As some of you may know, next year I’ll be studying in Japan for my third year at university. This is obviously very very exciting, and something I’m really looking forward to. However, the prospect of going to live on the other side of the world for a year when you have a physical disability isn’t ever going to be stress-free.

Now, you might think that my already having been on a gap year should make this a piece of piss, but the part I fail to mention when speaking about my year abroad, is that each trip was never that long, and I came home for respite and hospital appointments in between all of them. Thus, fully moving somewhere for months on end poses different issues to the ones I had to deal with when I was 19.

For example every few weeks, I go to visit one of my doctors and she treats my foot. It’s not complicated treatment, nor is it particularly specialised. So, you might assume that it’ll be pretty simple and easy for me to go to Japan and find a doctor there who can do the same thing…Well the problem with seeing a random doctor in a completely new country is that that medical professional isn’t familiar with my biology, and my ability to maintain a healthy condition of my feet does hinge a lot on my doctors knowing exactly how far they should go with the treatment. Therefore, trying to communicate that to a doctor who’s language I don’t know inside and out won’t be an impossible task, but it’s still pretty daunting.

Another fun thing I have to sort out is my university accommodation for when I’m in Japan. Tediously, I can’t walk very far and considering the fact that I won’t be able to drive whilst there, I’m going to have to be hyper-aware of how far I have to walk to go anywhere. Therefore, I have to make sure that I find accommodation close enough to my lectures and public transport so that I don’t end up getting a blister/infection in the middle of my year abroad. This isn’t an easy task when you can’t visit the place beforehand to figure out whether the website’s version of ‘it’s a 5 minute walk’ is actually true or not…but we do our best.

The main activity for this week though, was travelling down to Leeds for a hospital appointment to discuss how the hell I’m going to have access to new pairs of shoes when I’m 5,833 miles away from Leeds General Infirmary. Thankfully though, my doctor is a bit of a legend and he’s already started the process to order 6 pairs of shoes, 3 pairs of insoles, and 2 pairs of callipers, so that I can go to Japan with enough footwear to (hopefully) see me through the full year. This will then mean that I shouldn’t have to worry about my shoes breaking when I’ve got absolutely no way of getting new ones. So that’s already one part of the puzzle solved – well, it will be when I’ve actually received all the shoes and have confirmed that there aren’t any problems with them…but baby steps people, baby steps.

I don’t often mention these parts of my life because I can’t imagine them being interesting for anyone else to hear about, when they’re definitely not very interesting to me. But then when I’m having a stress-rant to my housemates about the hundreds of things I need to sort, they make it clear to me that these are the parts of disability that the wider world rarely gets access to. I shroud what I find tedious in euphemisms like ‘oh, I just deal with it’, or, ‘I’m disabled, I have hospital appointments all the time’, and then I never actually give you comprehensive information about how Spina Bifida affects my life on a day-to-day basis. Obviously, I prefer the discussions relating to self-identity or societal perceptions because they’re more enjoyable for me. But clearly, if I’m asking the able-bodied to help make my life easier, then I should give you a helping hand by telling you what I’m actually dealing with.

I can’t promise the tales will always be exciting though…but hey, maybe if people know more about the tedious parts of being disabled, then someone will want to find ways to design or invent something to make that tedium go away. And that’d be pretty cool.