person with the condition has probably put a lot of time and mental energy into deciding whether they can do the job before they even applied, and thus if they’re qualified in every other way for the role, then it’s no one else’s right to tell them what they can and can’t do.

Culture shock in Fiji

Culture shock in Fiji

Out of all of my trips, Fiji was an emotional roller coaster: there were a few moments where I almost spent all of my money on a plane trip home. Not due to the scenery being underwhelming, or the people unwelcoming, (definitely nOt the case) but because in many respects the country was so far away from everything I knew and expected.

Quick tip: don’t travel from the North of England all the way to the heart of the Pacific Ocean for 2 weeks. It’s faaaar too long a journey for such a short amount of time. That being said, it’s stunning so give yourself long enough to properly explore. Also make sure that you’ve got a hefty bank account so you can afford the island life: I didn’t have that much money, but I made the best out of it. I even had a wild Manta Ray swim past me in the Pacific Ocean (GAP YAHH)!!!!!

I’m hesitant to be completely honest about my experience in Fiji because I met some really great people there, many of whom I hope to see again. But my first week didn’t give me the same bliss I experienced in the second, on a private island surrounded by the ocean.

I spent the start of my trip helping in a local boys’ school as a teaching assistant, and went into it thinking that it might be similar to my experience in Nepal: it wasn’t. The children themselves were super sweet, but kids are always sweet, they can’t help it. What was more notable, was the underlying physical and emotional violence present within the school. Namely through the teachers in the school using corporal punishment. The class I was with was one of the youngest, and worst behaved, so I watched the teacher strike and verbally intimidate the kids regularly. This created an atmosphere with heightened physical violence where the boys would spend a lot of their break-times hitting each other during playtime. The first thing the teacher I assisted told me was to not get close (emotionally) to the children. I understood that she meant it on a disciplinary level: to create distance and respect between adults and children. But I can’t see how the way she went about it helped the children at all. It was clear to me that many of those who were misbehaving had learning difficulties or experienced physical violence at home, or both.

At this point it became very clear to me that there was very little I could do in that situation. I can’t describe how affecting it is to have a 6 year old child look you in the eye with tears in his eyes as his wrist or ankle is slapped with a wooden ruler, and not be able to do anything. But it comes down to the fact that as the intruder in the room, what right did I have to tell someone that an element of their culture was right or wrong? Some might say that I should have said something, but I didn’t see how that would have achieved anything but made it seem like I was a privileged white girl trying to push my Western views onto another culture. Instead, I tried very hard to stop the boys from doing things to provoke punishment. For those who fell behind in their work, I did my best to catch them up and for those who were about to do something mischievous, I pegged it across the room to try and stop them from doing it. I also allowed them to stand behind me and hug me when their teacher wasn’t looking, seeing as it was obvious that many were starved of positive physical contact.

I’m couldn’t really tell you my opinion of that teacher. On one hand, I watched her hit the kids, and that repulsed me. But then she also seemed like a hard-working, tough woman intent on ensuring that those children received a decent education. Spending time in that classroom, even for such a short time showed me that living in different cultures is not always easy. I have strong views on the subject of corporal punishment in schools as a result of my upbringing in the North of England. That teacher’s views were the polar opposite to my own, but then she had a very different upbringing to me. What is difficult to navigate in that situation, is to what degree I can express my opposition without reeking of western imperialist superiority.

I’m not sure how well I did in such a short time, but I like to think that those kids will remember the hugs I gave them and the parts of the alphabet I taught them.